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1462910 tn?1285980010

im a pre-transplant liver patient with hep c and had an endoscopy

what does severe portal hypertensive gastropathy mean?
22 Responses
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Avatar universal
I have to agree with Trin...Eureka you are loved
and you really know what the heck you're talking about.

I will not let anyone disgrace you in this manner either.
You were by my side, and I'm by your side

Love you
Helpful - 0
475300 tn?1312423126
This is a HCV forum not a HBV forum.

Ohhh noooo not Berkson again!!!  

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Avatar universal
Ones words often reveal a glimpse of ones character. I wish you and her well.

We are now so far off topic, so unproductive. No debate over evedence with supported facts. Just emotional reactions now.

I wish you a speady recovery and good luck with protease inhibitors. I know far too well about those.

Shells

Helpful - 0
Avatar universal
'Resorting to such tactics says a lot about who you are"

Trust me, you don't want to go there.  We, as in the members of the HCV forum have a great deal of history with this fine woman.  We know who she is, we know the devotion, fortitude and unselfish effort she has put forth if fighting the battle to preserve the health of her husband and under no circumstances will I allow you to make judgement upon her.   You want say something about character, then fire away at me, but you leave her out of it.

Once again, you know not what you speak of.

Trinity

  

Helpful - 0
Avatar universal
As I mentioned I will continue post here to defend myself.

Lets end the arguing, we don’t agree. Some may want to read the data I presented and make their own opinion. That is what this forum is for.

In spite of your harsh replies I wish you the best as well.
Good night,

Shell




Helpful - 0
Avatar universal
If you're saying no one here has ever heard of the benefits of selenium that's not true.
I have HCV not HBV and I have seen one of the top specialist in the country who attends the big liver conferences all over the world.  I asked about selenium and his answer was it can't hurt.  No mention of any outstanding results in slowing down fibrosis. Additionally, you are NOT infected with HCV and you can't begin to know as much as those of us who have HCV and have been fighting this disease for a very long time.  Viral load has no bearing on how quickly fibrosis advances and that came from Dr. Brian Pealman.
How your fibrosis advances with HBV I haven't a clue nor would I begin to make testimony about a supplement that could impact on YOUR disease.  We have hepatitis in common, but  what bearing the viral load has on the advancement of liver disease is very different because from what I gather from you viral has everything to do with fibrosis progression in HBV.  I reiterate once again, THAT IS NOT THE CASE WITH HCV AND DOES NOT APPLY.

I don't know what your fascination is with HCV forum and you must feel really under appreciated here.  Perhaps directing your efforts toward the HBV would be more gratifying so go ye forth and do great things; for the HBV forum that is.

I'm sorry about your family, I wish good health to you all.

Don't worry about me, I'll beat HCV.  We have a thing call the protease inhibitors coming out next year.  Ever heard of those?

If you'll excuse me now, I have to go watch a pig fly,

Trinity
Helpful - 0
419309 tn?1326503291
I do not know your 1st hand experience, and you do not know mine, nor anyone else's here I would guess. You can be as defensive or as offensive as you like, but words are just words we use to make a point -- but, if you want to get tactical about it, feel free, it's all yours.

And yes, this is serious stuff, not high school, so no one should be making medical decisions based on research done via Google -- not any basis for good sound scientific research, but that's just me.  Nothing personal.  Best wishes to you. ~someone special
Helpful - 0
Avatar universal
Hey....Eureka !!!!!!!!!!!!!!!!!!!!!!

LOL when pigs fly LOL
Helpful - 0
Avatar universal


I guess you are right. What it comes down to, its your liver not mine. I will not die like my grandfather or his father from this or have to go through Interferon like my Aunt or take 8 years to rid this like my other aunt. My whole family has HBV.  It doesn’t seem right to sit on my success in reducing viral load 97% in 2 months with methods and data proven for HBV and HCV. You can undermine viral load all day long, it is substantial. The results ,by the way, will be posted as an image in the next week for as proof for those interested.

Maybe some one in the future will come along and see my posts, research from themselves and with their doctor and make just that little bit more of a difference towards a healthier liver.

I guess you are right. All I can do is get the message out there. But I will continue to defend my post and myself and remind all that I am of no matter in all of this, its the data no one here had even heard of here regarding the selenium and its roll in protecting the liver, depleted VD levels with liver disease, as it was called “silly” and “worry some”, with out even rereading the facts presented along with it.









Helpful - 0
419309 tn?1326503291
Portal hypertension means you have increased blood pressure from the liver usually caused by the hardening of liver tissue, and that in turn is causing other GI concerns.  As Magnum points out, it's important to get more information from your doctor, and discuss options for relieving portal hypertension.  My husband takes nadolol, and it has seemed to help keep his portal hypertension under control.  Best of luck to you.

shellywinters:
There is a world of difference between published data and reliable data.  Perhaps you didn't notice that the 'published' items you reference were printed NOT by not medical publishers, but by private publishers, like those who print self-help books and fiction.  Any publication can call itself a "Journal" (hey, search for "Journal" on MH, and see how many you find!...  all reliable data, right?)... but only a small percentage of publications are scientifically reliable, research-based, and/or peer-reviewed medical literature that can be appropriate referenced. What you claim to know and present to us are the result your investigation... via Google?!?  Perhaps if you find one day you have cirrhosis and portal hypertension, you can feel confident and happy using ALA all you want knowing you've done the research.  

Everyone:
Hey, ever Google flying pigs?  Amazing stuff!!
Helpful - 0
Avatar universal
Search the archives of this forum if you want to see how well (or not)  Berkson  has been received.  This ain't our first rodeo and won't be our last.

Some embrace the Berkson protocol, others will tell you take a long walk off a short pier.

Regardless, just because Berkson and his gang says it's so doesn't make it so.

You can push whatever supplement you want and tell us we're closed minded fools, it just doesn't matter.  Been there, don that.  The supplements or protocols you tout are not for everyone and never will be so why cram it down people's throat?  You got your message out there, so let it be unless you just like provoking discussion which has been discussed a hundred times before and really to no avail.   If that's the case adios, I don't want anything to do with it or you.

Trinity





Helpful - 0
Avatar universal
You don't understand, I've had my eyes wide open
for a very long time.  My beliefs are validated
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Avatar universal
If Berkson et al has worked for you fine.
I think I've read that same article 1000 times.

You're clearly working for Berkson
that is my final observation.

Done with the HBV forum and now you come here.
with this BS



Helpful - 0
Avatar universal
Berkson, B.M. "A Conservative Triple Antioxidant Approach to the Treatment of Hepatitis C," Medizinische Klinik (The Official German Journal of Internal Medicine), 94, (Supplement III): 84-89, 1999.

http://findarticles.com/p/articles/mi_m0FKA/is_7_62/ai_65091554/

I am not qualified to argue the validitay of this article with the published data from doctors any more than you are qualified to say its just a money making supliment that doesnt work or that "there are NO other treatment Options"
Helpful - 0
179856 tn?1333547362
Please don't waste your time as been proven here time and time and yet time again this is a supplement that is being pushed for money and has NO proof to stand on as doing anything except empty wallets as it is very expensive per month for this 'plan'.

The folks who have actually lived with this condition know what they are talking about and are NOT pushing any one specific thing that could make them any money.  That is all the proof that you need.
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Avatar universal
Are you for real?
Of course we are sure !
Have you been through liver failure?
Portal Hypertension? listed for a TP?
Advanced cirrhosis?
I know what I know for a reason.
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Avatar universal
I hope you are all sure. I'll look for the medical published data that I came across and post it.
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Avatar universal
Magnum is correct they should be giving you Propanolol to
help control bleeding, (in the event).  Strange they didn't discuss this with you, my son was taking it way before he was listed.  
Good luck to you

Shelly,
I'm sorry to inform you however, ALA  IS NOT GOING TO
PREVENT FURTHER BLEEDING CAUSED BY CIRRHOSIS.
NOR IS IT GOING TO PREVENT THE NEED FOR A LIVER TP.

Helpful - 0
Avatar universal
Nice of you to drop by and promote ALA.  We already know about, nothing new around here.  ALA is not something you recommend to a person who is pre-transplant due to cirrhosis in order to prevent the transplant.  You may want to read up cirrhosis.

Trinity
Helpful - 0
Avatar universal
I have read good things about Alph Lipoic Acid and the reduction of the need for implants when using it. Google Alpha Lipoic acid and Liver and see what comes up
Helpful - 0
29837 tn?1414534648
The drug Propranolol is what you should discuss with your doctor as a possible arrester of any bleeding, if there is bleeding. I don't understand why your doctor hasn't explained all this to you. Get a second opinion. I usually get a third just to be sure. Best of luck and stop smoking...

Magnum
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29837 tn?1414534648
Portal hypertensive gastropathy (PHG) is part of a complex syndrome which occurs as a complication of chronic liver disease and portal hypertension (PHTN). At endoscopy, the gastric mucosa shows that mosaic-like pattern and red marks, which are the source of gastric bleeding. Only the severe form of gastropathy is liable to bleed. The pathogenesis of PHG and the hemodynamic changes in PHTN are not completely understood, but chronic increase in portal pressure is a prerequisite for the development of this disorder. It has been suggested that an overproduction of endogenous vasodilators and a reduced vascular sensitivity to endogenous vasoconstrictors contribute to these circulatory disturbances. H2 receptor antagonists and sucralfate are ineffective in the management of bleeding PHG. Two small studies reported that propranolol is effective in arresting mucosal hemorrhage from severe PHG. Other feasible alternatives include transjugular intrahepatic portal-systemic shunt (TIPS) and portal-systemic shunt procedure.

Magnum
Helpful - 0
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