Wrong Dosage???

[befuddledbedarned]

Has anyone here "EVER" been put on the Wrong Dosage? If So, Now How is that going to effect my outcome, & is it to late to correct this? I am about to have my first Real "Riba-Rage" over this as I feel sure it was my "Nurse Hatchet" That screwed up & gave me the wrong "Pre-Printed" Prescription. I am totally pissed. I am a combo strain of 1a, & 1b, & since I gained that 20 lbs while sitting on my pity pot before TX I should have been on the Max dosage of 1200mg of the Copagus, even now that I have lost that 17 lbs, I should still be on at least 1000mg, & I have been on freakin 800 since I started! (which is for people that are on 24 week treatment for genotypes 2 & 3's)!!! I talked to the Nurses @ Pegasys Hot Line... & they are stumped & concerned, as to why, & how this could have happened... I guess it is an easy oversight, as I have even posted my dosage & med cost in here several times, & nobody picked up on it either. So now my question is... What now??? Increase my dosage & extend my TX for 6 more weeks on the tail end of this? I feel vulnerable & sabotaged!!! Furthermore, I am Soooo Pissed! That's the one BIG thing you don't do is mess with peoples meds, Y'all see how upset folks get when they have to reduce you meds, now imagine how it feels to find that you have been on reduced meds all along (Which Reduces My SVR Rate from 48% down to 41%)Gezz... with my genotype (Especially my combo strain) I need every % I can get! Being us combo strains are so "rare", there just isn't that much data on our success rates as it is! Ahhhh!!!
Vicki

[honey1616]

You are on the right amount for your weight.  According to my dr even though I am a 1 also...its still judged by weight.  I did read that someone said for 1's...it should be 1200 no matter weight but I have not heard that one so not sure.

[Fubarcat]

I bet you are right about the doc not even knowing.  I'm 108 pounds and am on 800 mg riba daily.  I'm 1b, Stage III.  When I went in to see my doc for "patient education" after having the meds delivered and before taking them, he grabbed my bottle of Peg and my bottle of Riba and started doing some mathematical calculations and figured that was the right dosage for my weight.  So, I know it is definitely weight based.  However, if your pharmacy is freaking, then maybe they are the ones that actually gave you a lower dosage.  Can you get a copy of the original Rx that you were given to see if it was written incorrectly?  Actually, the bottom line is "How is this going to affect your treatment in the long run?" and only your doc can answer that question.  Hopefully he/she will call you soon and put all your fears to rest!  Think good thoughts!

[honey1616]

Amazing...I can't believe you are saying that I am strong.  I guess I'm thinking about when I first found this board a couple of months ago and felt like my whole life was shattered in one instance. I read and read so many postings way up to the wee hours of night and then you start getting this mental picture of each and everyone that is here and this enters your daily life because NOW this is your life.  And of course all your postings..I have read and just can't believe that there is a woman out there battling one thing and slaying another etc.. And never a complaint, never a rant or even better yet RIBA RAGE.  Just keeps hanging in there and being so encouraging to everyone!  I think of Indiana...haha someone said Pied Piper and thats perfect and I could go down the line as I have told my hubby so many times and he knows each and everyone of you...Dallasstar well she has to be an angel that was sent to this board!  My heart goes out to you but I don't know why because you seem to be handling it all so well.  Awwww...Galveston on the beach haha  I will be thinking of you lady!  I'm only about 45 miles away and maybe going to use a little of those sun rays myself this year for these cold bones from tx!!

[tina b]

Hi all, I have a dosage question. My husband was on peg-intron and reba 1200 mg for 6 months last year, Geno 3a he relapsed 6 months after tx due to high iron,it has been a while and I will give him his first shot this Friday, my questions is (he is doing the mix peg stuff) Draw the liquid to 7 in the first needle, insert that into the dry bottle and stir gently and draw to 5 on the fresh needle for the shot? Does that question make any sense? Thanks!

[willing]

sorry about the unnecessary aggravation. Here's Roche's <a href="http://www.pegasys.com/hcp/dosing.asp">dosing recommendations</a> for riba. Only 1s are weight based, for 2s and 3s the recommended dosage is a one-size-fits-all 800. For 1s, the 75kg(165lb) threshold for 1000 vs 1200 is pretty crude. A more sensitive way to look at dose is mg/kg or mg/lb. The optimal number   seems to be at least <a href="http://www.hivandhepatitis.com/2003icr/03_assld/docs/pegasys/102703_g.html">13.75 mg/kg</a> or 6.25 mg/lb. So if you're at 167 you should be doing 1000. Rather than get frustrated with your nurse, dr. etc. I'd suggest simply increasing your dose. That's what I ended up doing after trying to persuade my Dr. his rx was too low. Make sure you keep an eye on your CBCs though - a higher dose definitely does more damage.

[jg2001]

I love the "taking up the whole couch reading a magazine" idea!Use your cell phone and order lunch delivery!  What a terrific amount of response and support this site offers.  Now I've learned something new, again, today...keep my eyes open to what's going on and ask questions.  I go next week for results and to schedule the bx.  YIKES!  All I can imagine during the biopsy is them ripping my liver out through a tiny little hole in my back!  Now that sounds like FUN!!!