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Side Effects of pegasys

Here is the side effects of pegasys in case you don't know
http://www.pegasys.com/patient/index.html
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766573 tn?1365166466
Ha. I love this. A simple list addressing every vital function or organ of the body. They don't even bother with the standard "boiler plate" hog wash sentence that most drug information monograms have.

It is a sentence that goes something like this:

"Side effects that go away upon cessation of treatment"

That is probably because most of the side effects feel like they linger forever! But hey, what you gonna do?

My Wellbutrin (Bupropion) specifically offers this assurance:
"Side effects go away within about a week after stopping this medicine."


Helpful - 0
Avatar universal
"Side effects that go away upon cessation of treatment"

Is that a "falsehood" or what?

No seriously....I've just started, but am interested in the future.....
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Avatar universal
Due to the process of approval and the players in that process and the basic truths of human nature and business, one would be naive to not believe that side-effects are under-reported.
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1669790 tn?1333662595
Yes, these medication do have side effects, some that continue after tx for some patients.  Like many medications, hearing the commercials and reading the list of side effects can be very intimidating.  I also agree that the follow up from the doctors after eot is less than desirable and the lingering side effects probably are under reported.  

It's unfortunate that you are experiencing the collateral damage from tx, but I noticed almost all your posts focus only on this.  I'm not sure why you're trying to scare people on this forum with all the similar negative threads you recently posted.  This doesn't appear as an attempt to inform, it comes across as an attempt to scare.  
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163305 tn?1333668571
WOW, you are CLearly at it again. The only posts of yours are the scare variety.

People who attempt to scare others from the only approved treatment that works right NOW to rid us of this virus, get me very angry.

Your unbalanced view only serves to scare people.

When first diagnosed with hep C and cirrhosis, all I read on the internet scared me so bad, I avoided doing anything for over a year.

Long story short, I did treatment too late, relapsed and had a liver transplant.

The truth is NOW, more people die in the US of hep C than AIDs. The majority of liver transplants are from hep C.

Sure some have long lasting side effects. Most who do interferon do not. They move on with their lives and do not go onto forums.

Some people with little or no liver damage have the option of waiting for better treatments to become available. Some people may choose to try an unproved trail.




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446474 tn?1446347682
Here is a class line from self attributed "interferon expert" psmike59. Next he'll be blaming interferon for the world-wide economic collapse.

"Are you guys seriously taking it. I pray for all of us. Hope something  comes because after all that the treatment didn't even work. Waste of money and time and devestated my life, almost broke up my marriage. Unbelievable."

We agree on one thing..."Unbelievable"..... indeed!


Hector
Helpful - 0
1491755 tn?1333201362
I think some fail to realize how sick we really are.  The asymptomatic nature of HCV is deceiving.  

One minute your floating down a river, the next your going of a waterfall. With HCV you never know where that waterfall lies.
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Avatar universal
Hate to rain on your parade BUT I'm not having any sx. NO PAIN ON GAIN.
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317787 tn?1473358451
I am very very sorry you are having sx after finishing tx.
I treated in 2008 with Peg and Riba, I was UND from week 7 on.
I relapsed 6 weeks after finishing tx and never felt right.  I also blamed it entirely on the tx as I felt just fine before tx in 2007.  I am now 2 months post triple tx and I have not felt this way in years.  Evidently HCV is an insidious disease and it affects us in ways that we do not know.
  While the first tx did make me feel worse than I ever did and the symptoms did not go away, neither did the HCV.  Now that the HCV is gone I feel so much better.  It is like a miracle. Yes the tx was hard, difficult, I thought I was going crazy.  If the people on here had not helped me through it I would never have made it.  I will always be grateful to everyone here.  Now that I am UND I am feeling so much better, it was not immediate however I now look forward to the new day.
I hope you can find something to help you.  Not know your history I can't say anything else except that I wish you the best
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1815939 tn?1377991799
"I think some fail to realize how sick we really are.  The asymptomatic nature of HCV is deceiving.  One minute your floating down a river, the next your going of a waterfall. With HCV you never know where that waterfall lies. "
--------------------------------------------------

Perfectly stated, James. I could not agree more. Many people just don't realize the insidious nature of Hep C, always lurking, just waiting for the opportune time to show its ugly head and do its damage (and not just on the liver either).
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Avatar universal
I DON'T need someone telling me the medicine I am on will later ruin my life.
Seriously!
...good thing I Don't listen. Nobody should.
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Avatar universal
Maybe it would be a good idea then not to read posts about side effects and dangers, then.

For those who contemplate treatment, it might be a good idea.  

It seems that a lot of people have no idea of the isolation, fear and overwhelming sense of loss one who has been hammered by interferon feels.  It makes you lose your identity and sense of who you are in your own skin.  

Unless you've lived it, you can't know it.
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Avatar universal
*********can we close this post*********************

Emily where are you ?
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Avatar universal
That's right, Laura~ I read his other negative comment this morning, but had to run off, and throw my son his 10th birthday party, so I couldn't reply, but I knew many others on here, like Hector and OrphanedHawk would set the record straight.
   It is better to treat hep C, before it gets to the point of no return. It is called "The Silent Killer" for a reason, because it tends to stay dormant for 20 yrs, and then, watch out. Mine flared up when I turned 47 yrs, but I caught it in time. Other people have had to go thru liver transplants. I have purposely chose not to read about the side effects of Interferon. I had only done Interferon and Riba, for 4 weeks, when my viral load went undetected and my elevated enzymes went back to normal, and that was BEFORE I added the Boceprevir, because we get a 4 week "lead in".
   How can I knock a med, that has done all that, in such a short time?
I'm sorry that psMike had a bad experience with it, and hopefully he will be cured, with the newer treatments, but it is not thoughtful, to scare people onhere, who are in the middle of treatment. I dont see how that can be "supportive"~
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Avatar universal
Yikes..step out for a couple of days and I see the Interferon kaw kaw  has hit the fan again.   Are we still using it or was there a breakthrough  in the last few days..Hope we are ..it is great stuff and  has saved hundreds of thousands of lives.  

Oh  hey..  mike  
p.s ..congrats on you SVR... I can only" imagine" what that is like

Will
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Avatar universal
Hey, try throwing Boceprevir on top of it then.
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Avatar universal
Willbb!! Haha too funny. This is not the first thread posted by him today. I actually commented to you: "miss you, haha!" (Before it was deleted or something) it was all ...quite interesting.

BocepGal, I am not reading the side effects either or I will have them all! ;p

:) Laura
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2061362 tn?1353279518
Wow can't believe the scare tactics are on here again. You are bitter bitter people who NEED to move on with your lives. You are only making your own lives more miserable. I wish your souls peace. One thing is for sure, for those of us who are trying to improve the quality of life, we deserve peace. I'll say it again. your ulterior motives have NO place her on this forum.

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Avatar universal
  

Laura
Proly was deleted cause you said you "missed me"  not sure that is allowed :)

Ok back to my visiting...couldn't resist this   "INF. has destroyed the world thread"    Rambling on.....

Hope you are out of the hospital and feeling better with all new  "red corpuscles"

Hey Keith .....hope you are feeling better too

Will

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Avatar universal
Really?  OMG you are too much
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Avatar universal
Lol. you're right. I should have posted, "I miss your input!"
;p Laura
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Avatar universal
Hate to admit it, but I actually look forward to my Inf shot.
     In the earlier thread (this morning), psMike had said that "only 5% of people with Hep C actually die of it".  I think I would like to see the link, for that fact. I actually know a few people, who have died of Hep C, and according to my labs, I was headed towards cirrhosis, and I havent touched booze in 20 years, and have an incredibly healthy diet, and life-style.
  
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2061362 tn?1353279518
I apologize to you or anyone else for my anger and if I offended anyone at all, even the two my comment was meany for. I chose to go through this treatment and use this forum to perhaps help me along the way. I was hoorified by what I read in this morinings post by them. I know the seriousness of this treatment and I do not need or want someone to try to scare me away from treatment and it sickens me that they are trying to scare those contemplating treatment. I know everyone has their opinion, but  I truly believe posts from people like them are not designed to help anyone.Maybe I chose the wrong place to seek help and advice. Again I apologize if I was out of place not my intentions whatsoever.



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Avatar universal
"About 130–170 million people are chronically infected with hepatitis C virus, and more than 350 000 people die from hepatitis C-related liver diseases each year."  
   I googled this up from a WHO article, which also had the 5% stat, but still, if 5 out of 100 people die of Hep C, that is way too many, and that is why people choose to treat it.
   The good news is, finally Hep C is getting more publicity, and the Drug Co's are seeing $$'s in it, and advancement is being made quickly.
   My hope is that we will all be cured, in the long run~
Helpful - 0
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