I think anybody that comes here should be able to post about whatever topic concerning HCV that they want. No, it's not all happyflowerkittyland nor should it be. It is reality.
People will take from this forum what they want whether that be positive or negative.
By the way do know how hard it was to give those little sons of biscuit eaters a biopsy!!!!
This comes up from time to time. The assertion that somehow this group is not representative of the hep c population in general and that a greater proportion of those having difficult sides (occasionally called "whiners" LOL) end up here.
Of course everyone has a right to their opinion, but these types of statements are highly speculative as no studies exist. So here's my speculative opinion :)
I think the opposite. I think this discussion group pretty representative of the hep c community as a whole and possibly our experiences are on the light side regarding sides, not the heavy.
First of all, because we're all wired to the internet, I think it fair to say that as a whole we're a relatively educated -- or at least inquisitive lot compared to the general population. To me this means that this group would tend to seek out answers and doctors more than most and therefore probably receive better care than most, and certainly receive more support (at least virtual) than most. How many are out there not on the internet who started treatment, freaked out because of the sides, and then stopped?
Second, many here have stated they were reluctant to post about negative post treatment side effects for fear of scaring off those treating or about to treat. So again, I think a good case can be made for *under reporting* of sides, not over reporting.
Next, people here from time to time simply *disappear*. In many cases it turns out they're just too sick to post or perhaps they simply stopped treatment.
And lastly, keep in mind that many come here BEFORE treating, so they have no treatment sides to start with. So the argument that those who have more problems flock to places like this, just doesn't hold water.
Anyway, that's my speculative opinion :)
-- Jim
Yes I did have sides!! Have you ever heard the saying "worry yourself sick" in some cases I think it may apply here, not for everyone, sometimes people can read too much info and that info never leaves there mind and may cause alot of the insomnia I read about here, I knew going into treatment there was a solid chance of fever,chills etc.. Maybe my doc did a good thing by not mentioning possible depression, rash, nausea and so on.By the way thanks for the discussion , I was hoping for alot of input on this subject.
Well I have to go my ants just knocked on the door and ordered 3 more gallons of water. Ha Ha
First of all I can tell my knowledge of this subject does not hold a candle to yours, Please take that as a compliment, I have read many of your post in the past, so keep us informed.
Well the ants are back and they have ordered an oxygen tent due to shortness of breath.