SOC side effect poll

[Bali05]

Many people on this forum have a lot of personal experience as well as being observing others over the years.
SOC is a very personal decision and there is nothing better than hearing from people actually going thru it.
I asked my trial recruiter about side effects and the deeper I go the more silence I encounter.

Would like to know from all of you out there what you think

according to your knowledge and experience out of 100 people that tx how many will have:

1) no side effects
2) little side effects
3) severe side effects
4) irreversable permant damage

I understand the "everyone reacts differently " part but by now thousands of people have done or are
currently taking interferon/ribavirin so there must be data

What do you think ?

[epiphiny]

I have to join in with all the voices and say it such a personal experience that I do not know how it could be quantified.  Perhaps the real question is risk versus gain? In other words, was it worth it?

For me, I underwent 2 treatments.  One with SOC that did not work for me.  I did not have any residue or lingering side effects from that other than feeling depressed that I didn't beat the dragon.  In every other way I felt better than  prior to treatment.

Second treatment, twice as long and with a study drug that you already know about.  This time it was successful.

There were times with the treatment was difficult for me but if you ask me if it was worth it I say YES. YES YES YES.  I feel great now.  My life has changed for the better.  I am able to participate in my life more fully than before treatment. I no longer have the dragon. I won! I am no longer a victim or a patient.

It didn't happen instantly but I have made my way to a place that was better than before.  Do I have any lingering side effects?  Well I don't know whether the few things that I have are from tx or from the aging process and I will probably never know.  All I do know is, that for me, treatment was worth it.

Epi.

[FlGuy]

More doctors should be worried about interleuken 10 with SOC. Good thing he's knowledgeable.

[Bali05]

you got it all wrong !

I am glad I have this doctor as my general physician and he is actually quite knowledgable.He would give Alinia off label rx when nobody else would have.
If it were not for him to this day I would not know I have Hep C .
He is particularly worried about interleuken 10 with SOC.
We are taling cognitive problems here.

[jusjames]

i just noticed my fish are all swimming anti clockwise they have always swam clockwise before , bit odd ! must be a **** up!

[Bali05]

one way or another first of all thank you all for your advice.

I am abosultely not interested in making this a pro/contra tx discussion

Just having a hard time flipping a coin on my health !

[jdwithhcv]

As you noted at the outset, we on this forum have a lot of experience with SOC, something your doctor does not share.  If your doctor is telling you that you can die from the side effects I suggest you find a doctor who has a clue.  The one you're quoting sounds like he doesn't.

Of course, if your intention was really just to bash SOC, perhaps you can see that this is not the venue for that agenda.

I'm just sayin'

jd