What should I do?

[Halomommy]

To all who responded to my issues...Thank you and after reading what you had to say, it made me see things through another aspect. I didn't realize so many benefited from tx.  So.....supposing my hep c is back, what do you think I should do?  My immune system is already compromised with the Myasthenia Gravis, would you do another round of tx.? I don't know what I should do? God knows I do want to stay on this earth as long as I can.  I have a beautiful family and wonderful husband. I can't imagine what they would go through nor do I want to. I'm so young.

Such a huge decision to make, I need to talk sometimes about these things but, can't really say what's on my mind with my family. They hurt so much already because they feel helpless.

Sometimes I'm so overwhelmed with it all I can't think straight. Maybe this site will help educate me and help me to see other outcomes so I may make an educated and good decision.

Anyway, thank you

[H20Lover]

Thanks for the info Halo, and I will keep my fingers crossed that you are wrong.  

Please keep everyone updated and we will be here for you!

Pam

[Halomommy]

I think I'm relapsed because of the way I'm feeling again....definitly the same way as when I was first diagnosed and my hair is falling out again...not to mention the skin issues. My skin was very red and purple when I was positive and it seems to be again. I hope I'm worrying for nothing. Guess I'll know as soon as I see my Dr. and ask for a new test.
Thanks for your encouragment Pam

[Halomommy]

I started treatment in Vegas and our Dr.'s here come to find out were the ones giving us hep C..my geno type is 1....I was on Interferon Pegasus. I shot per week and 6 pills per day.  When l switched Dr.'s and started going to Mayo Clinic they recommended at my 6 month marker that I continue treatment for another 12 months and of course raise the dosage due to my size and weight. I was 180 lbs. at that time. But, at 6 months I was undetected. My white count became a huge problem,...and we couldn't get it up even with bone marrow shots. I was so weak I could barely get out of bed anymore and decided to give it a break for awhile and of course I never went back on it. But, I think it's back because of the way I'm feeling again.  I hope I'm wrong and i'm worrying for nothing but, my hair is starting to fall out again and that's what brought me to my original diagnosis.

As for the MG.....I've been to several Nuero's at Mayo and now I'm going to a Nuero/Opthamal I've been through extensive testing, including 10 days in stay at Mayo. As far as what they did? Wow, there's so much i don't even know all the names of the tests.  

[FlGuy]

You mentioned that you treated for 6 months and that you were under-dosed.  What is your geno type?  Which meds (how much) did you take?  You said you were undetected, was that during treatment or after it ended?  What medical tests did they do to dignose MG?

[H20Lover]

Hello there....I read your other post and I do understand your position on treatment.  I was a lucky one that did not have too many problems and I am glad I did it.  I started knowing what it could do to me but I wanted so badly to get rid of it that I thought the risk was worth it.  I have a good doctor too that I trust so that helped.

I am curious though about why you think you have relapsed.  I thought that was something only a blood test could reveal.  You stated you did not take the full doses.  Was that because of the sides?  Do you feel you have relapsed because of that.

I know that feeling of helplessness as well and these folks here help a lot.  I chose not to tell my family (other than my hubby) because therr was really nothing they could do but worry.  They never even knew while I was on treatment and I see them all (4 grown with grandchilrdren, inlaws, friends etc) nearly every week.  We all live in the same town.

Good luck and stay tuned here on the forum!!!!

Thanks,
Pam