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Avatar universal

Stay positve and all wil be fine? Get real

I'm agreat proponent of positive attitude and how strong it is in combating many of the things that life throws up for us.However that differs from standing on a rairoad track with **it eating grin saying " here comes agreat growth experience". In pure medical-babble there are no withdrawls from tx because they define it as a craving for the drug(highly unlikely). But there are many many reports of long term non-prexsting depression,nervedamage(pripheral neropaphy)lupus further liver damage auto-imune liver damage and more. Now of coure you can argue that this is nt caused by withdrawl but i believe this misses the holistic meaning of treatmeant part of wich is "what occours at the point when chemo-therapy is withdrawn. The answers are unclear and causitive explanations are inadequate. On withdrawl of treatmeant there are no clear or certain expectations to say stay positive etc is TRITE in the extreme. Tell it to those whos experences have left them debilitated and suffering mental health problems. Positivity is superb for many but by no stretch of the imagination all.
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Avatar universal
Sorry I've been away alot of this week, but so has my ENERGY!!!! Doggone it!!!! Hope all is well and I've been thinking of everyone and meaning to get here each day. I'll be back soon. So don't think I've fallen off the face of the Earth! LOL.....I want to wish everybody minimal sx and better health to all very soon!!!! I Love You People!!!!!! LOVE @ PRAYERS TO ALL, Cindee

p.s. I have been using what little energy I have to visit w/ my neighbor Betty who all knows she has cancer and not much more time on this ole' earth. Her spirit seems to be as good as possible as she plans for her sickness and.....well... the rest. Please keep her in your prayers. Thank you all again. Cindee  :)
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Avatar universal
Hi,I feel your pain as I have been left w/ tissue damage and fibromalgia. I HATED 48wks of tx. had a horrible time on it, said when I was on it, I said, "I'd never do it again." Well I do believe in "never say never". I replapsed. And I will be going to do it again! I start again in 4 to 6 months...maybe a little earlier....but I am grateful to have a second chance @ killing this virus that has tormented and still is tormenting my body and life. I will DO ALL it takes to rid myself and be healthy again. I can say hang in there...most sx do go away, but I dont think you'd believe me. LOL.....I will keep you in my prayers. Cindee
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Avatar universal
You sound like me, emotional wise, before tx'ing & cl'ing the hep c -2b-virus.  I'm not like that now at all and the only thing changed is the hep c is gone now.  Those are all signs of ammonia build up-encephalopathy.  I had no insurance, work history (housewives don't count for ss) and had already gone into liver failure due to unstoppable esophigal bleeding and advanced encephalopathy.  I got a liver expert in a big city 1/2 day away who got me in a study for ESLD (end stage liver disease).  No questions asked about past behavior or state of mind.  I had one chance and nothing to lose.  I was dying, literally.  Well, I cl'ed a 24+yr old transfused infection in 18 days.

I would try treating, then praying.  And change your diet.              
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Avatar universal
you must keep the hope alive and have a positive mental attitude
nothing is ever really difficult unless YOU make it so  .fo course there are always the bumps along life's highway. thats what makes it so great two rules to always remember : don't sweat the small things, in time will they really matter, and two; they are all small "things". if you find someone with all the answers, remind them they haven't asked all the questions .the odds are difficult with the dragon, but he has and will be beat. like lots of other diseases have and will be. it might not be easy but we could be the frontier guineau pigs so that our kids grandkids and future of this old world beats this scourge. believe in whatever GOD you believe in and be ready todance the dragon to hell.
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Avatar universal
cc2
These meds have not been used that long to be able to say what effects may be down the road but I knew that before going into tx.  I tried to learn as much as I could before tx and then I made a decision, just like everyone here had to do.  I had no withdrawal, you still feel like **** because the meds stay in your system, but each week the sides go away and you feel better and better.  I couldn't wait till the end of tx and I am so glad I did the tx and trusted in Jesus to give me the strenth to get through.  So everyone who is on tx hang in it does get better.

Indiana,
Its been awhile and I'm so happy to hear you are still negative on your year test.  My dinosaur computer raised its head last year for the last time.  Finally go a brand new one and I am up and running.  I see you still have your wit and so glad your still on the boards.  Hope your family is doing well.

God Bless
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Avatar universal
David, hi and glad you came here to talk.  You are having a rough time and my heart goes out to you.  But we've all been there at one time or another.  I agree many doctors are morons and I've had many -  so i know this can add salt to the wound. Please keep trying to find a caring doctor, they are out there!!  I found not one but two.  Contact the American Liver Foundation and you can get a referral. Expalin your story, they WILL listen and refer you. Also ask them for a support group ... getting out and talking to others can definitely be a plus. You can't just sit back and throw in the towel.  Put a smile on your face and plunge forward now matter how hard it seems.  You can do it!!!  Good luck!!
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