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Avatar universal

Wrong Dosage???

Has anyone here "EVER" been put on the Wrong Dosage? If So, Now How is that going to effect my outcome, & is it to late to correct this? I am about to have my first Real "Riba-Rage" over this as I feel sure it was my "Nurse Hatchet" That screwed up & gave me the wrong "Pre-Printed" Prescription. I am totally pissed. I am a combo strain of 1a, & 1b, & since I gained that 20 lbs while sitting on my pity pot before TX I should have been on the Max dosage of 1200mg of the Copagus, even now that I have lost that 17 lbs, I should still be on at least 1000mg, & I have been on freakin 800 since I started! (which is for people that are on 24 week treatment for genotypes 2 & 3's)!!! I talked to the Nurses @ Pegasys Hot Line... & they are stumped & concerned, as to why, & how this could have happened... I guess it is an easy oversight, as I have even posted my dosage & med cost in here several times, & nobody picked up on it either. So now my question is... What now??? Increase my dosage & extend my TX for 6 more weeks on the tail end of this? I feel vulnerable & sabotaged!!! Furthermore, I am Soooo Pissed! That's the one BIG thing you don't do is mess with peoples meds, Y'all see how upset folks get when they have to reduce you meds, now imagine how it feels to find that you have been on reduced meds all along (Which Reduces My SVR Rate from 48% down to 41%)Gezz... with my genotype (Especially my combo strain) I need every % I can get! Being us combo strains are so "rare", there just isn't that much data on our success rates as it is! Ahhhh!!!
Vicki
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Avatar universal
With this low ribavirin, what was the result of your therapy?
Did you have any pcr yet? Good luck.
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Avatar universal
What a screw up?  I mean really...the nurse/dr can't get the meds straight for weight?  haha I got your back covered too...Go down and shoot em!  heh   How do they like that for riba rage??  ok..i am 130 lbs and on 1000  and my hubby is 180 and on 1200.  I never remember you saying you were on 800 or if you did...I might not have even thought anything about it because I would be thinking you were just a tiny thing.  I'm thinking you could now start 2 in morn and 3 at night.  Yeppers...I'm finding as I go through this mess that I and only I have to be on top of everything because the dr isn't at all times.  I mean...its our lives we are talking about here and we want to do this tx only once...not 2 or 3 times because of screw ups!  Sorry,,you are having to deal with this now.
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Avatar universal
hahahahaha Outraged lady shows up drs office in pjs demanding meds with a gun!  And then proceeds to lounge area for a few good reads while waiting LOL
Helpful - 0
Avatar universal
My understanding,from everything that I have read, about Ribavirin doseage is that weight does not come into it at all.
All genotype 2/3 should be on 800 mg and all genotype 1 should be on 1200 mg.
I would get your doseage put up asap.
Best wishes
Joanna
Helpful - 0
Avatar universal
Same thing happened nurse circled the wrong doseage  .4  should have been   .5  and the script was wrong ,I don't know a red flag went up ,I phoned the druggist and did the math over the phone with her ,she phoned my Dr. and got it all straightened out.People make mistakes...that's how I ended up here in the first place,made some bad choices,cicled the wrong answer if you will.It was a test and I failed,but I'm going to pass with flying colours this time.
Helpful - 0
Avatar universal
In my opinion, the dosage of Ribavirin isn't a factor in the first 8-12 weeks into tx. Why? Because it's Interferon(Pegasys) that kills the virus, NOT the Riba! We need Riba to stay clear and not to relapse. Besides, Riba accumulates in the body over time, usually it's 6-8 weeks period.
If your Hgb is still in the normal range, talk to your Dr/Nurse about increasing Riba dosage. You are doing just fine!
Helpful - 0

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