AAARRRGGGGGGGG!!!!!!!!!!!!! That stinks.
Still waiting for trial info :( GGGGGGGGRRRRRRRRRRRR!!!!!!!!!!!!!!!!!!!
Yay!!!! Confirmation is good =). Congrats on getting the info and the drug!!
Just got the call from trial coordinator. As I thought, I was in the 8-week Telaprevir group.
Soon I will receive a letter from the trial center, detailing my tx (SOC + Telaprevir for 8 wks, then SOC for 16 wks). I asked about VL results, when did I clear? She said she hasn't gotten that information yet, but will receive it soon. They aren't allowed to copy the data sheet from VTX, but she said they may put the info on a flow sheet and include it with my letter.
That's it for now. Confirmation is good : )
OMG I got a star! This is the first post I've made since the star thing. I thought I wouldn't have any stars. How does this work?
Thanks for starting this thread! I called my study site this week. My trial coord called back at a time when I couldn't answer the phone! She said she'd be out on Monday, so I guess I have to wait till Tuesday to find out something.
I will be shocked (almost as much as you, Izzy!) if I wasn't in the group that got Telaprevir for 8 weeks. I started tx Oct 2008 and finished April 2009. Starting VL of 3.6 million. UND in all follow-up tests, the last one March 2010.
Wah hoo! Thank you Vertex! And thanks to all of you here who helped me make it through tx.
I'll post when I find out something. I think I'll also do the email thing from the link you posted, Gator.
Lapis