Aa
lanier
Maybe I was a little depressive with my first question, Please anyone have any opinions about the first ever blog I have opened up too. It is so difficult to try and figure this whole chronic hcv thing out, it's like my symptoms surfaced out of the blue 2 years ago and down hill from there.... ant advice or information will be greatly appreciated. My gastro is a blank slate and seems offended when I ask questions. Thank you so much
lanier
lanier
it's okay, we can agree to disagree, I have seen some evidence on why regular alcohol intake is bad for a virus and the liver, but I'm sure you have evidence for why you believe as you do as well....different opinions, that's all.....I just figure, if a person has trouble cutting back drinking after this diagnosis, there are probably other problems there to begin with, that are pretty self-explanatory...
I also agree w/ your assessment on why taking drugs continuously as a form of symptom management, could actually exacerbate the very symptoms you're trying to help with the drugs, for some people...that "blow-back" effect...a friend of mine suffered with intense migraines, and she had taken pain meds for them for years, she was told to stop taking the meds (which was brutal for her at first) low and behold, her migraines became much more manageable and more infrequent...maybe the thing for someone like my friend to do is cut back on dosages and/or take other things, or use the meds more infrequently...I don't know...
I enjoy your posts and am glad to hear from people down under, or up over as you may see it, ha ha ha!
I also agree w/ your assessment on why taking drugs continuously as a form of symptom management, could actually exacerbate the very symptoms you're trying to help with the drugs, for some people...that "blow-back" effect...a friend of mine suffered with intense migraines, and she had taken pain meds for them for years, she was told to stop taking the meds (which was brutal for her at first) low and behold, her migraines became much more manageable and more infrequent...maybe the thing for someone like my friend to do is cut back on dosages and/or take other things, or use the meds more infrequently...I don't know...
I enjoy your posts and am glad to hear from people down under, or up over as you may see it, ha ha ha!
I enjoy your posts also. I learnt quite a bit when a couple of old posts of yours about your sister resurfaced. Jeez she was a lucky one ay.
Im going to give the alcohol debate a rest, but I think we mainly disagree on whether there is a safe limit. You view is OK as zero alcohol is definately safe.
I am going away for 2 weeks next weekend. Going on a 4WD trip across the Simpson desert and then to Lake Eyre. Should be fun unless we get lost and die, or I get bitten by a snake. Gonna be in the middle of bl00dy nowhere.
How did you go with the Alby trial.
CS
Im going to give the alcohol debate a rest, but I think we mainly disagree on whether there is a safe limit. You view is OK as zero alcohol is definately safe.
I am going away for 2 weeks next weekend. Going on a 4WD trip across the Simpson desert and then to Lake Eyre. Should be fun unless we get lost and die, or I get bitten by a snake. Gonna be in the middle of bl00dy nowhere.
How did you go with the Alby trial.
CS
I don't know why anyone on this BLOG thinks I drink, I have NOT had a drink with alcohol since I got the first set of blood work that indicted I have HCV, I AGREE NO ALCOHOL. I guess I have lost my ability to communicate or maybe I just do not get the concept of writing on a BLOG since I never have. I thought it was to "share" not critique. I was happy to have people rewspond, but this lady from out west seems to want to ....who the heck knows. If it's like a "root canal" go to another place. I was thankful, I have a hopefull perspective and see myself learning from others who were facing the same virus. I am sincerely sorry if I pissed anyone off. Forseegood I agree with your view regarding alcohol. I agree about the gent from down under he is smart. I have had the symptoms of sever fatigue since 2005, It started with this feeling of being out of control, not being able to cope, and then after about 6 months I started crying all the time, I was working at the time...in healthcare and I would have to go and hide, then I started thinking it was my divorce so the xanax would help it pass. It did not the symptoms progressive got worse until I stopped working a fantastic job, because I could not get past mid morning without feeling I was in need of a nap and going to have a meltdown. I have had these problems for many years I must admit, when the colitis came, when the shingles came, when I would get the hives all these event circled around people dying in my family so I chalked them up to sadness and always was able to bounce back. Since 2005 NOT BOUNCING anywhere. I have turned into a polar opposite of who I woked so hard to be. I freak out about things that are ridiculous and sleep way to much. So I need the meds to cope and to not get "committed" (lol) and then the meds hurt me (maybe) but the trade off must be. Iam sorry if I upset any of you. I sincerely want anyone who writes to understand how greatful I am for them taking the time...good or bad, I am thankful to hear your opinions and try to process them correctly. If I do not accept my apolgy in advance.
Watch the snakes mate. I was in the everglades hiking and camping a few years back and the crocks and coral snakes were something to come across. My mother worked for Ray Hoss he was a famous snake farmer. he milked cobras and many kind of snakes and he is brilliant. We have some snake here in florida that are pretty cool not aggressive for the most part, unless you surprise them. Be safe and have fun. I want to take a cruise this fall, and sit on the deck and just look at the sea. I like to dive in Marsh harbor in the abicos, but in the last 2 years have done nothing close. So glad your strong enough in body and mind to put everyday as a new one. I want to feel better for the love of God I really do. I do not know the person I am today.
Regards
Lani
Watch the snakes mate. I was in the everglades hiking and camping a few years back and the crocks and coral snakes were something to come across. My mother worked for Ray Hoss he was a famous snake farmer. he milked cobras and many kind of snakes and he is brilliant. We have some snake here in florida that are pretty cool not aggressive for the most part, unless you surprise them. Be safe and have fun. I want to take a cruise this fall, and sit on the deck and just look at the sea. I like to dive in Marsh harbor in the abicos, but in the last 2 years have done nothing close. So glad your strong enough in body and mind to put everyday as a new one. I want to feel better for the love of God I really do. I do not know the person I am today.
Regards
Lani
Sorry about the confusion, initially i wasnt sure if you still drank but you cleared that up early on. Forsee didnt agree with my post on the amounts we can drink, which is OK. It wasnt directed at you.
Alcohol debate tend to get a bit heated around here, so dont take it the wrong way.
The point i was trying to make with the drugs is not to stop taking them but to see if you can replace them with ones that dont contain the Liver warnings. When all said and done its a trade off between being able to function and trying to prevent liver damage and or increased symptoms. In no way was it meant to be personal. I still think you should talk to your Doc about this.
Still havent got my head around why some of us experience severe symptoms with minimal Liver damage, yet others can have cirrhosis before they even realise they have HepC.
Gets your back up a bit when the virus starts messing with your QoL ay. Does me at least.
The snakes here are pretty intersesting too and most of em will get out of your way. Not all of em but. Theyre quite deadly too, so i'll try and stay out of their way.
It should be fun though, i am going to know what isolation is that for sure.
Hope you get to go on your cruise, can I come along - LOL.
Wish you Well
CS
Alcohol debate tend to get a bit heated around here, so dont take it the wrong way.
The point i was trying to make with the drugs is not to stop taking them but to see if you can replace them with ones that dont contain the Liver warnings. When all said and done its a trade off between being able to function and trying to prevent liver damage and or increased symptoms. In no way was it meant to be personal. I still think you should talk to your Doc about this.
Still havent got my head around why some of us experience severe symptoms with minimal Liver damage, yet others can have cirrhosis before they even realise they have HepC.
Gets your back up a bit when the virus starts messing with your QoL ay. Does me at least.
The snakes here are pretty intersesting too and most of em will get out of your way. Not all of em but. Theyre quite deadly too, so i'll try and stay out of their way.
It should be fun though, i am going to know what isolation is that for sure.
Hope you get to go on your cruise, can I come along - LOL.
Wish you Well
CS
Well, I am looking forward to hearing about this trip! Maybe, take a journal with you?
Be careful and I hope you have a great time!
Y
Be careful and I hope you have a great time!
Y
I have spent more of my life alone than with anyone, and prior to 2005 I traveld alone all the time. I have driven east to west (florida-Lake tahoe) two times. I also spent many years in colorado, new mexico, nevada and arizona. I love the mountains and sports related to it. I was born in florida so came back whn my Mom started her path to death and never left since I have one daughter and I wanted her to stay in the same school, she has one more year until college and really would be a great dive buddy if I could get my act together.
I love cruises as long as you take plenty of excursions, but in my heart I'd love to go to Marsh harbor and stay on a sailboat for a month or two. No tv, no phones just the sea and your spear gun. I want my daughter to experience that. Have you ever been to any of the Abico Ilses there are many that are worthwhile.
I go on tuesday to this new specialist so I'll ask for depression medication and also discuss treatment options. If he cannot answer questions and hold a conversation with me on the same level then I will be back at square one. I attribute many of the symptoms that have surfaced in my case to the years I have had the virus and the personal things that have been tagic. I do need to have an updated viral load, and I do not understand why my ct (I have not gotten my copies yet) according to the person who called me, showed my liver "normal" I swear I can feel this pain medial and to my front but transverse to my posterior midline, it is a dull every ending pain, it never goes away. and I do not understand why I cannot bend over these days, since treat attempt.
I have quite a few symptoms since my treatment that have not gone away?? I stopped in May of this year after starting in Feb of this year I completed 3 full months and went downhill, but I digress you know this.
So anyway yeah they have some funky critters in your world, I see them on the teli here. I'll look up that place your going and see if I can find some pictures.
Your a good egg and I tell you writing to you makes a difference thank you from that. I mean it in a passive way and hope it causes no offense.
It is offensive tome I am forced to see doctors I have no rapour with on the advice of my attorney to keep documenting my symptoms for SSDI. I have to play this legal game now to get back some of the monies I have paid in all my life up until 2005. Seems so unfair.
Lani
I love cruises as long as you take plenty of excursions, but in my heart I'd love to go to Marsh harbor and stay on a sailboat for a month or two. No tv, no phones just the sea and your spear gun. I want my daughter to experience that. Have you ever been to any of the Abico Ilses there are many that are worthwhile.
I go on tuesday to this new specialist so I'll ask for depression medication and also discuss treatment options. If he cannot answer questions and hold a conversation with me on the same level then I will be back at square one. I attribute many of the symptoms that have surfaced in my case to the years I have had the virus and the personal things that have been tagic. I do need to have an updated viral load, and I do not understand why my ct (I have not gotten my copies yet) according to the person who called me, showed my liver "normal" I swear I can feel this pain medial and to my front but transverse to my posterior midline, it is a dull every ending pain, it never goes away. and I do not understand why I cannot bend over these days, since treat attempt.
I have quite a few symptoms since my treatment that have not gone away?? I stopped in May of this year after starting in Feb of this year I completed 3 full months and went downhill, but I digress you know this.
So anyway yeah they have some funky critters in your world, I see them on the teli here. I'll look up that place your going and see if I can find some pictures.
Your a good egg and I tell you writing to you makes a difference thank you from that. I mean it in a passive way and hope it causes no offense.
It is offensive tome I am forced to see doctors I have no rapour with on the advice of my attorney to keep documenting my symptoms for SSDI. I have to play this legal game now to get back some of the monies I have paid in all my life up until 2005. Seems so unfair.
Lani
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