hep c non responder

[angelbabies55]

I am on week 43 and on the victrellis, pegasy and the rib.  First my doctor cut me back from 5 to 3 ribavirin about 4 months ago due to low white count.  I do nuepogen shots almost once a week since then.  Is that ok to stay at 3 this long?  My other question is I am having trouble getting my last refill of vitrellis due to insurance and I am so sick of all of this I am ready to throw in the towel and quite after one more week of the meds. (when they run out).  I know you pushed me from 36 weeks to the 48 week mark but again what is the stats on stopping earlier than 48? like week 44.  Also i have spider veins popping up all over my legs.  Is this the meds or the low red count or low platelets  I have been very lucky with my red count and been good until this last lab I did and it has dropped to 10.3 on hemo and all the other numbers have dropped as well.  I also have low platelets too that may be causing these veins. What do u think?

[1swimmer]

I found the victrellis phone # still in my contact list.
800-444-2080
If you listen to the prompt it eventually says patient assistance.
Hopefully everything gets straightened out and you won't need this number.
C

[Dee1956]

Do you have a help number at Victrellis?  I had to go to Vertex and then to Aetna customer service to get help.
Sorry, just trying to think of anything that would help you.

[Dee1956]

Hang in there sweetie it will all work out and you will get your med.
I know how frustrating it can be, I had the same experience with Aetna halfway through tx it was discovered they had only authorized me for 12 weeks.  It was awful trying to get my Pegintron.
The nurse had to call the insurance company to get the authorization, then the scrip has to be sent to them for approval, then it goes to Special Pharmacy to be filled and mailed.

It is the most convoluted system I have seen.  At one point, on a Friday I was waiting for 7 phone calls to get my meds by Monday.  I was so sick I could barely speak through the tears.What a nightmare.  it will work out!
They can over night the meds to you
All my best
Dee

Hang in there.

[1swimmer]

FRustration with the logistics of triple= huge pain. Keep breathing. And then, do make a call directly to the drug company and beg. Perhaps they can contact your doctor and make this happen. Or perhaps they will deliver some meds now. There are hotlines; "help" hotlines and you can use some help.

If it was my life on the line, I would go down fighting. You are probably not feeling well, but I encourage you to battle.

Good luck,
C

[garrygee]

Hang in there.  I'm in week 38 and right behind you.  It does seem like it has gotten harder to get through this past month.  I just take the meds a day at a time now.  I don't ever want to do this again.  I'll just do whatever it takes until it's over.  I'm rooting for you.  Garry

[BoceprevirGal]

  I am so so sorry about all the stress you are going thru right now~
I did a 28 wk Tx with the Victrelis, and did clear the virus.
   I am wondering at what week you did your viral load  become Undetectable?
As others have said, you cant miss a dose of Victrelis, becuz it may make you resistant to Victrelis. The good news is that you have taken it for all these weeks, that is amazing, you are extremely strong and brave, to stay on these meds for 44 wks!
   I will be praying for you, and visualizing everything working out and
falling into place for you, so stay strong  ~~  Katy