Party Ride… Roll Call!

[geterdone]

Lets all help put this here together in the coming days,

The Party Ride… Roll Call!, why might you ask? Well we’ve been here on the Hepc Party Ride for some time over the past months and as with any party ride many people jump in and others jump out (kind of like the hokey pokey, remember that one?) to make way for the new people coming in on the line to find info, share stories, support and help pull all of us together and keep us moving forward in the journey, so it might be fun for everyone to share in this party ride once again and let everyone know where we started and where we are at in treatment or have past treatment and are SVR, waiting for SVR or have relapsed if so inclined.

Might see some TX similarities here
http://www.youtube.com/watch?v=QmMQfTJ3gYk&feature=related

Genotype 1b
Diagnosed 2004
Started tx: 03-12-07 / 48wks SOC
Ended tx:  03-15-08 / tapered off meds 4 additional weeks
TX”ed 52 weeks
Baseline vl 4.7M ml
UND week at 8, 12, through EOT
Carried 33 yrs
Liver: Stage 2 Grade 2
First: 01-31-07  AST 52 / ALT 96
Last: 09-13-08  AST 21 / ALT 20
Six months post – SVR
Worst sx weeks 1 through 12

So, come’ on join the ride and add to it and lets geterdone!

jasper

[rita3a]

Genotype 3a
Diagnosed August 07
no biopsy because I was told they don't do them for G3's
ALT and AST normal
Tx 24 weeks 3/08 to to 8/13...forgot the day i started
8 wks post

Probably got this from drug use in the late 70 or early 80s.  I used to party but never shared needles.


Worst sx were extreme fatigue, shortness of breath, cough with lots of phlegm (stayed in bed most of the time).  Went on disability..could not work. Took AD's but was the wicked witch for 8 months.  Just started being nice again! The hardest part...no one could relate to what I was feeling and going through.

Waiting to see if I am UND in four weeks.

[ejoli]

         Gen - 1a
         dianosed '06
         tx aug '06- aug'07  relapsed 11 '07
         liver stage 4 grade 2
        Probably had this 30 years
              Been evaluated for transplant and hopefully starting tx again soon. Having problems with my kidneys now...
                                                          -Libby

[geterdone]

What a great turnout, people sharing and caring this is a great place to be and as JL would say You’ll never walk alone.

I've got to move,
Come let me take you on a party ride
And I'll teach you, teach you, teach you
I'll teach you the Heppers slide
Some say it's mystic
It's electric
Boogie woogie, woogie
You can't resist it
It's electric
But you know it's there,
Yeah here there and everywhere

Well, its time to kick it up a notch, we’ve had some good turnouts here and am sure many people are reading this thread in the lurking mode and some waiting to jump in but are unsure to do so, no fear but fear itself, felt this way when I first posted to one of theses threads but it started relationships that have lasted through out tx and beyond. People starting, people in the middle, and people closing in on the EOT can help those stuck somewhere in the twilight zone. It’s a **** shoot from the get go and we all need each other to keep us moving forward and stay focused to get us where we need to go and a thread like this can keep it moving and give us the spirit to reach our goal and have some fun while doing it so without further a do, the next song is for those silent rockers who have become subdued by the meds and need a little pick me up and motivation out of the doll drums of the mundane of tx’ing this Sunday morning. I have found that up beat music helped me from getting too depressed also, NO! really!!!

Here she comes now sayin' Mony Mony

http://www.youtube.com/watch?v=vj38gVSn9gA

Lets keep adding the new members

Cheers!
jasper

[jools57]

dx:Aug.06
geno 3
Tx:June1-07 weightbased riba/interferon
ambien after week 4 for insomnia
slow responder und wk 12
extended tx to 48 weeks
procrit added at week 24 due to low hgb(9.3)
did that every other week, cause it was so expensive kept hgb in the low 10 range which was doable. Worked thru tx. Felt like poop most of the time(partly cause I went thru a divorce during tx, wouldn't recommend this) lost 35 pounds. some weird rashes that came and went.
ended tx April 25th und at eot.
3 weeks post started feeling good!!! Moved back to CA. Love new job, and It's good to be home!
waiting for 6 month pcr(at the end of this month).
Still have back and neck pain, but It rocks having energy to enjoy life again!
Hugs to all!!

[kitkat14]

Geno 1b  stage 2  
diagnosed April 2007
started treatment May 23/08 with Roche Pegasys and ribavirin  180 week /1000 daily
starting viral load 9,450,000
at 4 weeks viral load of 24
und at week 12
the worst side effects have been the fatigue and shortness of breath
slight rash (mostly on my back where I can't get at the itch!)
I'm working full time and resting weekends

k

[Trish77]

Diagnosed in 2006, likely had it for 23+ years
Geno 1a/1b, Stage 1, Grade 1
Started treatment in Roche Phase IIb R1626 clinical trial on Feb. 29/08
Starting viral load 2.3 mil IU/ml
UND at 6 weeks, currently at Week 32
Worst side has been the fatigue, have had a smorgasbord but managing
Working fulltime and haven't missed more than three days so far due to illness
Keeping good quality of life and good mental outlook throughout - I feel lucky
On very mild dosage of antipsychotic meds to keep mood swings under control and help with the insomnia, first time in my life (thanks interferon! :) = they are helping
Went hyperthyroid around Week 25, still working through that
On procrit to keep hgb from dropping too low and neupogen soon to keep white counts from dropping too low into trial mandated dosage reduction territory
Keeping with the philosophy "don't let the things you cannot do keep you from the things you can do" = there is always something you *can* do
On the countdown now....16 Weeks to go!!!

I cannot imagine having gotten through treatment nearly so well without this forum and the peeps here.  This place is a treasure chest and you are all gems.

Trish