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Privacy Issues in School-Advice Needed ASAP
Today is the start day for Eric, my son. He took his riba this morning and handed a note in from doc, who has told us he does not have to disclose anything. It just said that he is undergoing treatment and on medication for a medical condition that requires he drink water round the clock and requires he be allowed to drink during class, work, etc. The nurse just called me and asked what treatment he was on and if he had hep C. I said I would prefer to speak with Eric's dad before answering any questions - just for lack of anything to say. Her tone was not pleasant and as I am at work couldnt talk anyway. Advice?
I am feeling pretty good! Energy is low, but I can go up those stairs at the ballparks without much problem. John bought season tix for the Warriors, so now we have tix for football and basketball now that the baseball season is over. Whewww! I have made quite a few lately. Also going through Psych evaluations/Worker's comp court this week. Now I wonder what possessed me to start tx when I was already suffering! I never like to sit around and figured I might as well tx too. Of course I am glad I am and as time goes by, sx's seem to be less (or I am used to feeling krappy) and hope it stays this way. You are beginning tx again in Oct?
I couldn't post to the thread - I think goofydad posted too long of a link or something like that.
As you probably know liver transplants are granted on the basis of the MELD score - and that alone for the most part. That is determined by a formula which uses 3 numbers:
1)bilirubin - 2)INR - 3)creatinine. I don't know the formula off the top of my head but it is easy to find.
The methadone issue probably depends on the policy at the clinic. I was transplanted in 2000 (before the adoption of the MELD score) and a man who was on methadone for heroin addiction was transplanted 3 days before I was. My center was, at the time, in the minority as far as that stuff goes. They also transplanted an HIV positive person around the same time and I think it was the first center to have done that. I may be wrong about this but I would guess that each center has policies that address issues like these and I would ask someone at the center nearby. If you get the wrong answer don't give up - there is probably a center that will list her somewhere. I know people from when I was transplanted that came from all over the country just because this was the only center that would or could help them. I am thinking of a woman who had a mutil organ transplant - small bowel, pancreas and liver - and this was her only option. My center is Starzl in Pittsburgh but I would tend to believe that a lot of the centers are more progressive now than they were in 2000. If I can help you in any way just ask. It's a lonely place to be when you're hoping for a transplant - and a bit scary too.
Mike
As you probably know liver transplants are granted on the basis of the MELD score - and that alone for the most part. That is determined by a formula which uses 3 numbers:
1)bilirubin - 2)INR - 3)creatinine. I don't know the formula off the top of my head but it is easy to find.
The methadone issue probably depends on the policy at the clinic. I was transplanted in 2000 (before the adoption of the MELD score) and a man who was on methadone for heroin addiction was transplanted 3 days before I was. My center was, at the time, in the minority as far as that stuff goes. They also transplanted an HIV positive person around the same time and I think it was the first center to have done that. I may be wrong about this but I would guess that each center has policies that address issues like these and I would ask someone at the center nearby. If you get the wrong answer don't give up - there is probably a center that will list her somewhere. I know people from when I was transplanted that came from all over the country just because this was the only center that would or could help them. I am thinking of a woman who had a mutil organ transplant - small bowel, pancreas and liver - and this was her only option. My center is Starzl in Pittsburgh but I would tend to believe that a lot of the centers are more progressive now than they were in 2000. If I can help you in any way just ask. It's a lonely place to be when you're hoping for a transplant - and a bit scary too.
Mike
Planning on starting two weeks from today, Friday the 13th. I chose it because of the irony. Just need to get the meds. Innsurance and the doc are playing pat-a-cake right now. Saw all the docs, did all the blood stuff. So, it's just the meds and a call from the doc with the baseline pcr vl. He's had the results for a few days but he spends a lot of time at the hospital scoping unsuspecting saps. I'm ready for the tx, seen enough of the scope.
Thanks Elaine, you are such a sweetheart. I am a Mom too and I know it must be hard on you to cope with your son's health issues yet you remain so positive and have such a good attitude. You know what they say, attitude is everything!
He's lucky to have such a good Mom.
He's lucky to have such a good Mom.
Actually I think the correct classification is that we are "big bags of water" (Sorry I forget the movie where the alien used that description for humans).
A few questions I would ask myself. Does the school nurse have a medical need to know? I expect that all meds are administed away from school, peg at home, riba at home in the am and pm. No need for the nurse to hold meds? How secret is a secret in a public entity?
If it was my kid, and I have 2 in school, I would not inform of the specific condition. Too much at risk for the child either in the form of 'special treatment' or being 'labeled'. I'd make sure the school has all up to date contact information and leave it at that for now. You can always divulge later, if the need arises. But, once spoken, it can't be unspoken. Tread carefully here.
If it was my kid, and I have 2 in school, I would not inform of the specific condition. Too much at risk for the child either in the form of 'special treatment' or being 'labeled'. I'd make sure the school has all up to date contact information and leave it at that for now. You can always divulge later, if the need arises. But, once spoken, it can't be unspoken. Tread carefully here.
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