Aa
UND at Week 6 AM&Azing
I posted this in the R1626 thread for those that venture in there but wanted to post this all on it's own
Week 6 results today - UND to a sensitivity of <15
I know the war isn't quite over yet .. but UND is sure one big battle victory in that war.
There is no way I would have managed nearly as well without the support, knowledge, patience and understanding of everyone here on this forum. No better cohorts could there be than on this forum right here. You all are like gold to me.
I get to tell my kids now. How lovely is that.
And having said all that ..... I have to say that Andiamo's UND is still the sweetest news I've heard all day...just not the sweetest news my kids will hear today. :)
Bless you all. You all have surely blessed me.
Regards,
Trish
Week 6 results today - UND to a sensitivity of <15
I know the war isn't quite over yet .. but UND is sure one big battle victory in that war.
There is no way I would have managed nearly as well without the support, knowledge, patience and understanding of everyone here on this forum. No better cohorts could there be than on this forum right here. You all are like gold to me.
I get to tell my kids now. How lovely is that.
And having said all that ..... I have to say that Andiamo's UND is still the sweetest news I've heard all day...just not the sweetest news my kids will hear today. :)
Bless you all. You all have surely blessed me.
Regards,
Trish
My drugs aren't covered, my medical appointments and tests are covered, which is significant on it's own. I go back and forth between being grateful for this and being frustrated at the different things I've run into in the public health system since my diagnosis. Our care is free to a point and we are limited to the care that is provided. I find that to be mostly good and I'm dealing with the parts I find unacceptable.
I'm not free just yet, even though UND is a significant milestone. I need to stay that way for the duration of treatment and get through the remaining 39 weeks. Then I need to test clear six months after stopping treatment. THEN I am free.
Clearing at 6 weeks is great but not unheard of. With this virus, the sooner you clear, the better your chances are and clearing at 4 weeks is considered RVR - Rapid Virological Response - and your chances of an ultimate cure when you clear at 4 weeks are considered to rise significantly at that point. It's almost like getting Willy Wonka's golden ticket but not quite because it's still not 100% .. but getting up there at 80%+. Everybody responds differently to the drugs .. I have no secrets .. I'm on the drug trial and it's entirely possible that the trial drug has made the difference for me. Others on regular SOC at the moment on this forum have cleared sooner than me AND later .. so it's hard to say. If there was a magic formula, we'd ALL use it .. there are certain things we know help more than others but no magic formula.
Take care.
Trish
I'm not free just yet, even though UND is a significant milestone. I need to stay that way for the duration of treatment and get through the remaining 39 weeks. Then I need to test clear six months after stopping treatment. THEN I am free.
Clearing at 6 weeks is great but not unheard of. With this virus, the sooner you clear, the better your chances are and clearing at 4 weeks is considered RVR - Rapid Virological Response - and your chances of an ultimate cure when you clear at 4 weeks are considered to rise significantly at that point. It's almost like getting Willy Wonka's golden ticket but not quite because it's still not 100% .. but getting up there at 80%+. Everybody responds differently to the drugs .. I have no secrets .. I'm on the drug trial and it's entirely possible that the trial drug has made the difference for me. Others on regular SOC at the moment on this forum have cleared sooner than me AND later .. so it's hard to say. If there was a magic formula, we'd ALL use it .. there are certain things we know help more than others but no magic formula.
Take care.
Trish
Hi Trish,
Hope you are enjoying your Sunday. I forgot you up in Canada. I suppose your treatment was payed for any because of Universal insurance? Not as lucky down here....it is so insane. I lived in Europe for many years...coming back here after not having to worry about insurance for so many years was a real shock. I think I contracted the virus from An acupuncturists there. But also had a blood transfusion 20 years ago here???? But I have learned 2b is more prevelant in Northern Europe so I am swinging towards the acupuncture. But will never know and it really doesn't matter but I'm sure for those of us not really sure it is always an ache in our heart to know for sure.
Well I am just hoping the insurance will cover it. Worry about having it is bad enough!
Yes laughter is the best medicine! I work with kids and they keep me UP and laughing....
being away from them for the summer, while i am on treatment will tough though...I will need them most then. I am still thinking of getting a puppy! That should do it to! :)
Did you continue to work through treatment?
I am just so happy for you that you are free!!! and after only 6 weeks!!! WOW! Did you do anything different? Take supplememts...eat differently? What is your secrete girl!! LOLOLOL
Hope you are enjoying your Sunday. I forgot you up in Canada. I suppose your treatment was payed for any because of Universal insurance? Not as lucky down here....it is so insane. I lived in Europe for many years...coming back here after not having to worry about insurance for so many years was a real shock. I think I contracted the virus from An acupuncturists there. But also had a blood transfusion 20 years ago here???? But I have learned 2b is more prevelant in Northern Europe so I am swinging towards the acupuncture. But will never know and it really doesn't matter but I'm sure for those of us not really sure it is always an ache in our heart to know for sure.
Well I am just hoping the insurance will cover it. Worry about having it is bad enough!
Yes laughter is the best medicine! I work with kids and they keep me UP and laughing....
being away from them for the summer, while i am on treatment will tough though...I will need them most then. I am still thinking of getting a puppy! That should do it to! :)
Did you continue to work through treatment?
I am just so happy for you that you are free!!! and after only 6 weeks!!! WOW! Did you do anything different? Take supplememts...eat differently? What is your secrete girl!! LOLOLOL
I'm SO glad you can laugh about this now ... that's a really good place to be!! It bodes well for you on coping with your treatment to be able to laugh at these things. I know when my doc started telling me the side effects of the tx to expect...and he just kept going and going .. and finally I just had to ask him. "So...what's the DOWN side here???"
I'm sorry .. I can't help you with the cost of your Pegasys, I don't know what it is in the U.S. I just know that the total cost of tx drugs here in Canada for the 48 week treatment is about $20,000. I don't know the breakdown between the ribavirin and the interferon and I'm hoping someone else will jump in and tell you. They might miss the question in this thread so you might have to post a separate thread on cost of drugs to get proper feedback.
You are NOT a burden to be asking a bazillion questions...and in a forum, you get the benefit of asking everybody at the same time as you ask one person and other people can jump in with information also.
You're doing well.. you're in training like Rocky!! For the big prizefight...the virus is getting the big K-O. That's kinda how I looked at it .. with some amusement, I might add.
We ALL started out with little to no knowledge of this disease and I still have alot to learn myself. We all came here for information and support and we just stayed. It's a good place to be.
My day was AWESOME, btw...thanks :)
Good luck ongoing. :)
Trish
I'm sorry .. I can't help you with the cost of your Pegasys, I don't know what it is in the U.S. I just know that the total cost of tx drugs here in Canada for the 48 week treatment is about $20,000. I don't know the breakdown between the ribavirin and the interferon and I'm hoping someone else will jump in and tell you. They might miss the question in this thread so you might have to post a separate thread on cost of drugs to get proper feedback.
You are NOT a burden to be asking a bazillion questions...and in a forum, you get the benefit of asking everybody at the same time as you ask one person and other people can jump in with information also.
You're doing well.. you're in training like Rocky!! For the big prizefight...the virus is getting the big K-O. That's kinda how I looked at it .. with some amusement, I might add.
We ALL started out with little to no knowledge of this disease and I still have alot to learn myself. We all came here for information and support and we just stayed. It's a good place to be.
My day was AWESOME, btw...thanks :)
Good luck ongoing. :)
Trish
Thanks for the pep talk Trish...you have been so supportive since I joined, I really treasure your advice and comfort. I was half asleep and so discouraged when I wrote last night. Hence all the typos... But on the morn..the whole thing seemed rather comical! I called my doc's assistant and we both had a good laugh actually...she could not believe it either! I live in a fairly large coastal city, on the east coast....and went to a big chain....the pharmacist could not even figure out how to fax the info to the "fertility clinic" LOL. Therefore I think I was just dealing with simple incompetence. Whenever, after talking, for a half an hour, to the woman explaining it all 2 or 3 times...she still said "good luck honey I hope you get pregnant on your first try!" I was just speechless and had to laugh! Obviously the woman should not have been answering phones and dealing with such serious issues. Maybe she was the cleaning lady trying to be helpful, I don't know,,, it was like a Twilight Zone episode! LOL
In any case after telling my doc, they said, "we are going to try another route don't worry" and contacted a mail order pharmacy out of Florida... they called back within minutes it seemed... took the info, were just super nice and wonderful and competent! The woman who called me and I became fast friends, on the phone, and she even invited me down there sometime! LOL what a difference from insisting on getting pregnant! :)
So now we all await the big "OK" from my insurance Co.
I almost dropped the phone when I heard the Pegasys was $2,000 a shot a week! This was the non generic form....does that sound about right to you?? Florida has the generic but I am not sure what the savings will be but it will be something. I don't feel comfortable talking about money and don't want to seem like I am prying but I wonder if these drugs have different costs in different parts of the country...and are some insurance Co's better than others in covering?
Thanks again Trish I don't want to be a burden asking you a bazzilion questions, I am just trying to put the jig saw puzzle together. I am now formulating a nutrition program for myself pre and post...that has been keeping me busy and confident....Knowledge is Freedom! :)
Hope your day was EVERYTHING you needed it to be!!! I might not have a lot of knowledge yet about the disease but I have an open heart and shoulder to lean on whenever you need a friend to just be there and listen.
Dragon Tamer
In any case after telling my doc, they said, "we are going to try another route don't worry" and contacted a mail order pharmacy out of Florida... they called back within minutes it seemed... took the info, were just super nice and wonderful and competent! The woman who called me and I became fast friends, on the phone, and she even invited me down there sometime! LOL what a difference from insisting on getting pregnant! :)
So now we all await the big "OK" from my insurance Co.
I almost dropped the phone when I heard the Pegasys was $2,000 a shot a week! This was the non generic form....does that sound about right to you?? Florida has the generic but I am not sure what the savings will be but it will be something. I don't feel comfortable talking about money and don't want to seem like I am prying but I wonder if these drugs have different costs in different parts of the country...and are some insurance Co's better than others in covering?
Thanks again Trish I don't want to be a burden asking you a bazzilion questions, I am just trying to put the jig saw puzzle together. I am now formulating a nutrition program for myself pre and post...that has been keeping me busy and confident....Knowledge is Freedom! :)
Hope your day was EVERYTHING you needed it to be!!! I might not have a lot of knowledge yet about the disease but I have an open heart and shoulder to lean on whenever you need a friend to just be there and listen.
Dragon Tamer
I'm very confused ......do you live in a small place with only one pharmacy? I went to the pharmacy closest to me in early days .. my first doctor had given me an RX for my drugs even though we hadn't settled on a treatment date yet, it would help me gather information to make my decision. I went to the pharmacy closest to me to see if I could get the drugs there and he wasn't familiar with them. He couldn't tell by looking at the prescription and his books how many pills I'd be taking or information on the injection or much at all. He was very sincere and trying very hard .. and while I appreciated that, I wanted to deal with someone with experience. So I went to a bigger pharmacy, one of the chain pharmacies and they knew all about the drugs, had the forms to request funding for the drugs and were very knowledgable. So .. perhaps you might want to investigate a different pharmacy. I don't know how your insurance works, if you have to go where they tell you to .. but sending you to a fertility clinic seems whacked. So I'd check out other pharmacies on your own and then let your insurance company know of other options perhaps.
Strange story and I'm sorry for your frustration. The irony of sending you to a fertility clinic in your situation is a bit much to take, I'm sure. Things like this DO knock the energy out of you .. so rest up and relieve your frustrations in whatever way works for you and take good care of yourself.
Please let me know if you find other pharmacy options or if that's available to you?
Take good care.
Trish
Strange story and I'm sorry for your frustration. The irony of sending you to a fertility clinic in your situation is a bit much to take, I'm sure. Things like this DO knock the energy out of you .. so rest up and relieve your frustrations in whatever way works for you and take good care of yourself.
Please let me know if you find other pharmacy options or if that's available to you?
Take good care.
Trish
Tonight I am scared, tired and frustrated.....My pharmacist/ insurance company sent me to a "fertility clinic" because MY "normal" drug store said they did not carry the Peg/Rib..?? and I was left dumbfounded and wondering in my head what kind of people am I going to be dealing with through all of this...??....after talking to a VERY nice woman who sounded like she was circa 200 years old , from the so called fertility clinic pharmacy.......and after telling her 3 times these were not fertility drugs!!!!!! She still was insisiting I could get pregnant on the first try .....but " I could try again and do no tdespair if I don't!!! So I just gave up trying to make her understand. I knew then my meds were coming from some where else!!!! And how we might be able to adopt a child without this B;S was a mystery .... Perhaps finally the fertility clinic will there when I can use them!!!!!
A lthough how many of us wish they were????? I have wanted to adopt a child so badly!!!!! I can give a a child GOOD rich healthy life...... and now oh yes WITH a PUPPY too!!! LOLOLOL :)
Too tired Trish .....to talk more///// BUT TELL ME ANY ONE everything you can share with me PLus why oh why does this make us sooo bloody tired and what do others do to keep thier energy levels up?????? All suggestions welcome!!!
LOVE AND HUGS GOOD NIGHT!
DRAGON TAMER
A lthough how many of us wish they were????? I have wanted to adopt a child so badly!!!!! I can give a a child GOOD rich healthy life...... and now oh yes WITH a PUPPY too!!! LOLOLOL :)
Too tired Trish .....to talk more///// BUT TELL ME ANY ONE everything you can share with me PLus why oh why does this make us sooo bloody tired and what do others do to keep thier energy levels up?????? All suggestions welcome!!!
LOVE AND HUGS GOOD NIGHT!
DRAGON TAMER
Have an Answer?
You are reading content posted in the Hepatitis Social Community
A list of national and international resources and hotlines to help connect you to needed health and medical services.
Herpes sores blister, then burst, scab and heal.
Herpes spreads by oral, vaginal and anal sex.
STIs are the most common cause of genital sores.
Condoms are the most effective way to prevent HIV and STDs.
PrEP is used by people with high risk to prevent HIV infection.
