Party Ride… Roll Call!

[geterdone]

Lets all help put this here together in the coming days,

The Party Ride… Roll Call!, why might you ask? Well we’ve been here on the Hepc Party Ride for some time over the past months and as with any party ride many people jump in and others jump out (kind of like the hokey pokey, remember that one?) to make way for the new people coming in on the line to find info, share stories, support and help pull all of us together and keep us moving forward in the journey, so it might be fun for everyone to share in this party ride once again and let everyone know where we started and where we are at in treatment or have past treatment and are SVR, waiting for SVR or have relapsed if so inclined.

Might see some TX similarities here
http://www.youtube.com/watch?v=QmMQfTJ3gYk&feature=related

Genotype 1b
Diagnosed 2004
Started tx: 03-12-07 / 48wks SOC
Ended tx:  03-15-08 / tapered off meds 4 additional weeks
TX”ed 52 weeks
Baseline vl 4.7M ml
UND week at 8, 12, through EOT
Carried 33 yrs
Liver: Stage 2 Grade 2
First: 01-31-07  AST 52 / ALT 96
Last: 09-13-08  AST 21 / ALT 20
Six months post – SVR
Worst sx weeks 1 through 12

So, come’ on join the ride and add to it and lets geterdone!

jasper

[geterdone]

This is fantastic! It’s because of all of you that this thread has grown as it has and would be great to see it continue in the coming days as other may not have been online, and in reading this thread feel comfortable enough to hang a shingle here. It’s tough at the start of treatment especially as the interferon starts taking hold of your brain and the riba starts slowing your body down and your mood swings are as erratic as night and day and your emotions are as frightful when walking in the unknown of your journey. Yeah, it’s good to have a place to go and reach out for the help you need and to keep you steady while the aliens take over your body and mind. I felt great comfort here, as I’m sure you all have too and that is what makes this place GREAT! In closing, here is a little home grown song re-written in that reflection of the beginning.

Hello darkness, my old friend,
I've come to talk with you again,
Because hepc was softly creeping,
Left its seeds while I was sleeping,
And the virus that was planted in my pain  
Still remains...
Within the sound... of silence... ;((
In restless dreams I walked alone
Narrow streets of cemo and cobblestones,
'beneath the halo of our lonely street lamps,
we turned my collars to the cold and damp (closing the world out behind)
When my eyes were stabbed by the flash of a neon light...
That split my brain in the mist of night of riba and inter-fer-on,
and touched the sound of silence.

and in the naked light I saw...

Ten thousand people, maybe more... (( Ya! Baby this is us :-))),

People talking without speaking,
People hearing without listening,
People writing songs that voices never share
and no one dare, for the sound of silence...

"Fools" said I, "You do not know
Silence like the virus... hepc grows.
hear our words that we might teach you,
take our arms that we might reach to you."
But my words like silent raindrops fell,
and echoed...

In the wells of silence...

and the people bowed and prayed
to the neon gods they have made. (the inner life we yet not know)

and the sign flashed out its warning,
in the words that it was forming.
and the sign said, "The words of the prophets

are written on the inner walls
and tenement halls."
and whisper'd in the sounds of silence.

This, has, is and will be our stories for a period of linier time, and as we near the end of our journey, lest not forget those that will follow, maybe 100.000 or maybe more.

Jasper

[Annie441]

I'm loving the long lashes, have always had very short ones. I would feel like a glamour queen if I didn't have the hair falling out and the white paisty skeletor look going on. LOL


Ann

[CMcH]

I noticed my eyelashes are very long now and I had no idea others did. I would imagine at some point they fall out. My NP wants to reduce Riba instead of more rescue drugs. I want to fight that.
Hang in there and stand your ground.
Connie.

[Annie441]

Dx: Dec 2007
Started tx 3/14/08
Genotype-1A
Baseline VL -207,000
Grade 0 Stage 0
4wk PCR - 497
12wk PCR - < 25 (still detected)
24wk PCR- UND, currently on wk 31/72
Pegasys 180mg, Riba 1200

SX- mouth sores, low grade fevers, hair loss, eyelashes growing (I like that one), some vision troubles and weight loss. Started tx a little over 100lbs now at 90lbs. Have missed one day of work b/c of spending the day in ER due to extreme and unusual sx to AD.
Hbg is down to 9.6 and WBC is at 1.6 this concerns me since I’m starting to think my GI would rather reduce than give rescue drugs.

Ann

[springfever]

Geno 1a
VL 900,000 ish
dx Feb. 2008
Stage 2 (report states 3, doc says 2, shrug)

currently lining up my pre-tx ducks while dragging my feet.
notice fatigue increasing, dropping into sleep like a rock, and over health going down, so body telling me 'danger Will Robinson'.
plan to begin tx before end of 2008

Love this thread geterdone!

[goldyn]

        Geno type 1A 42 yr female had for prob. 20 years or more
        diagnosed 2003
         tx nov 2006- 2007
         starting viral load 15,000,000
          stage 2
         12 week pcr neg
         did 48 weeks
         8 mth post pcr =SVR- Thank You Lord
         side from tx is high Blood pressure controlled by meds now