victrelis triple

[girlly166]

ok got some more information, the treatment my doctor says he wants me to start is the VICTRELIS TRIPLE, consist of interferon, ribravarin, victrelis. for 48 weeks, so I asked if I had the money for newer treatment what would he give me he says with type 1a I would get Sovaldi, interferon, rabriarin thats if I had the money to pay for Sovaldi. Ok now im more confused. Called the Canadian Liver foundation for some advice, they said the same as every1 why would the doctor put me on an older 1 with depression, and also my home life situation caring for a daughter with paranoid schizophrenia, and a custody of a 2 yr old grand daughter. so the liver foundation gave me the number to call who makes sovaldi. I am more confused. If I wait to see if the canadian gov. will cover me on disability for sovaldi I can risk making things worse with the mild cirrhosis, I just want to live is all i want but there making feel like i don't matter because i have no money. I don't no how i contacted hep c, i am not a drinker. Is there any compassion from these drug companies? What should I do I am lost more than ever. O ya the risk of liver failure and decomp. from interferon they say is only for people with full blown cirrhosis. And the nurse says im just making myself paranoid and should listen to others. Well I am going to listen to people that have been through it, not someone that hasn't been through it. makes sense. OMG help  

[patra_]

g:  Sorry that program is just for US.  I did not know that -- and thanks to can-do for the info.  I learn all the time on this Forum.

I truly believe, however, that there must be something THEY know about, if the said they would follow up w/ your Dr & Nurse.

I agree, if, after that office speaks w/Gilead, the Dr does not become more with it, you should seek a new Dr - preferably @a teaching hospital.  They have so much more knowledge and resources.

Do, give up, hang in there -  or my fav:  keep on keeping on!!  Pat

[girlly166]

Hi patra I called the Gilead, she said they started a file for me and now will contact my doctor and nurse. not sure what happens now. She said the doctor can get started to look into programs for me, she said doctors already no about this, but it seems like my doctor is not listening to me, I might just change if he doesn't help me, all he talks about when I ask about newer treatments is its to much money. He has no compassion what so ever.

[patra_]

g:  Try 1-855-7MYPATH.  That is the one listed for Support Path.  I helieve the main number is 1-855- GILEAD5.

But try the 1-855-7MYPATH as I believe that goes dierctly into Support Path.  If you need other Depts, they will direct you.

Good Luck!!  Keep on keeping on!  Pat

[girlly166]

Hi I am so sorry I just looked at my paper work about the drug company sovaldi-gilead, so much info to take in and im just starting out on this fight. I am going to call today I just get scared that there is nothing they could do so want to have some good reasons for them to maybe help me.

[girlly166]

What is the Gilead number I don't remember seeing it.

[girlly166]

yes im f3,  I am sorry but what is the Gilead.? I don't remember this

[sue4hula]

If you can, keep pursuing the Sovaldi based treatment!  I just completed the Sovaldi/RIBA/ Interferon treatment for 12 weeks.  Undetected from week four and 1week post treatment.  This means I won't know if it worked until The end of October.  

I treated with Victrelis/RIBA/Interferon in 2012.  I was scheduled to go 48 weeks, but didn't reach undetected by week 24.  This meant I was taken off treatment.

I became anemic on both treatments, but not as bad on the Sovaldi combo.  With the Victrelis combo, I had to reduce the Ribavirin and use the 'rescue' drug, Procrit after week 8 through week 24.   For me, the Victrelis treatment was much more difficult and involved a very strict pill taking schedule and LOTS of pills.  The Sovaldi treatment, though no picnic at times, was much more tolerable.

I think you're taking some good steps and asking some good questions.  Hopefully Gilead can give you some good direction and hopefully help you out.

Stay in touch and know we are here to support you and each other.

[Idyllic]

What exactly is your stage of  fibrosis'?
Is mild cirrhosis F3? I do not know and I hesitate to guess.

Do you have to treat right away?


Why 48 weeks of treatment? Are you treatment naive?


The thing about Victrelis is not only the possible treatment duration it is the potential for pretty AWFUL side effects meaning anaemia for starters. I can't state the % of people who get it but it seems like most just from anecdotal recall.

I know Canada is different but I strongly encourage you to learn what you can about the system so you can treat with the newer less harsh drugs.

[patra_]

G:  Have you called the Gilead number they gave you?

If so, what did THEY say about med help in Canada?

If not, first call them and ask for the Sypport Path section.

There is an answer.  Good Luck.  P