SOC side effect poll

[Bali05]

Many people on this forum have a lot of personal experience as well as being observing others over the years.
SOC is a very personal decision and there is nothing better than hearing from people actually going thru it.
I asked my trial recruiter about side effects and the deeper I go the more silence I encounter.

Would like to know from all of you out there what you think

according to your knowledge and experience out of 100 people that tx how many will have:

1) no side effects
2) little side effects
3) severe side effects
4) irreversable permant damage

I understand the "everyone reacts differently " part but by now thousands of people have done or are
currently taking interferon/ribavirin so there must be data

What do you think ?

[Trinity4]

Since there is no need to rush into anything Bali should have plenty of time in the future to do his own research on statistics, side effects, percentages, etc so he can make a decision that best suits his needs when or if the time ever comes.

Trinity

[GSDgirl]

someone told my brother that every that he knew that treated was dead, I am not.  Maybe those people still partied hardy?

I know someone that commited suicide, I didn't and never had the urge.

Stuff happens sometime and sometime it doesn't

Honestly, I think that you should make up your mind one wat or the other and go with it.

Denise

[tashka]

Fortunately, Bali is far from end stage liver disease. There is no need to rush into anything.

[nygirl7]

I've never heard of anybody dying of complications of treatment. Not to say that it couldn't happen but if you had a doctor who was on top of things (ie: cardio testing first etc) it shouldn't happen.  

People can die of complications of even anesthesia at the dentists as happened to my Uncle - but to live life always fearful of the worst isn't something I'd rather do.

I've watched people die of end stage liver disease that came on quickly - believe me there is no comparison to that horror. That scared me much more.

So after all of this now that you are not in the trial once again you are not treating? You do whatever it is that feels right for you but honestly I don't  know how many times to hash this all out any other way then we've arleady done.

[Bali05]

my doctor says pretty much the same.

He had a case that died from complications of tx and he is telling me

only to do it if my back is against the wall meaning labs getting worse ect....

My labs are actually getting a lot better recently normal LFTs ect...

so he recommends "watchful waiting"

One thing that bothers me a lot. You can walk into pretty much any hepatologist

office with dx Hep C they will ALL push for SOC the minute you walk in. It is just not

very trust evoking to me no matter how much you like that clock with the flying

horse behind their desk.

The fact is you might SVR but you also might get much worse quickly without SVR.

I was just up for this trial and I could not get in.

At first when they offered the trial I was told that what I wanted to do Alinia+SOC

had poor results. Than they found out Roche had a problem with me taking Alinia

and now all of a sudden they recommend Alinia+SOC like I should have done it

yesterday. (they don`t even have my recent labs and scans ect.)

On top of that half a year ago when I wanted to do Alinia they did not even bring it up.

It is what it is but these are very personal decisions that require thourough

consultations since we are all different. Maybe it was a blessing in disguise that

the trial did not happen for me. I just don`t make a good lab rat.

[nygirl7]

Una they never gave you a sharps container you could have saved that beautiful red box as the perfect souveneir!!!!  ;)

Thank Brianmo - for those of us who were given the chance to succeed by the people who were in here when we started...it's worth coming in to pay it forward and watch other people get SVR!

PS What do doctors know about hepc anyway ;)