Aa
Starting trial this week
Hi I am starting treatment this week with a clinical trial. I am taking the interferon and riboveron.
I am scared! I have gene type 3. I was wondering how fast the side effects kick in? Will I feel bad right away?
I am scared! I have gene type 3. I was wondering how fast the side effects kick in? Will I feel bad right away?
I started the first 4 weeks of my treatment, with Interferon and Ribaviron, with very little side-effects. The day after the Interferon shot, I felt achey, so dont work-out, cuz then yr muscles will be SO sore.
Are you doing the Trial, becuz yr Medical Insurance wont pay for regular treatment? I think with Geno type 3, you will be able to tell,in 4 weeks, if you will be responsive, to the Interfoeron (as in, yr viralload will be undetected, or MUCH lower.
If yr Insurance will pay for yr treatment, I'd get a biopsy first, instead of rushing in blindly~any thing outof raange, with yr labs(blood-work?)
It's good to be completely educated about these Research Trials..might you be getting a placebo,and not know it, for instance (called a blind study)
Are you doing the Trial, becuz yr Medical Insurance wont pay for regular treatment? I think with Geno type 3, you will be able to tell,in 4 weeks, if you will be responsive, to the Interfoeron (as in, yr viralload will be undetected, or MUCH lower.
If yr Insurance will pay for yr treatment, I'd get a biopsy first, instead of rushing in blindly~any thing outof raange, with yr labs(blood-work?)
It's good to be completely educated about these Research Trials..might you be getting a placebo,and not know it, for instance (called a blind study)
You do not have to participate in that trial if you dont feel comfortable with it. There must be a zillion trials out here in calif. google clinical trials.com. Especially around Lake Forest. lots of trials I bet. What geno type are you? Ginger
Here's the abbreviations:
http://www.medhelp.org/health_pages/Hepatitis/Hepatitis-C-Acronyms-Abbreviations/show/3?cid=64
The new meds are not side effect free but they are interferon free and the side effects mostly sound minimal.
Whether there are any long term side effects isn't known yet.
There have been some good results with some of the new orals especially for genotype 2 &3.
If I entered the trial believing I was getting the new meds, I'd be disappointed too.
Your post points out how very important it is for people to read up and understand what they are getting into before beginning.
You need to read everything, do research and ask many questions.
As far as how you will feel doing SOC, interferon/ribavarin, is an unknown.
The side effects can range from mild to very severe.
How often will you be doing labs? At first it should be every week for cbcs.
It is important to be educate yourself and be proactive in your health care.
I suggest you check out some web sites:
www.hepcadvocate.org
http://www.medhelp.org/health_pages/Hepatitis/Hepatitis-C-Acronyms-Abbreviations/show/3?cid=64
The new meds are not side effect free but they are interferon free and the side effects mostly sound minimal.
Whether there are any long term side effects isn't known yet.
There have been some good results with some of the new orals especially for genotype 2 &3.
If I entered the trial believing I was getting the new meds, I'd be disappointed too.
Your post points out how very important it is for people to read up and understand what they are getting into before beginning.
You need to read everything, do research and ask many questions.
As far as how you will feel doing SOC, interferon/ribavarin, is an unknown.
The side effects can range from mild to very severe.
How often will you be doing labs? At first it should be every week for cbcs.
It is important to be educate yourself and be proactive in your health care.
I suggest you check out some web sites:
www.hepcadvocate.org
Hi Jen,
Welcome to the discussion group. Here is the link to the HCV acronym page Ginger mentioned:
http://www.medhelp.org/health_pages/Hepatitis/Hepatitis-C-Acronyms-Abbreviations/show/3?cid=64
it’s tucked away on this page near the bottom right side in a box titled, “most viewed health pages’. I’d open the page and either save it to a Word document, bookmark it or print it for future reference.
Good luck with everything; as you get going others in here will help answer questions. Feel free to read and hopefully better understand how all this works.
Take care-
--Bill
Welcome to the discussion group. Here is the link to the HCV acronym page Ginger mentioned:
http://www.medhelp.org/health_pages/Hepatitis/Hepatitis-C-Acronyms-Abbreviations/show/3?cid=64
it’s tucked away on this page near the bottom right side in a box titled, “most viewed health pages’. I’d open the page and either save it to a Word document, bookmark it or print it for future reference.
Good luck with everything; as you get going others in here will help answer questions. Feel free to read and hopefully better understand how all this works.
Take care-
--Bill
Hi, I don't see the list. But all I know is that it is a trial that tests the new pharmacet pills against the standard treatment. I think it is in the 3rd phase??
I'm not sure what rescue drugs are but I do remember them saying that they could give me things to manage side effects and if I wasn't responding, the other med would be available to me. I went to see a new GI to ask for a biopsy bc I haven't had one for 10 years and wanted to see if I had any changes. I was diagnosed then and had no liver damage at that time, but have had all kinds of other health issues that no one could figure out that I attribute to the hcv. Any ways he sent me to a liver specialist and he told me about the trial, and I was excited thinking I would get the new meds that have no side effects (thats what he told me) and found out today that I'm getting the old meds :(
hope that wasn't too much explanation, I'm new to forums and don't know the etiquette lol
thanks jen
I'm not sure what rescue drugs are but I do remember them saying that they could give me things to manage side effects and if I wasn't responding, the other med would be available to me. I went to see a new GI to ask for a biopsy bc I haven't had one for 10 years and wanted to see if I had any changes. I was diagnosed then and had no liver damage at that time, but have had all kinds of other health issues that no one could figure out that I attribute to the hcv. Any ways he sent me to a liver specialist and he told me about the trial, and I was excited thinking I would get the new meds that have no side effects (thats what he told me) and found out today that I'm getting the old meds :(
hope that wasn't too much explanation, I'm new to forums and don't know the etiquette lol
thanks jen
Anyways, what trial are you in? There is a list of acronyms at the bottom right hand side of this page. Geno 3 is much easier to treat than Geno 1. How did you find your trial? Do you know what arm you will be in or how many arms are in the trial? Will they allow rescue drugs? Now I bet your really getting nervous huh:-) ? There is a really exciting trial going on with geno 1's,2's,and 3's but I dont think the one kaitla is in involves interferon. Im sure many more people will be here to respond to all your concerns.
Best I can tell you is I did fine on tx and that was 48 wks. ***Ginger
Best I can tell you is I did fine on tx and that was 48 wks. ***Ginger
Hi Jenge. Yes I know your scared. I was too before I started my trial. Many people feel sx. I did not feel any oops be right back
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