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Post Treatment Pain
Hi,
I'm 9 months off my third round of treatment (telaprevir, interferon & riba) which was for 1 year. Past two treatments were both for 6 months, interferon & riba. It took a while, but eventually started feeling better after a few months. Now it seems that I have a "new side effect" from this last treatment. My joints & muscles are really sore, most of the time, actually I was tested for rheumatoid arthritis, but that came back negative.
Has anyone experienced residual side effects like this? Could the combination of 3 treatments in the past 5 years have really taken such a harsh toll on my body? I always seem to feel "flu-like". Just curious to see if this is common.
Thanks for any feedback you can give me!
Best,
W.C. Missy
I'm 9 months off my third round of treatment (telaprevir, interferon & riba) which was for 1 year. Past two treatments were both for 6 months, interferon & riba. It took a while, but eventually started feeling better after a few months. Now it seems that I have a "new side effect" from this last treatment. My joints & muscles are really sore, most of the time, actually I was tested for rheumatoid arthritis, but that came back negative.
Has anyone experienced residual side effects like this? Could the combination of 3 treatments in the past 5 years have really taken such a harsh toll on my body? I always seem to feel "flu-like". Just curious to see if this is common.
Thanks for any feedback you can give me!
Best,
W.C. Missy
Hi Missy, I only did the inf & riba and "only" for 24 weeks. I did clear the virus but have such joint & muscle pain that I have been to a few different doctors.
The neck surgeon (C 3 thru C7 are involved) told me that it is not a surgical fix, too many vertebrae to fuse. I guess that is a good thing. He sent me to a pain clinic.
The pain clinic wanted to do a cervical epidural with steriods. I researched that and it is not guaranteed to work and has its own side effects. This doc did tell me that the RA bloodwork that the usual physician does is just the first step. Mine was negative also. this doc said I should see a rheumatologist, which my GP agreed with.
The Rheumie who I saw on Wed 10/09 ordered more bloodwork and x-rays of my knees and hands/wrists. He feels at this point that it is fibromyalgia. We will see in a few weeks.
Good Luck and I hope your soreness goes away
Denise
The neck surgeon (C 3 thru C7 are involved) told me that it is not a surgical fix, too many vertebrae to fuse. I guess that is a good thing. He sent me to a pain clinic.
The pain clinic wanted to do a cervical epidural with steriods. I researched that and it is not guaranteed to work and has its own side effects. This doc did tell me that the RA bloodwork that the usual physician does is just the first step. Mine was negative also. this doc said I should see a rheumatologist, which my GP agreed with.
The Rheumie who I saw on Wed 10/09 ordered more bloodwork and x-rays of my knees and hands/wrists. He feels at this point that it is fibromyalgia. We will see in a few weeks.
Good Luck and I hope your soreness goes away
Denise
Hi Missy,
I also did the Telaprevir study. been off TX for around 5 months and still have joint pain and blurry vision. I did not have this before TX so I'm beginning to realize that both of these symptoms are realated to TX.
Some people that have done just SOC have complained of joint pain post tx so it may just be the interferon.
Perhaps we will hear this is also a side effect of Telaprevir after all the data is in.
I hope it gets better with time for us.
I also did the Telaprevir study. been off TX for around 5 months and still have joint pain and blurry vision. I did not have this before TX so I'm beginning to realize that both of these symptoms are realated to TX.
Some people that have done just SOC have complained of joint pain post tx so it may just be the interferon.
Perhaps we will hear this is also a side effect of Telaprevir after all the data is in.
I hope it gets better with time for us.
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