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Vertex participants....what do you know?
I've heard that Vertex has unblinded the Phase III Advance study....I haven't gotten my results yet but some have...If you were a trial participant and have your results, would you post them here please?
Do they give you VL info?
I started the trial on Friday June 13, 2008
with a VL of 14 ml
officially ending treatment 24 weeks later on Thanksgiving Day
I'll post info when I have it....
Do they give you VL info?
I started the trial on Friday June 13, 2008
with a VL of 14 ml
officially ending treatment 24 weeks later on Thanksgiving Day
I'll post info when I have it....
Thanks for sharing, jacksb.
SVR is ours, no matter how we got there. Thanks Vertex.
Life IS good!!
SVR is ours, no matter how we got there. Thanks Vertex.
Life IS good!!
BTW
SVR is wonderful. Have always been high energy even with hep c. Now I am back to my crazy active self. I told a few good friends who rooted for me the whole way. They even had a cake with a dragon on it when I finished treatment. Life is good
SVR is wonderful. Have always been high energy even with hep c. Now I am back to my crazy active self. I told a few good friends who rooted for me the whole way. They even had a cake with a dragon on it when I finished treatment. Life is good
Hi,
I have never posted a thing but have watched for over 2 years and followed with interest the vertex trial. A little background. I am 61 with beginning cirr and had a transfusion at 1 month old. In 1970 at a birth control center in Hawaii, I found out I had elevated liver enzymes. I had my first biopsy done and was told I had non A non B hep. I was leaving for graduate school and going to Europe to study. I was told, just don't do a lot of drinking! ha! I am not a big drinker, but college,traveling,.......Later on, I had the test for hep C. No symptoms at all. And yes,positive. I heard about treatment but it was only interferon and the success rate wasn't so good, so I declined. I had my third biopsy,(had another one in there and my liver was fine). This time, things were beginning to change so I researched clincal trials.
I was in the one that Isabella and some others here are on. I began in July (yikes almost 2 years ago). I just retired from teaching but during treatment, I taught full time . I taught Special Ed in an urban high school. I had pretty minor symptoms except for one biggie. I became quite anemic very early and continued being anemic throughout . I had probably 12-14 transfusions.My rbc went to 6 and I was hospitalized. Iwas teaching school that day and drove myself to emergency. stupid. My down point during treatment came when I was told I had to do 48 weeks. Everyone I talked to kind of thought I had the real stuff. I became undetected when we all found out-was that at about 24 weeks? I cannot remember. I continued being undetected and still was after the 6 months after treatment. Now for the surprise......I just found out today I was in the control group! I am not dissapointed as it worked and I got excellant treatment. Yes, the meds were free, but at the time I had the cadillac of health benefits, so that wouldn't have been an issue. I had decided as soon as I found out I would post. I cannot thank all of you so much for your posts. You didn't know it, but you were my lifeline going through this. I now feel set free :)
I have never posted a thing but have watched for over 2 years and followed with interest the vertex trial. A little background. I am 61 with beginning cirr and had a transfusion at 1 month old. In 1970 at a birth control center in Hawaii, I found out I had elevated liver enzymes. I had my first biopsy done and was told I had non A non B hep. I was leaving for graduate school and going to Europe to study. I was told, just don't do a lot of drinking! ha! I am not a big drinker, but college,traveling,.......Later on, I had the test for hep C. No symptoms at all. And yes,positive. I heard about treatment but it was only interferon and the success rate wasn't so good, so I declined. I had my third biopsy,(had another one in there and my liver was fine). This time, things were beginning to change so I researched clincal trials.
I was in the one that Isabella and some others here are on. I began in July (yikes almost 2 years ago). I just retired from teaching but during treatment, I taught full time . I taught Special Ed in an urban high school. I had pretty minor symptoms except for one biggie. I became quite anemic very early and continued being anemic throughout . I had probably 12-14 transfusions.My rbc went to 6 and I was hospitalized. Iwas teaching school that day and drove myself to emergency. stupid. My down point during treatment came when I was told I had to do 48 weeks. Everyone I talked to kind of thought I had the real stuff. I became undetected when we all found out-was that at about 24 weeks? I cannot remember. I continued being undetected and still was after the 6 months after treatment. Now for the surprise......I just found out today I was in the control group! I am not dissapointed as it worked and I got excellant treatment. Yes, the meds were free, but at the time I had the cadillac of health benefits, so that wouldn't have been an issue. I had decided as soon as I found out I would post. I cannot thank all of you so much for your posts. You didn't know it, but you were my lifeline going through this. I now feel set free :)
Just 3 months with Telap? and 3 months od SOC...amazing...i guess ya could say you have a 3 month lead in with the telap in a sense,either way,you win the SVR prize
So much for my prediction. I just found out that I was received 12 weeks of Telaprevir.
I was initially convinced I was getting the real drug, so when at week 24 they told me I was going to treat for the entire 48 weeks, I was shocked (to say the least). I then assumed I had been in the placebo arm the entire time.
When I got the call today that I had gotten the tela for 12 weeks...I was like "what?????". Apparently I didn't respond as quickly as they would have liked, so they kept me going. Scary thought. It makes me realize now that without the tela, I may not have responded to SOC alone. It also made me realize that I'm very fortunate to not have developed any mutations. Seriously feeling like I dodged all kinda bullets with this news.
I'm so thankful to Vertex and Telaprevir. And especially to all here that helped get me to this point. Shout out to all my study buddies-------Yay!!!!!!!!!!!!!
I'm looking forward to seeing what everyone else finds out. Thanks, Gator for starting this thread.
Good luck to all,
Isobella
I was initially convinced I was getting the real drug, so when at week 24 they told me I was going to treat for the entire 48 weeks, I was shocked (to say the least). I then assumed I had been in the placebo arm the entire time.
When I got the call today that I had gotten the tela for 12 weeks...I was like "what?????". Apparently I didn't respond as quickly as they would have liked, so they kept me going. Scary thought. It makes me realize now that without the tela, I may not have responded to SOC alone. It also made me realize that I'm very fortunate to not have developed any mutations. Seriously feeling like I dodged all kinda bullets with this news.
I'm so thankful to Vertex and Telaprevir. And especially to all here that helped get me to this point. Shout out to all my study buddies-------Yay!!!!!!!!!!!!!
I'm looking forward to seeing what everyone else finds out. Thanks, Gator for starting this thread.
Good luck to all,
Isobella
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