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Avatar universal

Shot 4 today, wish me luck...

One thing that's making me crazy is I won't have any results from all the weekly bloodwork till week 12 since everything in this study I'm on is blinded till then - and I am soo curious.  As I have mentioned before, my sx aren't bad at all, leading me to believe I am getting inf Lambda in my study, although I won't know till week 24, I believe.  But, if I am getting it, I highly recommend it, I think it's primarily for genotype 1, I'm 1b, and my worst sx has been dizziness and slight nausea in the heat.  But we are have been having a record breaking heat wave these past few weeks, so maybe that's not surprising at all.

Cheers, all!
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789911 tn?1368636783
If you have insurance you can always get your own private testing done.   Have your regular doc order it.  Or you will pay about 350.00 for a PCR without insurance.  A little more if you use the TMA more sensative test
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Avatar universal
I chose to be in a study for good and less good reasons - the care I'm getting is awesome, the tests beforehand were extensive and thorough, and it's free.  Less good - I am curious about the process, and I didn't realize that there are already some pi's on the market, I thought this was my only chance.  My doc did push this a bit, but I should have done more homework to be better informed about my options.

The study (http://clinicaltrials.gov/ct2/show/study/NCT01309932) is testing two different inf - the standard, or a newer one Pegylated Interferon Lambda, which has fewer sx and I believe is more tailored to genotype 1 although I am not sure about that.  They are only taking 1s.  It has 7 arms (wow!) so I may be getting one of the inf's and either BMS 790052 or 650032 or a placebo.  I think my chances of not getting the placebo are pretty good.  I think I am getting the Lambda, because my sx are very bearable.

That shot did sting today, though!  don't like those, good luck on the all oral study, that sounds great!
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374652 tn?1494811435
keep up the good work
hugs, Mary
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Avatar universal
May I ask what the study is looking at for this one? Sorry if you covered it recently. :) I'm hopefully about to start an all-oral study but I hadn't heard about any interferon-based studies.
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1722607 tn?1335747858
Can I ask why you chose to be in a study over being treated by your Dr?
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Avatar universal
We all know about waiting. Good luck to you
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Avatar universal
Good luck!!  Keep up the great progress.
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