lanier

[lanier]

Maybe I was a little depressive with my first question, Please anyone have any opinions about the first ever blog I have opened up too.  It is so difficult to try and figure this whole chronic hcv thing out, it's like my symptoms surfaced out of the blue 2 years ago and down hill from there....  ant advice or information will be greatly appreciated.  My gastro is a blank slate and seems offended when I ask questions.  Thank you so much
lanier

[lanier]

Thank you for your kind words.  My last gastro was in pem-pines Dr catherine Kosche.  had a time with her.  she could not explain what standard was used for my liver biopsy and although I "assumed" it was metivar I do not like to assume anything anymore health wise.  I had my biobsy at memorial west...so HEY NEIGHBOR.  I am going to doctor in hoolywood today a nurse who is also an attorney and also a friend who callsw me back when I ask questions!!!  recommended this one, we have allot in common, so I hope its a start.  But I'm feeling my oates today BIGTIME.  I DO NOT WANT TO GO ANYWHERE.  I read all my information and say I feel like a "bumbling fool".  I think I have other things going on and now I feel so stupid I did not catch on sooner.  I will kkep the Cleveland clinic on the list and give them a call after todays meeting if it does not go well.  I am in a mood to cry and ask questions and that can **** many healthcare professionals off, especially doctors so who knows.  Hey I like your log in I saw the CIR at the mirage in vegas way back in the day when they started, now we have them everywhere.  I am so jelous and proud at the same time of what those atheletes can do with their bodies...lol
Thanks for the kind words again.

[CockSparrow]

Wish it would rain here, we got a bit of drought happening down here.
All i can say is focus on the things you can do something about. See your new Docs and be the patient from h=ll. I tend to see Doctors as my medical advisors. Use their knowledge and experience and then make my own mind up.

I go back to my GI in Oct to see if I get to keep my gall bladder. I wont be just taking his word it that it needs to come out as i like it where it is. But i'll worry about that if and when thats what he suggests. I want to talk him in to teating HCV again anyway.

You just gotta keep fighten, thats all we can do.
Hope everything works out for ya.

All the Best
CS

[CIRQDUSOLIEL]

I too live in Ft. Lauderdale, and would recommend seeing Dr's at the Cleveland Clinic in Weston, FL.  It has been my experience with them as being abundantly compassionate and knowledgeable.  I can't remember who is the Departmental Head, but just ask them to connect you to the hepatology dept or the infectious disease dept. or the it could be called the Internal medicine Dept, and then ask them who is over that Dept.  Or you can call and make an appt. with Dr. Eugene Schiff and his team at the University of Miami.  They are one of the nation's leading in this field and you would be in great hands.  There's also someone else that I can't remember in Pembroke Pines who is really great that is a hepatologist.  You might want to start a thread here and on the community side asking for referrals for Dr's in or close to your/our area.  I have two dogs myself...chihuahua's who, trust me, had it not been for them in my life...I can't imagine where I'd be right now!  Thank Heavenly Father for them!!!!!!  Until then take care and let me know if I can help you out with any other info., OK?

Yours in Christ,
Rick

[lanier]

It's a good day to go to the doctor, for if I did not have 2 dogs and 2 cats I think I might not get up again.  Rain here it is About time.  MY INR is 0.9 I do not even know how I walk around.  I guess HCV is not the only health issue on my plate.  All the abnormalities in my blood work are related to Platelets (RBC's) and my latest results show my platelets up some, which is great, but the size and h20 content are a mess.  It's a drudgery trying to figure this out.  All the people treating on this blog KEEP GOING, never misunderstand that if you read somene is having results that you might have the same, it's really that that person may have more than just this virus.  I also see I have a cyst on one of my ovaries, something to look forward too.  the greyness in my life is NOT for any of HCV clients who are treating to think might happen to them, for we all start out with different gentic "stuff" and that along with the toxins of life get where we are today.  
Lani

[lanier]

Your very kind all thoughts with my MOM in them are positives, it is a matter of cutting corners as well as ignorance.  these people do not pass these organisms on with mailice, I never sued the hospital could have racked up some cash for my mothers death.  I understand it happens from my side, it seems to be the lack of real concept and the total shortage of the CNA, MA and other healthcare people who are forced to do hardest parts or healthcare, the hands on parts and have a long list of clients to get through in a short amount of time.  It is an abomination.  Do not get me wrong there are plenty of doctors and nurses and pa's who care and jump in to help and make sure things like iv sites and cath's are cared for, but in a hospital setting all bets are off, in my opinion.  and a SNF is worse, these facilities are overseen by mostly LPN saff and don't get me started on that PROBLEM.  
So now I will get off the soapbox and say thank you for your support and understanding with regard to my "coping" meds.  and your remarks about "bumbling"  you made my day, for that is one of the best words I could use to describe how I feel when I look at my life today....bumbling  
As to the doctor "refusing" no docotr ever refused, but a few have told me "I don't know" now this is fine in a subjective clinical question, however with regards to medical charted test results I will never accept this.  I am a pain in healthcares .....neck.  LOL have a great day wherever you are.  thanks I hope to write you again.
Lani

[dlr2007]

I'm so sorry about your Mom- it's awful when the people that should be helping make a mistake like that. Unfortunately, there are those that cut corners even in a situation as crucial as health care.
  I hope you can find more liver-friendly drugs to replace those you're on. I understand the feeling of not being able to cope without certain meds. Since relapsing back into opiate addiction a few years ago, I've been on a medication that is nontoxic to the liver but really has some bothersome side effects. I've gained weight that is very hard to lose, retain water, am sleepy as h=ll at the most unconvenient times and my teeth are getting cavities faster than the dentist can fill em. But I am too scared to try to live without this med. So I know how you feel and it doesn't make you a wimp- well if it does then I'm one too I guess- lol.
  I also relate to reduced mental clarity and not getting much done- I feel like I spend my days bumbling around doing nothing- where I used to wake up and breeze around working, raising little ones, cooking and cleaning like it was nothing. I don't know if it's the Hep C or the medication- all I know is I hate it. But you're not alone. If your doctor won't listen to you, find another one. I know it's a pain in the @ss and the last thing you feel like dealing with- but no doctor should refuse to answer your ?'s, esp when you're on meds that can hurt your liver AND you have Hep C. I hope all goes well for you in sorting all this out and feeling better.
Bst wishes,
Dee