Aa
Spreading the virus?
I was mowing the grass the other day and stubbed my toe and it started to bleed are the ants going to give the dreaded virus to the kids on the block? Well the answer of course is no!!
I understand people have sx when there on treatment, but I read a post the other day about not being able to swallow post tx then some one replied that they couldnt swallow two days after there first shot, Is it possible to bring these symptoms on ourselves? Honestly during this tx I never even worried about a thing and never knew of this website until post tx, it seemed the more I read the more worried I got,When I see comments like should I make my funeral arrangements? "I just want crawl into a dark hole" Things like that do not help people that are recently dx and alot of the stats I have read on the majority of the symtoms I see here are rare but it seem 90% of the people have them, Don't get me wrong this site has been very informative in small doses, Too much of a good thing can also be harmful.
I understand people have sx when there on treatment, but I read a post the other day about not being able to swallow post tx then some one replied that they couldnt swallow two days after there first shot, Is it possible to bring these symptoms on ourselves? Honestly during this tx I never even worried about a thing and never knew of this website until post tx, it seemed the more I read the more worried I got,When I see comments like should I make my funeral arrangements? "I just want crawl into a dark hole" Things like that do not help people that are recently dx and alot of the stats I have read on the majority of the symtoms I see here are rare but it seem 90% of the people have them, Don't get me wrong this site has been very informative in small doses, Too much of a good thing can also be harmful.
I went through the treatment too, so if I wasnt afraid that makes me not in touch with reality? The whole point of the post was sometimes people may read too much and start thinking of the sx there going to have before they even start tx.
Jakish
Jakish
My bad. sorry, really I wasn't trying to put words in your mouth. Brian Fog has been visting me a lot lately, maybe the 100+ heat with 80 degree dew points we've had lately that has drawn him up from FL. I must have gotten confused by the sx's are rare comment connected with 90% remark being used in the same sentence.
Dang it's frustratin when short term memory isn't what it used to be. My wife always asks "What's the big deal", but then I remind her that being blonde she might not understand. Of course that's right before I wind up taking a short nap and wake up with a goose egg on my head, not remembering how I got it. She says it might be because my short term memory is foggy due to my tx and I shrug it off. But I can't help but wonder why so many of our pans are now rocking when I put them on the burner these days.
Dang it's frustratin when short term memory isn't what it used to be. My wife always asks "What's the big deal", but then I remind her that being blonde she might not understand. Of course that's right before I wind up taking a short nap and wake up with a goose egg on my head, not remembering how I got it. She says it might be because my short term memory is foggy due to my tx and I shrug it off. But I can't help but wonder why so many of our pans are now rocking when I put them on the burner these days.
I'm sorry , I spaced out the part about you having gone through tx already. Its great that you did it without fear and had I sensed that from your post I wouldn't have tried to make you feel that its ok to be afraid , like I would a new member. Its just that words like "worried" and "crawl into a dark hole" just kind of come out as "afraid". My apologies. I personally havent brought any of the sx I get from treatment "on myself" . Did you not have an sx during your treatment , and did you bring them on yourself?
Jakish,Jakish,Jakish.
First let me say that I have personally been scared ****less from some of the posts I have read here.
Do this for me , search the site for Riba Rash. You will find a post that is titled "Ribaviron side effect of mysterious rash"
dated 03/03/2002. When I was researching tx prior to starting tx , I was looking for any info I could find and this was the very first post I came across about Riba Rash. I definitely here what your saying about needless horror stories.
Remember , these folks here are not making this stuff up. Something is causing these sx and the only way that they are going to know and that we are going to learn is to get it all on the table where we can see it and evaluate it. I guarantee that if someone is giving bad information or causing needless fear and worry in this forum , someone is going to say something about it .
The fear I'm talking about that runs through here like a thread isn't fear of loss of life , its the fear of living and somehow being disabled during treatment and not being able to continue to meet the responsibilities of family , work and planning for the future. Many people here are so beat down by the treatment and have to continue to work through it because they cant afford to loose the insurance that their job affords them. That's scary. Missing work or loosing jobs ,putting bread on the table , maintaining relationships , the stigma of the disease and how they are seen in the eyes of their peers. This is the kind of fear I'm talking about and If you will notice , its the kind of fear that no one talks about but that is always present like the proverbial 800 lb. gorilla in the middle of the room.
Your turn. Hit me :)
First let me say that I have personally been scared ****less from some of the posts I have read here.
Do this for me , search the site for Riba Rash. You will find a post that is titled "Ribaviron side effect of mysterious rash"
dated 03/03/2002. When I was researching tx prior to starting tx , I was looking for any info I could find and this was the very first post I came across about Riba Rash. I definitely here what your saying about needless horror stories.
Remember , these folks here are not making this stuff up. Something is causing these sx and the only way that they are going to know and that we are going to learn is to get it all on the table where we can see it and evaluate it. I guarantee that if someone is giving bad information or causing needless fear and worry in this forum , someone is going to say something about it .
The fear I'm talking about that runs through here like a thread isn't fear of loss of life , its the fear of living and somehow being disabled during treatment and not being able to continue to meet the responsibilities of family , work and planning for the future. Many people here are so beat down by the treatment and have to continue to work through it because they cant afford to loose the insurance that their job affords them. That's scary. Missing work or loosing jobs ,putting bread on the table , maintaining relationships , the stigma of the disease and how they are seen in the eyes of their peers. This is the kind of fear I'm talking about and If you will notice , its the kind of fear that no one talks about but that is always present like the proverbial 800 lb. gorilla in the middle of the room.
Your turn. Hit me :)
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