Aa
am I crazy
I am going to drive 5 hrs this Friday tx night, to Moyock NC to meet Carol a woman I met on myspace and after talking to daily have decided we are love with the person we've been communicating with. She knows I am on tx, and my situation with sx and such. She has worked in the medical field a lot of her life is presently the main tech for an orthopedic surgeon. She has invited me up to stay in a 8 bedroom resort house at Sand Bridge Beach in Virginia. Her nephew is getting married that weekend and I am invited to that, to meet her family, 3 daughters and enjoy the beach with her and get to know each other.
We both have really worked this over in our minds and so forth. She doesn't want it to be awkward and wants us to really fall in love, not just love each other, but the whole nine yards. I have always felt we were soulmates.
We will be together not in the same room from Friday until Monday. My concerns are besides the obvious is my sx during tx, also my essential tremors rear their ugly head at a moments notice moreso through tx.
I just want to make her feel good and it was worth it and go from there.
The most I have driven since being on tx is about 45 minutes. I have never driven to Moyock NC, which is near Elizabeth City. I hope there are a lot of pitstops on the way.
I really don't want to cause her any unhappiness, or pain. I don't want to kill myself doing this also. I guess if truelove is afoot we'll get through this, I guess I was thinking when we planned this that I would be well into tx and not experiencing these sx.
Anyway, am I crazy, It is a fool that looks for logic in the chambers of the human heart.
Peace and health
This the first time I have attempted anything like this really in my life and going through tx.
I have fears and try to give them to faith, I guess the main one is what if we don't click, then I drive home. What if I am sick from tx, she said that I may have to sleep on a couch so i am not sure that I'll have my own room. I am thinking about the using the bathroom 8 times a night, excluding diarrhea.
We both have really worked this over in our minds and so forth. She doesn't want it to be awkward and wants us to really fall in love, not just love each other, but the whole nine yards. I have always felt we were soulmates.
We will be together not in the same room from Friday until Monday. My concerns are besides the obvious is my sx during tx, also my essential tremors rear their ugly head at a moments notice moreso through tx.
I just want to make her feel good and it was worth it and go from there.
The most I have driven since being on tx is about 45 minutes. I have never driven to Moyock NC, which is near Elizabeth City. I hope there are a lot of pitstops on the way.
I really don't want to cause her any unhappiness, or pain. I don't want to kill myself doing this also. I guess if truelove is afoot we'll get through this, I guess I was thinking when we planned this that I would be well into tx and not experiencing these sx.
Anyway, am I crazy, It is a fool that looks for logic in the chambers of the human heart.
Peace and health
This the first time I have attempted anything like this really in my life and going through tx.
I have fears and try to give them to faith, I guess the main one is what if we don't click, then I drive home. What if I am sick from tx, she said that I may have to sleep on a couch so i am not sure that I'll have my own room. I am thinking about the using the bathroom 8 times a night, excluding diarrhea.
I thought he said it would be from Friday till Monday. So my guess is that he will be driving home today. And he might cut the trip in two, so he might not be back until tomorrow. I guess we will have to wait for the outcome of this episode of HS love story until tomorrow..... This is almost more exciting than the outcome of a PCR. :-)
You guys. So witty. I really just pretended I had hcv so I could come here for the humor...
But seriously, HS, let us know when you're back and how it went. And if it was a bust, or she was 100 lbs heavier than her photo, we'd love to hear all about that too...
I do want to address your ribavirin reduction and lack of medical care in terms of getting procrit to you. My memory is poor by anyone's standards so I can't remember what type of doc is treating you or whether you are in a study or what. But for a physician to tell anyone, particularly a guy, with a 9.1 hgb that procrit "isn't warranted yet" makes me highly uncomfortable. Transfusion level is 8 hgb and most good doctors sorta like to do the procrit BEFORE you get there...
If it was me, I would ask your tx'ing doc, and if they say no, then your gp or internal medicine doc, to get you a referral to a hematologist forthwith. That way, THEY can use the appropriate meds to bring your blood count up and then your tx'ing folks can get you back up to your normal ribavirin dose. I would echo here what others say, you don't want to reduce your riba early in tx except as a last resort.
And if you are going to subject your body to interferon, might as well make sure you've got a fighting chance for the treatment to be effective. This is just my opinion of course, but I think its irresponsible (this word only lightly describes my feelings about it) for physicians to subject patients to the treatment drugs if they aren't going to manage their side effects in order to do everything possible to both retain patients on tx, and to make that treatment successful.
A lot of times you have to be the one to ask for specific action, like a referral to a hematologist etc. Even with my prior procrit dependent anemia, my doctor's office had already let me get into trouble and still it was me who demanded a referral over to the hema, not them who suggested it. So this happens a lot and unfortunately, we are left in a position to have to advocate for ourselves.
But seriously, HS, let us know when you're back and how it went. And if it was a bust, or she was 100 lbs heavier than her photo, we'd love to hear all about that too...
I do want to address your ribavirin reduction and lack of medical care in terms of getting procrit to you. My memory is poor by anyone's standards so I can't remember what type of doc is treating you or whether you are in a study or what. But for a physician to tell anyone, particularly a guy, with a 9.1 hgb that procrit "isn't warranted yet" makes me highly uncomfortable. Transfusion level is 8 hgb and most good doctors sorta like to do the procrit BEFORE you get there...
If it was me, I would ask your tx'ing doc, and if they say no, then your gp or internal medicine doc, to get you a referral to a hematologist forthwith. That way, THEY can use the appropriate meds to bring your blood count up and then your tx'ing folks can get you back up to your normal ribavirin dose. I would echo here what others say, you don't want to reduce your riba early in tx except as a last resort.
And if you are going to subject your body to interferon, might as well make sure you've got a fighting chance for the treatment to be effective. This is just my opinion of course, but I think its irresponsible (this word only lightly describes my feelings about it) for physicians to subject patients to the treatment drugs if they aren't going to manage their side effects in order to do everything possible to both retain patients on tx, and to make that treatment successful.
A lot of times you have to be the one to ask for specific action, like a referral to a hematologist etc. Even with my prior procrit dependent anemia, my doctor's office had already let me get into trouble and still it was me who demanded a referral over to the hema, not them who suggested it. So this happens a lot and unfortunately, we are left in a position to have to advocate for ourselves.
I saw this thread up at the top but his name isn't there....and I have to know too!! I have to know he made it back safely for one thing but also, sheesh....details, details!!!
R Glass... a swimming pool just makes it more...con-VEEN-ient....you're not quite off the hook there.
R Glass... a swimming pool just makes it more...con-VEEN-ient....you're not quite off the hook there.
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