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Avatar universal

My labs

Howdy Y'all.

Okay,I emailed my Np again and she said she didn't receive the hard copies yet of my labs, but she went on line to get the numbers.

This is the labs from first week of March. I started tx in Jan. I don't have my old labs in front of me for exact dates and all that.

But anyhow Heptimax is UND (thank God)
NP said my hemo stayed the same 11.1
white she said went down to 1.9
but she said total neut. is 1300

Then she said "you may have had viral syndrome at the time because your liver enzymes bumped up a bit". Then she asked if I feel okay.

I emailed her back and asked her to let me know what they 'bumped up to' and how often does she see this.

I know some of you guys said enzymes fluctuate during tx, but I never heard any of you guys use term "viral syndrome." Its probably something rare that only I have. I'm special. >hehe <

So the numbers except for the hemo I know nothing about. Any advice or comments?

Thank ya kindly.

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Avatar universal
Yes, I thought "viral syndrome" referred to the HCV virus, don't know where I got that far out idea considering the topic of this discussion group :) Anyway, that puts things more in perspective but I'd be curious to see how your next enzyme test goes now that you're less "viremic" :)

Sure, mix it up a bit and once in a while see the guy who makes the big bucks and the big speeches with the big diplomas on the wall.  But seriously, you do want his overview on things from time to time, although it seems like your case is pretty vanilla and straightforward, which is a good thing.  

Yeah, I threw quite a fit back then. It was fairly early-on in treatment -- before week six I think -- and I was a mess just coming out of the ER for anemia and all with vacillating viral loads, anemia, reflux, and nausea so bad I actually went to an acupuncturist to try and ease it up.  I specifically asked to see the doctor that day as I had concerns up the kazoo and ended up spending over two hours in the waiting room when the nurse finally came in to see me, something about the doctor being unavailable.  

I blew it riba-white-coat-rubber-room style and all of a sudden the nurse and room cleared with feet scurrying in the halls and then the doctor magically appeared. I have to give them credit for handling it so well, instead of calling "911". My guess is I'm not the first and they've run this drill before. LOL. But like I said, after that, no problems at all seeing or getting whatever I wanted :) In fact, I'm on good terms with all of them now, and even had drinks with my doc recently. That riba can sure do a number on you, or at least it did on me. Funny thing about treatment and how dependent you can get on your medical team. One of the benefits of doing your own research and becoming proactive treatment-wise is easing up on that umbelical chord,  because at times it really seems they hold your destiny in their oftentimes too busy hands.

-- Jim
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Avatar universal
She wasn't talking about the 'hep virus' in acute stage, just a bug. Were you refering to hep?  I meant a 'regular virus' (whatever that means) I have been around a few sick people, so maybe I caught a few germs. Who knows.

They ask me everytime I leave, who do you want your appointment with? I can make it with him. I asked for her. My husband feels she is doing a good job, so do I, but maybe I will make an appointment with him after this one or even the next one cause it will be right before the 24th shot.

You had riba rage in the office.LOL At least they did what you wanted after that. You must have really shook them up.

I don't mind waiting if I have to, but NP is very prompt I must say. But I try to have the doctor appointment as the only thing of the day. We go to breakfast after that and then we usually do something else. Last appointment we went ot the Museum of Natural History. We haven't gone in years, so it was nice. Now with the warmer weather after breakfast we can go to Central Park (and get mugged.)
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Avatar universal
MO: but she said it can be a virus in an acute phase.
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I could be wrong, but I doubt very much Dr. D. would agree if asked in private. My prev hepatologist also made an "acute phase" call by my enzymes were over 600. It's too bad you don't appear to have more direct contact with the doctor although I'm sure you're still getting better tx than 99% of those who treat. I also had a Dr. and NP team but saw the Dr. over 50% of the time. Perhaps the fact that I threw a riba fit in the office (I think they were about to call "911" :)) early-on in tx when  I was supposed to see the doctor and didn't may influenced things from there on :)

-- Jim
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Avatar universal
Thanks Cindy. yeah the nurse didn't seem concerned casue the absolute "wasn't bad" she said.

Jim my white is usually 5 something. Before I knew I had hep I had a blood test and the white was in abnormal range 3 something.

Okay I just was nervous about the phrase 'viral syndrome,' but she said it can be a virus in an acute phase.

But she really feels bad that I asked about my labs and she interpreted it as if I though she wasn't doing her job cause as she put it, she would have contacted me there were abnormalities. The agreement was for them to fax all my labs each time. She now told me that she gets the blood work back within a week, but its the heptimax that takes longer. I will have to tell her I don't want to wait on the heptimax to see my blood work. Send the heptimax separate.

She has too much on her plate and she is setting priorities which I can understand.I think she is looking at it as contacting me when there is nothing wrong takes her away from someone who is having a problem and I can understand that. They need more help. She was supposed to get an assistant nurse to do the paper work and things like that, but I have a feeling that hasn't happened.
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Avatar universal
That's less of a "bump" and more of a blip, IMO. By the way your NP phrased things, I thought maybe you had some sort of serious reaction which you don't. Slightly elevated enzymes like you note are not uncommon during treatment and the bottom line is that your viral load was non-detectible at the same time the enzyme blood was drawn. Your monthly viral load tests and CBCs should be enough to track things although I often had CBCs every other week in cases where something changed but write that off to as much to my tx neuroses as anything else.

As to your WBC, I'd stop worrying or second guessing since nothing is wrong with your ANC.  But yes, WBC can jump up and down for a number of reasons, infections, etc, and maybe even a hep b vaccine, not sure on the latter. Do you know what your WBC was before the vaccine because I think "9" is in normal range, but don't have a lab sheet in front of me. A drop after your second shot is expected, but again, your ANC is just fine, so not to get ANCSY :)

-- Jim
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Avatar universal
Meant to tell you, hubby's WBC is 1.9 too and doc not concerned yet. His ANC is 1000 and still not concerned.
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Avatar universal
Yes.. ast was 36  (3-35)
         alt was 46   (3-40)


I have all my labs in a folder but I can't find the lab prior. I had made extra copies and shredded them cause my PCP had received them. I think I shredded one to many. I can't stand loosing anything but anyhow I remember the one was low 20's and the other was high 20 or maybe low 30?

They have been in normal range for quite a while even before tx.
I don't know this has me concerned cause why is my white's being depleted and my enzymes raised.

I really would like to know if the Hep B vaccine could have bumped up my whites to 9 before tx and then after 2nd shot they dropped to 3 from interferon?

They were never as high as 9 before,,,BUT for that big drop after 2nd shot maybe its good they were that high prior to tx?

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Avatar universal
Not to disagree at all, but my point was more specfic to the way Quest reports the results and didn't want MO to get confused when she got her report faxed over. On the Quest report, the words "total neutrophils" is followed by "percentage" and then expressed as such. "Absolute Neutrophils" is expressed as the number which in MyOwn's case is "1300". BTW and perhaps at least equally important, did you find out what that "bump" in your liver enzymes were?

-- Jim
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Avatar universal
Thanks Friole for the congrats and thank you very much for the explanation of the white count. Very helpful.



Yeah the white count though has me a litttle concerned cause prior to tx it had gone up to 9 something if I remember correctly (pretty sure though) and the nurse never mentioned anything.I guess cause it was still in normal range she figured it was okay, but compared to all my other labs that I brought with me, it was high (for me). The white count went down to 3 something after second shot.


I really wonder if it had anything to do with the B vaccine shot I had just before I started tx. I would imagine that any vaccine would have some sort of effect on your white count. I emailed her and asked, but I think she is sulking because she thinks I don't trust her now. I'm tired of dealing with people to tell you the truth.  


Thanks for you input.


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Avatar universal
I haven't read this whole thread yet, but congrats on the UND.  Grand news. Just wanted to say that absolute neutrophils are total neutrophils.   As you look at your lab report, the first series of white blood counts are the percents of each type of white blood cell -- like lymphocytes, neutorphils and the others.  All those percent add up to 100%.  Each type of cell plays a different role.  The next series of numbers for the same types of white blood cells are the actual numbers of each.  The neutrophils are shown, for example, as #NE or ANC.  Your ANC (number of total neutrophils) is pretty high, considering how low your WBC is in total, but I think you are fine, and don't need Neupogen.
frijole
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Avatar universal
Thats a fact, it is painful. I am large breasted so to have squeezed like pancakes (for just a minute more) is not fun. ;-)

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Avatar universal
You're welcome.

I hope you find a place that does thermographies.

Those mamagraphies sound so barbaric. Sticking your breast in a vice grip until you want to let out a scream or karate kick the nurse.
No thanks I'll pass.

I bet if men had to do that with their peter, the doctors would come up with something better real quick or most men would be like me and just not go.
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Avatar universal
That interesting, I'll check it out. I do have to be careful, my Mom had breast cancer, and this will be my forth lump (only 41), with three biopsies so far.

I too worry about the radiation, I have had about 8 mamo's in the last 10 years.
It can't be good.

Thanks for the info!  
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Avatar universal
Thanks guys!

Cindy, if you can check around and see if there is anywhere nearby that does thermography instead of mamography you are better off.

The thermog. identifies cancers as hot spots without the use of radiation.

I know mamog. have saved many lives but getting raditation every year is not the best thing. I have never even had a mamo.  I know, shoot me.  Doctors through a fit when I tell them that.

I tell them to just examine me with the breast examine and you get radiation on your boobs, I'm not. Needless to say my comment usually doesn't go over well. But the one holistic doc I used to go to gave me a breast exam and then said I will give you a RX for a mamo. So I went thru my song and dance about how I don't believe in them and them she told me she doesn't either and that she goes all the way up to Conneticut for a thermography. I said "why the heck would you want me to go then?" She figured I wouldn't go up to Conneticut. And btw, she's was right.

But anyhow I just found out that a place in Montclair does the therm., so eventually some day I'll make my way over there. That is the furthest thing from my mind right now tho.

Also have your level of vitamin D checked with your labs. They are finding that Vitamin D levels, if low, put you at a risk for breast cancer and also other cancers. Most conventional doctors are not up on all of this.

I will keep you in my prayers also. Let me know how you make out. I'm sure you'll be fine.
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Avatar universal
That's WONDERFUL News....CONGRATULATIONS!!!

Looks like you are off to a GREAT Start... Way To Go!!!
;)
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Avatar universal
Glad your doing well, UND and all. I hope all go well with your Mom.
It may just be fibroadenoma, I  have had a couple myself and they are painful but nothing to worry about. Doc always told me you dont feel Cancer, so if she has pain in it, its a good sign. I too have another lump as well, going for another mammogram next month as f/u and I'm not going to worry about until then, though I dont feel this one (kind of scary). These are common.
I will say a prayer for you both.

Remember if Gods get you to it, he'll get you through ;-)
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Avatar universal
Thanks alot Mike, appreciate that.
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Avatar universal
Congratulations on your great news! I am thrilled for you. Mike
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Avatar universal
Thanks bug,
My mother had what may have been a heart attack a few years ago and they put a stent in her. Thats another whole story. I researched about drug eluding stents after the procedure because of a problem she was having after the procedure and THEN I called the manufacturer (Boston Scientific) and told them that these 'drug eluding stents was a very bad decision for them to make.

It was so obvious to me as a lay person that while their intent may have been to prevent restenosis, problems would surface. Well if you have been following the stent controversy, the medical world is now questioning if they are safe. They are not period!

But anyhow hopefully the stent won't give her anymore problems and other than that, she is in her late 70's and takes NO meds. Her new cardioligist is head of his department at a University hosp and is an expert on holistic med. What a surprise! That is sooooooo rare. So anyhow between my mothers knowlege of complementary med and her doctors, she is now off blood pressure med, and its normal pressure now.She is no longer taking Crestor and her cholestrol is normal and the only thing she takes is asprin, but tons of supplements. The plavix was in the beginning but now has stopped. They tell the stent patients now (since the controversy) to stay on plavix and asprin, but there are risks of brain hemmorage that most people don't know about. So she only takes the asprin. Six months of plavix and then she stopped.

Thanks for your prayers. Greatly appreciate that.





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Avatar universal
Doncha love it when the NP and Dr act very strangly when you seem to know as much as they do? or more? Your ANC looks good, mine have beem so much lower. As long as you have them watched closely, at least once a week, I think you are OKAY.
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Hi Linda,
I don't know as much or more than them or anything, but sometimes I think we see things that medical people don't always see. Sometimes they are so "book smart" that the obvious gets overlooked or something. But I definitely learned alot here on forum, but I'm still way behind what most of you guys know.

I don't have another appointment until next week , and she didn't mention anything about watching them weekly, tho I would like to.

I do like this NP alot, but many medical people really think that you don't trust them if you question in any way. She made a comment about me questioning her as if I would think that she wouldn't tell me if I had any abnormality. How can emailing her for my labs turn into that? All becasue I had a question about the ANC?  

I just did shot 13 Friday so I am close to the finish line. I don't like that my Ast and alt bumped up a tad  AST was 36 (3-35) and ALT was 46 (3-40) The 1st time it was in the 20 or something and the other was 30 or 31, whatever.

But anyhow that's the story.

I'm glad that you are feeling better. When will you get a Heptimax? I hope and pray you are svr.

Let me tell ya, I've never met so many strong people in my life as I have met here on forum. You are all an inspiration to me to.

Thanks again, see ya later!

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146021 tn?1237204887
Forgot to mention your Mom. She is too sweet! Waiting so as not to worry you! Get her into a dr. quick! I hope everything is ok.
Do you take after your Dad? I hope Mom is healthy like you seem to be. (except for the little hep c blip on the health radar)
You are doing amazingly well and past the 1/2 way mark. Hang in there and let me know about your Mom. I'll be praying..
Bug
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131817 tn?1209529311
Doncha love it when the NP and Dr act very strangly when you seem to know as much as they do? or more? Your ANC looks good, mine have beem so much lower. As long as you have them watched closely, at least once a week, I think you are OKAY. How long are you going to go? 24 weeks? If so you are so close! With what happened to me, I am much more cautious about going more than necessesay now. With only one week to go i fell apart, that was very rare though. So I would stii say to go the distance if you can, expecially since you are only going 24....YOu are doing well sweetie, and I wish you all the best! I really think you are going to be fine!!

LInda
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Avatar universal
NP said the ANC IS the total neutrophils. So now I am really confused.

She also said that viral symdrome was a viral infection that I had brewing at the time she drew the blood, but yet I showed no symptoms.  I also asked about my B vaccine shot. She had given me my 3rd shot just prior to starting tx. I asked if I was immune. She said I had a low titer and she couldn't remember when she gave the vaccine. I emailed and told her when and also asked if it was possible that the hep B vaccine could appear to look like viral syndrome.

I had noticed on my base labs that my white cell count was high. Still in normal but high normal and it was never like that before. Then after first labs it came down to 3 something if I remember.

I told her I know nothing about how the body perceives a vaccine, but could it be possible that my white cells increased initially from the vaccine and then took a dive as it tried to  fight it.

She hasn't gotten back though yet. I didn't like the 'attitude'  that came through. I will discuss that when I see her.

Amazing that's all I'll say now. I'm not too thrilled with something she said and I will talk to her about how I feel when I see her, especially cause I don't bombard with emails or calls. I waited very patiently and then wanted answers after waiting long enough.




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Avatar universal
Thanks buggy!

Glad to hear you're doing well also!

Yes I wish everyone would clear. I won't feel I'm out of the woods until the year mark though or as they say "it ain't over until the fat lady sings." I think her song comes at the 2 year mark.

That's good that you got the labs back so quick. Well I heard back from my NP. She's nice but seems insulted that I said I was concerned  that I hadn't heard anything from her.  I shouldn't say 'seems,' she WAS insulted. So I emailed her back blah blah blah. Tried to be nice. I was, but the wimp cells are not harvested yet for sure.


Thats funny what you said that wimp cells would be a sx for the books and I wouldn't be the same. ha!

Yes that sure would be a different Myown. You wouldn't recognize me.

Picking battles, I used to think people were wimpy when they did that, but you're actually smart to do that. Someday I will hopefully be like that. I wouldn't mind that as a post sx. I may need a frontal lobotamy though too. Does BCBS cover that? ha

See ya!
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