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Privacy Issues in School-Advice Needed ASAP
Today is the start day for Eric, my son. He took his riba this morning and handed a note in from doc, who has told us he does not have to disclose anything. It just said that he is undergoing treatment and on medication for a medical condition that requires he drink water round the clock and requires he be allowed to drink during class, work, etc. The nurse just called me and asked what treatment he was on and if he had hep C. I said I would prefer to speak with Eric's dad before answering any questions - just for lack of anything to say. Her tone was not pleasant and as I am at work couldnt talk anyway. Advice?
I am a former teacher and my experience was that school nurses are usually pretty discrete. However, if word leaked out in the office or to the teachers, things could get messy.
I am sorry your family has to deal with this worry. You have enough on your plate to deal with.
Personally, I would probably not disclose but it is hard to say. He definitely needs to drink a lot of water.
I am sorry your family has to deal with this worry. You have enough on your plate to deal with.
Personally, I would probably not disclose but it is hard to say. He definitely needs to drink a lot of water.
Glad you're around today. I have a story that may help you. Went to see the hematologist in advance of starting tx again. Same office, new doc, but he's experienced and knows his stuff.
We went thru cbc schedule, intervention points for hgb, anc's and platelets. Then I said, doc I don't want Neulasta, I'm willing to come in more frequently for neupogen but keep 'lasta away from me. He said that he will not use neulasta with hcv pts, will only use neup and was going to break the news to me about coming in more frequently when I needed anc help. He said that he has not seen any studies that indicate that there is no risk for significant amounts of pegylation. And, neulasta is not specifically indicated for hcv pts. Since both the interferon and neulasta both are 'peged' he won't take the risk. Maybe that will help you if your guy is too 'lasta happy.
We went thru cbc schedule, intervention points for hgb, anc's and platelets. Then I said, doc I don't want Neulasta, I'm willing to come in more frequently for neupogen but keep 'lasta away from me. He said that he will not use neulasta with hcv pts, will only use neup and was going to break the news to me about coming in more frequently when I needed anc help. He said that he has not seen any studies that indicate that there is no risk for significant amounts of pegylation. And, neulasta is not specifically indicated for hcv pts. Since both the interferon and neulasta both are 'peged' he won't take the risk. Maybe that will help you if your guy is too 'lasta happy.
Oh man - God love our x's. Thank God they know everything and are always right - otherwise you might have had to make a wise, educated, thought out decision there!
That is JUST the sort of thing mine would do - here you are trying to be reasonable and he just DOES what he thinks is best on his own. ARGH!
If she tells anyone at ALL you let me know and I'll come pop her with my Midnight Special - I am from NY after all ;)
That is JUST the sort of thing mine would do - here you are trying to be reasonable and he just DOES what he thinks is best on his own. ARGH!
If she tells anyone at ALL you let me know and I'll come pop her with my Midnight Special - I am from NY after all ;)
Hi! How you doing? Tell that new Hemo not to make any mistakes and give you that 'lasta!!! I am pretty psyched today, got my labs yesterday and my ANC went up to 1.3 on it's own! Also my Hgb went up to 12.5 on it's own. So there DR! See I don't need that stuff!!!! Well, at least for another week. LOL
That's interesting about the two pegs. So he thinks that isn't a good idea huh? I wonder what he thinks about Aranesp? That didn't cause much problem for me. Of course I felt so bad, I probably wouldn't have noticed.
That's interesting about the two pegs. So he thinks that isn't a good idea huh? I wonder what he thinks about Aranesp? That didn't cause much problem for me. Of course I felt so bad, I probably wouldn't have noticed.
Just sent you an email.. we dealt with the very same issues with Amanda..and found it best not to say a word...Being a teen is hard enough dealing with the normal day to day stuff..rumors can shatter a teens spirit..
Amanda is in college now and all we said on the health form is that she has a liver disorder that she was born with..just enough so they know something is going on.. no questions were asked..
Whats done it done, maybe just go down to the nurse now and stress the fact that this is an extremely confidential issue to you and your family and let her no she cannot say a word...
Good Luck
Jodi
Amanda is in college now and all we said on the health form is that she has a liver disorder that she was born with..just enough so they know something is going on.. no questions were asked..
Whats done it done, maybe just go down to the nurse now and stress the fact that this is an extremely confidential issue to you and your family and let her no she cannot say a word...
Good Luck
Jodi
I just got a call from my NP to tell me my platelets are 137. She wanted to know what I had done to get them to go up. I started with 76.
I told her about my nutritional regimen and all the fresh fruits and veggies as that is the only thing I do, I don't take any supplementation. She wrote down my whole diet plan to share with her other patients.
I am so happy they have gone up! They are almost normal!
Could be they just went up on their own due to being UND but I cant help but think that good nutritional support is helping.
Rocker, I wanted to give you a shout out and say thanks because even though I am not as devoted as you or as knowledgable as you to organic eating, I have definately been influenced by your input and suggestions so Thanks again!
That made my day!
I told her about my nutritional regimen and all the fresh fruits and veggies as that is the only thing I do, I don't take any supplementation. She wrote down my whole diet plan to share with her other patients.
I am so happy they have gone up! They are almost normal!
Could be they just went up on their own due to being UND but I cant help but think that good nutritional support is helping.
Rocker, I wanted to give you a shout out and say thanks because even though I am not as devoted as you or as knowledgable as you to organic eating, I have definately been influenced by your input and suggestions so Thanks again!
That made my day!
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