As usual I am learning a lot from your posts. I see my doc on 1 May to discuss tx options--since I am tx naive I will definitely want to try interferon first.
Another important point I am learning from everyone is to keep my own records--so I will ask for copies of my med record to track my own progress and success-I want to be optimistic--:-)!!
Thanks again!
Rose
Wow - unbelievable three times the amount. I tell you I would have probably done it too if the Interferon didn't work. We become so focused on killing the virus (and this I speak from personal experience) we can kill of 50% of our bodies before we stop.
We tend to be a VERY obsessive group in here. ;-)
I am SO GLAD you are SVR. As time goes by...I have a feeling the saying in here will become - well a long time ago there was this crazy guy Goofy and if he could do it...I know I can! :)
I am SO HAPPY FOR YOU AND LOOK FORWARD TO ALL OF YOUR SUCCESS.
Thanks very much. But I'm not SVR yet -- I'd label it 'undetectable and cautiously optimistic'. I'll start breathing easier if I make the 3 month mark.
I've done daily shots for my last 2 treatments. My others were usually 3 times a week, or once a week when I was on the Peg. In my body, daily shots get me a better response, but they are a pain in the butt. Or should I say, a pain in the tummy and thigh? It requires a big committment to the treatment, to not get into the whole 'skipping a shot' here and there. On daily doses, it's more important than ever to stick to the routine. I've done a daily shot, thus far, every day for the past 8 mon. Another thing is, when I ever did my first couple of treatments, I really screwed up when giving myself injections and I ended up with lots of scars on my abdomen from injection problems, sores from the scar getting abcessed, etc. Anyway, I have one 1/4 of my abdomen that I can no longer inject because of scarring due to this problem. Now that I know what I'm doing and have I've got the shot giving figured out, I'm not getting any more sores or scarring.
Susan400
no i havent treated before but he said because my vl was so high was the reason
Have you ever treated before? The Infergen is apparently much harder than regular Interferon (Peg-Intron or Pegasys) so I am wondering why he would want you on that unless you have not responded previously?
Doctors common protocol is Interferon/Riba and unless you do not respond they don't put you on the Infergen until after THAT usually.
A daily shot has to be much harder than a weekly shot. I'd find out why he doesn't want to start you on the common protocol and instead head straight to the hardest one. A geno 1 has a 50/50 chance of a cure that's pretty good odds!