up and down....8.1 hgb and dropping

[working dog]

oh boy....just when i was feeling so good..i knew my hgb was low..just felt so good stopping the incivek...i.m lower today then yesterday and was 8.1 yesterday...must be in the 7s now...high 7s i hope...anyway my doc says stop the riba for now...i'm going to take a shot of procrit right now and maybe bring the riba down to 800 for a while..i just can't stop now...i do feel like it would be dangerous if i do any thing like lifting or walking more then 100 yards..but i still don't feel nearly as bad as i did when taking the incivek...i hate to post this as i was feeling so good after the incivek...oh well....billy

[working dog]

deb...i really don't feel that bad...not feeling like a transfusion...and i didn't go into tx with any insurance...i worked pretty hard with my doctor's office and with the drug companies to get drugs and be able to afford tx ....i think my doctor had to say stop the riba..to cover himself in case i over did it and died...so if i feel ok i may cut down just a little...i don't think it will affect my tx cure as i am very sensitive to these drugs...they must be working like crazy...if i'm wrong i won't have any problem admitting it....i think i'll be und next week at my 12 week labs....i also go to a very good and proven doctor...has worked with hep for years...although this new triple tx is so new with all the problems to work out and the rescue drugs....the incivek may be a life saver but it was a drag for me.....billy

[working dog]

this is how it is...i stopped incivek..was feeling awful..worse then awful...next day felt a little better...day after that i started feeling really good...still not great but compared to the way i was feeling much much better...easy to tolerate...so being me and bored to death i moved rocks into a trailer...i was huffing but could do it...next day i moved some 80 pound bags of concrete..only loaded 5 bags and i did feel it...but still felt pretty good...that was yesterday....i could feel i was anemic and took my weekly blood test...but still didn't feel anywhere as bad as on the incivek...today i called my doctor for the blood work taken yesterday...it was 8.1 so i knew the way i was feeling that it was lower today....i can tell now...in fact i just walked up the stairs and fell...dropped my mac...i can't believe the beating it took...i feel anemic and itch with half of me in a rash but i really don't feel like i need to go to the hospital...i think i over did when i felt good...i'm so bored...so sick of bed..i think maybe i almost killed myself...must have a strong heart...so far no pain there....but at least i have a nice bed and family and above all a girlfriend that waits on me like you can't imagine..that way i am spoiled...so after the incivek it does get better...easier in lots of ways...but its still tx and i hope like hell my body can take it...i think this is just a little bump in the road and no big deal...my girlfriend booked a room in portland tomorrow night so sunday we can watch my two youngest daughters run a half marathon...i'm going for it...i just need to not pick up heavy stuff..something i've always done...we will see ...mentally for me there was a huge positive difference when i stopped the incivek...your gonna like like part of tx....billy

[pcds]

I need to understand this.  You finished Telaprevir, felt better, did you continue with your usual regime of procrit, but tanked anyway?  This is freaking me out.  I was so hopeful about the day I finish the incevik.
Judy

[Mary4now]

Oh boy Billy, take it easy will you...... get those red blood cells going and get better........
Mary

[fredpacc]

Hey Billy , I started Procrit 3 weeks ago and last week my NP called and told me to cut back on the Riba because my hemo went from 8.8 to 7.7! I took my last dose of Incivek last night and I'm hoping to start feeling a little better soon. This tx really kicked me down. Hope you start to feel better soon - I really feel your pain....Fred

[OdinLovesLife]

Take it easy billy. When are you seeing the doctor next? Soon? Can you talk over nygirl's suggestion with the doc?

Hope you are feeling better soon.

[streamline569]

I just put a post up Billy. I'm off incivek a little over 24 hours and not feeling well. I did my procrit this morning and feeling very short of breathe. I'll have my lab results in a week and will see what's going on. I'm wondering if there is an incivek adjustment period as we have been on a strong drug for three months. Oh it gets so tiring trying to figure this all out. Just can't wait for the day to stop it all. Just hope feeling better is in the cards at some point.Did your itching stop, it took a full 24 hours to get relief from that. Hoping it's over for good, but who knows.

[working dog]

i took 40000 procrit half an hour ago...i really don't feel that bad..i don't feel like i have to stop the riba..my doc said to stop it for now...i thought i would only drop it a little...this week is my 12 week blood work...billy

[nygirl7]

Billy

Who is your insurance carrier how can they be accepting of this doctor?  If your hemo has dropped that voraciously after stopping the Incivek and being on Procrit and is in the 7s, a doctor should be acting upon this and talking to you about transfusions...not dropping a couple of riba here or there. At this rate you will never achieve SVR, this is criminal!!!!!!!!!!!!!!!

[his3707]

I did good hgb after stopping invivek and cut back on procrit then crashed also.  Now Im on 40,000 units (1) shot about every 7-8 days.   hgb around 10.2 now.  Just take it easy for awhile.  hopefully your hgb will level out also pretty quick.  
Lydia

[belle19]

billy, you've been thru so much that you need to give your body a rest.  i took a week off to go fishing and it worked wonders for me.  maybe even a couple of days?  (i did not take a week off treatment).  i just had fun!  best wishes to you.  keep us posted.  i'm sending you a prayer.   belle

[working dog]

i wonder...i did push pretty had the day before the blood test...could pushing hard lower your hgb??...billy

[mykids247]

Maybe just pushed yourself too hard yesterday because you felt so good. Take it easy and rest. Dont try and push yourself. Our bodies are being tramatized by all of this poison we are shoving into it and its going to protest. Rest, wait and see. Hope it works out. Cooler weather has got to make people start feeling better. Take care.  :)