TY. I'll ask about it on the 5th.
Marcia
What about a fibrosure test which is non-invasive? Being a geno 3 with higher incidence of fibrosis and fatty liver than other geno's, wouldn't that be an alternative?
Trin
Thanks for your input... As said I have NOT taken any supplement for ages and I also made sure not to take any blood thinning foods (garlic, cayenne) nor supplements, nor any medications for well 3 weeks before today.
I am not taking anything at all. My platelets are fine and no problems with any of my other blood counts except the coagulation factor. My prothrombin time 2 months ago and yesterday is almost the same value... so it is not one of a kind result. They will NOT perform a biopsy on me and this was the head of the hepatology clinic, you know the big guy, who is also the head of the research of this university hospital (Denmarks no 1), who was going to perform the procedure. He said that they will not take the risk to do a biopsy, as I could bleed to death. They have had a case like that not too long ago at onther hospital.
I'm not concerned about the biopsy anymore, as I am not going to have it.
I was asking in regard to the study bandman posted and also in regard to taking extra Vit E when one has already a prothrombin time problem. Knowing that vit e has a blood thinning factor.
I will ask my doctor on the 5th. But was wondering if anyone knows more about this subject.
Marcia
Marcia
I forgot to mention, just to make sure I would not have any bleeding problems from the biopsy puncture, I took NO vitamins for a week. Maybe you could try that?
Magnum
Makes sense to me, but what does the doctor have to say about this? Are you guessing about vitamin E, or could it be something else? Make an appointment today with a dietician. Bring the lab results with you. In the US, dieticians are often recommended for trying to figure out certain health issues pertaining to reactions to supplements and/or lack of sufficient vitamins that may cause a situation such as yours.
When I had my hip replaced in 2007, a dietician was sent to my hospital room, who bombarded me with questions trying to figure out why my platelets were so low. The hospital was ready to put a pint of blood in me. Shockingly, the next day, the doctor came in and said the platelets were now back to normal. Strange...This scenario could happen to you.
I had the same test you had two weeks ago and my readings were normal, although my platelets are low, but not to where there is concern from the doctor. The doctor directly connects low platelets to Hep C. I would get tested again in a week or so after stopping vitamin E. I used to take an additional 400mg daily aside from the 400mg already in my multi-vitamins. I stopped over a year ago and don't notice any difference in how I feel. This tells me you will also probably not feel the difference. Good luck my friend...
Magnum
Back to Vitamin E.....
I just was sent home and didn't have my biopsy, because my prothrombin time is too low. I have not been taking any supplements for ages, nor any medications. I made sure not to take any blood thinning supplements nor blood thinning foods for ca 3 weeks before they took the test.
So now I'm thinking, since vitamin E is blood thinning, I would have a second reason to stay away from it... Does this make sense?
Marcia
Yes but you also need a lot more of it. The best way is to take both.
Expensive that it is.
CS
Didn't HR say that TMG would do the same thing as SAMe but is a lot cheaper?
I don't have time to look it up right now but I remember a past study that showed vitamin E to slightly enhance the interferon. I'm finding this contradiction confusing too. Anyone have a clue?
Ev
Regarding VA and BC I was talking about the study you referred us to. It doesn't make sense to me.
I would love to see the list of what she recommended for you, for comparison of what I so far decided to take. It's always good to get more input.
I'm also a bit confused about the Vit E, why do all the others recommend taking vit E, if it helps replicate VL.
Marcia
Marcia,
At this time I am being advised by an r.n. that has treated many cases of hcv.
She has also been a speaker for Pegintron.
The only vitamins that she recommends is a good multi-vitamin (w/o iron for me) and vitamin C.
Everything she has told me not to take, she has backed up with a study or studies.
ex: I was taking ginseng... thats a no no, cause ginseng can thin the blood and while you are on treatment, your platelets may decrease and along with ginseng doing its thing, that could result in a blood clotting issue.
I can give you a list of what she recommends if you wish. It really is not a lot of things and really more about eating healthy.
bandman
I feel a little duh... on this one. Vitamin A was bad, but Beta Carotine was good... I thought they both were Vit A. And I thought that we shouldn't take Vit A with HCV. So would it then be okay to take Vit A as BC, but not in any other form.... ???
This is surely getting confusing now.
Marcia
Thank you for posting this study. Highly interesting. I had just gone out and bought Vit E to start taking a few days after my biopsy and use through treatment. It is a good antioxydant, but if it really helps keep these little buggers to replicate, so maybe I should rather stay away from it. How about the others? They mention the same in regard to
A, C, E, and K.
Well, at least you'll run cheaper and you won't freeze up in the Winter...
Magnum
And the ingredient list for PPC says it contains ETHANOL
------------------------------------
I did notice that. It also contains anti-freeze.
Still take it though.
CS
watch the vitamin E.
studies have shown that vitamin E encourages hep c virus replication.
http://aac.asm.org/cgi/content/abstract/51/6/2016
I quit it as soon as I found out.
I was even taking a liver suppliment pill that contained vitamin E!
hard to totally avoid though. Just don't suppliment it. Check your multivitamin and get one with the lowest level of vitamin E.
bandman
Thanks for your update and the heads up on the NAC. It's great to hear that this third tx is going so much better for you after the brutal ones. Hoping it stays that way for you and best of all, ends with SVR. Keeping my fingers crossed for ya!
Just to be clear though, I know of at least 1 other person currently on tox with the supps who is not doing near as well with the sx. I may just be very lucky this go round.
Also, NAC should always be taken with meals, and should be avoided if you have active stomach ulcers.
I have been on the regimen since last Nov. I sure do notice a difference! I started feeling better and better as the weeks passed. Been on 3rd tox for 10 weeks now and sx this time around are almost non existant. I am just astounded how well I am tolerating this tox thus far. (The last 2 were brutal). No hair loss, no redness at injection site, no itching, much less fatigued, and mentally and emotionally sound. (1600 Riba and double dosed the peg for the first month or so!) The only explanation has got to be the supps.
"Houston, all systems functioning normally and we continue to hold orbit..."
"Copy that 13... We are working on your reentry procedures....."
I'm just the messenger. Everyone has to decide for themselves. Caveat Emptor....
Magnum
Did you notice that the labels on those products don't say they're standarized?
And the ingredient list for PPC says it contains ETHANOL.
Magnum and CockSparrow made good points in stating that this supp regimen is not to be undertaken lightly.
I started HR's anti-fibrotic regimen a month ago tomorrow, but have made a couple adjustments since then. I started out OK, then went thru a week of feeling punk. I thought it would pass, I thought it was perhaps cos it was working (hard), but I then took a breather from all but my prior supps. I then added them back one at a time, at half dosage for me, to give my body a chance to adapt to them more slowly.
I seem to be tolerating them well at this point and doing good...even (fingers crossed) have days when I pause and realize that I haven't felt this good in ages. Now and again, I look into the mirror and notice that the whites of my eyes are..well, white...and sparkling!
A piece of advice I received is that the NAC, TMG, Taurine and Vit. C should be taken on an empty stomach for best absorption. Has anyone else heard this? The rest are best taken with a meal. I have NOT added the SAM-e yet as the health food store owner said that I'd be throwing my money away as it is poorly absorbed thru supps. ?? Yet I read it has many benefits for liver disorders, especially for itching from bile buildup...and the itching I do have from time to time. I have to think on that one a bit more.......
How are the rest of you that are on these supps feeling physically. Do you notice any difference?
wen i qwuit the larg hand full off pills and vitamins down to the least amount to work, working with a docter to double check,,, I realy felt better and stronger I work hard to keap it simple on my body And brake it up threw the day my mix works for me pritty well 3-tbs whey proetean +1-tbs flax +1-tbs lesathin +2-tbs neutritanal yeast + 2-tbs weat germ + 3/4-ts bee polan+royal jelly 1-tbs vitaminaral green good stuff .... pills fish oil calciom citrate with d,k,magnesium and zink and generic sentram silver my mel score was 19 now its 9 most important exersize to get oxagen into blood !!!!!! hepc 1b stage 4 this is not a cure its old jack lalain style living?