No the truth is not to hard for this forum, what seems to be hard for certain people in common sense... As bocep said years ago we had to treat much longer, 48 weeks 72 and even 2 years was pretty common. Then you relapsed and had to do it all over again. I've done a total of 134 weeks of riba and interferon and so has many others. Now the SVR rates are as high as 75 to 80%, before they were 40 to 50%.
24 and 28 weeks are way more common now and you gain SVR, some still need 48 weeks but again SVR rates are at a all time high, Now thats the dang truth. Some of you don't want to hear that you just want to bash. Until all oral drugs cure everyone it is what it is and many of us are alive because of it, some of you never had to get to being cirrhotic first. Why not enjoy that?
Dawn, it suddenly hit me when I read your post...(I can be slow on the uptake these days, sorry.) I couldn't understand why everyone was so enraged about what they had said...I tend to agree with them. But then while reading your post It hit me that the majority of the folks on this forum are using, suffering with (and getting the cure with) Interferon. It just slapped me with the realization that it is the height of insensitivity to make these statements to people who have chosen or had no other option but interferon. It would be like someone telling me my drug study is very risky to my health.(and it may be) That the orals down the line will wreak havoc with my health. Suddenly I got it. So sorry.
the only comment I have on this is that treatment was not a trip to hell close, but now that its behind me really doesnt seem like it was that bad. The anemia was the worst. BUT if it rids me of this crap it was worth every miserable day I had during treatment. Would not ask to do it again but we have not many choices to cure this so we do what we have too.
Although the idea that a person would post things with the purpose of scaring people is hard to grasp, there was a member here who got thrown off the forum who was often posting about the horrors of interferon while having never experienced it and claiming to have no liver damage.
This former member, was pushing the oral trials, one trial in specific, using scare tactics if needed to get people to do this one trial.
Some here thought this member was working for that company or had a lot of stock, or some other ulterior motive.
I think this psmike may be this former member, but of course I have no proof.
Listen to people who have been through tx.
Not ones who only post negativity.
Nothing in life is all pros or all cons.
I used to run a channel, on YouTube, where I made silly videos, etc, and made alot of good friends there. I also ran into tons of Trolls there, and I could never figure out what pleasure they got, from enraging people, and hurting people's feelings.
Luckily, here on this Forum, we have a Moderator, which helps alot. There is a button, to report abusive behavior, or you can e-mail the MedHelp team, as well, and they actually respond~
i agree that his thread was very disturbing for people on treatment. we're trying to rid ourselves of this dreaded disease. we don't need to be scared about the meds we're on. thank god for this forum. it has helped me so much. i don't think i could have gotten this far (44 weeks) without my cyber friends. thank you guys. best wishes. belle