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Avatar universal

can u post your stories

your stories are valuable and your tx experiences are valuable, I have given my input into the medhelp forum and i would appreciate the same into the http://hepcaustralia.thruhere.net site, which is another one for all you to tell your stories, please go there and share as i have done here and help with the fight to hep c for all our countries.
We are all heppers and where we come from doesnt matter, we need to get together as a whole.  We need each others support, no matter what.
Come on, HIV got there, why cant we, and by co-joining our countries in this fight maybe we can get somewhere, give it a shot, we got nothing to lose and a whole lot to gain.
We need to unite.

Will you help, cos im gonna give it everything i got.

Linda
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131817 tn?1209529311
Extending Cobra? That would be wonderful! They have paid for all my meds, including that $3500. Neulasta shot every few weeks. Please do let me know about this!

I am a bit down. Had a busy weekend, but the sx make life so difficult. I posted a long bit in Dale-Ray's thread below.

I am asking the GI about an ERCP and Cat Scan because my Alk. Photease labs seem to indicate   to me). I'll let you know what he says!  

Sorry to hear you got slammed. My shots don't seem to hit me until several days later.

I canceled my Hemo appt. cuz' I didn't want those horrid shots, so I took the labs last week-not low enough for them yet, YEAH! So maybe I will have a good week. Eating those shark liver oil pills up!
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92903 tn?1309904711
As I understand it, California law extends COBRA another 18 mos cor companies doing biz in CA, BUT, if it's a nationwide company, they aren't required to conform to CA law, even if they are headquartered in CA. Check my facts, but that's my understanding....
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Avatar universal
yeah, sorry bout that, i been trying to get into the forum too, but please give it a few more hours please, we are trying to make it better for all us heppers, and thankyou for trying.

Grandoak
I havent finished yet, soon i am going to go to magazines, tv, media, and tell it as it is, i gotta wait till the court stuff is over with, thats what is holding me back.

I am going public with this, whatever i have to do, im going to do it, i dont care about repurcussions, we have to make a stand, and thats just what we have to do.

Help me in doing this, please.  We can make a difference, never mind this country to country cra**p, as a nation, we all have to stick together.

Lets just bloody do it.

Helpful - 0
Avatar universal
Thanks you guys. It costs us now 800 a month for Cobra ad the first 18 months runs out in Feb. ( and I get my drugs from Commitment to Care because the copay was so high on the meds) so it sounds like that will continue.
They have picked up all the other costs so far, I have always wondered if Commitment to Care goes after them for some med costs, they do ask for your ins. info.when you apply. If not so far BC/BS has gotten off without paying for my meds and I supposedly have this great policy. Heh.
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Avatar universal
"That strikes me as either disingenuous or absentminded. Mike"

It's comments like these that are direct assaults on a person's character that are ruining this forum.
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Avatar universal
I agree 100% with the world unification and think we should be enlightening as much of the public as possible.  This includes politicians, churches, relief/aid ogranizations, etc.

HCV does not care about gender, race, nationality, religion, etc.

The real tragedy is those infected with varients for which a vaccination exists (i.e. HBV in SE Asian countries) that are not able to get protected because of costs.

I would think that since 50% of the HIV/AIDS deaths are co-infected with HCV (which makes me wonder what the real cause of death is for those folks) and is less curable in those of African descent might make this a cause which many of the afore organizations might readily embrace because of their current campaigns and involvement with HIV/AIDS awareness and/or treatment, particularily in the African nations which seem to have been hit the hardest by HIV/AIDS.

Many procrastinate thinking nothing can be done or that it's not worth the effort.  But I can tell you that when the Christians United For Israel (CUFI) group met last month in Washington DC and put several hundred constituents in each Representative's and Senator's office, it got attention.  So much so that I wonder if it also has not had an impact in how the USA has responded recently to the crisis in Lebanon, which seems to have been a shift to the responses made in the recent past.

We too could have the same impact, not only here but around the world, if Heppers in the major economic countries of the world started stepping forward raising their voices and enlisting the voices of other more notable people who would draw press coverage as well.
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