Aa
Mono vs hsv1
I know these are 2 herpes viruses
They are different ones.
I tested negative at 10 weeks and 6 months for hsv
Then at 7.5 months tested positive for hsv 1 but got mono same exact day (which was likely incubating for weeks bc my daughter had it a month before me)
So either I got hsv1 and mono in same year or could having mono impact hsv1 blood results?!
Also dr diagnosed me with post viral syndrome I think from hsv1.
Going to a vulvodynia specialist soon and walk in dermatologist which is inheard o in Canada for bumps.
They are different ones.
I tested negative at 10 weeks and 6 months for hsv
Then at 7.5 months tested positive for hsv 1 but got mono same exact day (which was likely incubating for weeks bc my daughter had it a month before me)
So either I got hsv1 and mono in same year or could having mono impact hsv1 blood results?!
Also dr diagnosed me with post viral syndrome I think from hsv1.
Going to a vulvodynia specialist soon and walk in dermatologist which is inheard o in Canada for bumps.
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******** CLOSED DISCUSSION ********
No more comments, please.
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Well all This uncertainty is enough to drive a sane person insane.
Blood tests false negative, false positive, timing to get swabbed, typical vs atypical, post viral vs outbreak.....I will say I am going mad. No need to reply....not much else to say
Blood tests false negative, false positive, timing to get swabbed, typical vs atypical, post viral vs outbreak.....I will say I am going mad. No need to reply....not much else to say
I don't think this is controversial. Search the herpes expert forum for several discussions of false negative HSV1 antibody tests. Maybe some in the STD expert forum as well.
As I said above, I would think most of the IgG negatives would be detected by WB, so its not 10% of all people with HSV1, and it's not an issue for HSV2. I don't see this as a big deal, only an inconvenience in a relatively small proportion of potentially infected persons.
As I said above, I would think most of the IgG negatives would be detected by WB, so its not 10% of all people with HSV1, and it's not an issue for HSV2. I don't see this as a big deal, only an inconvenience in a relatively small proportion of potentially infected persons.
Why do you think this is not hsv1 bc I am atypical?
No one in my family growing up had oral herpes. I highly doubt I had it in childhood.
I guess I will never know unless I get a positive swab. Ki of puts my sex life on hold. It's been since march I have abstained.
No one in my family growing up had oral herpes. I highly doubt I had it in childhood.
I guess I will never know unless I get a positive swab. Ki of puts my sex life on hold. It's been since march I have abstained.
So bottom line Howard based on your last response, 10% of people can be infected with herpes and never find out for sure because the blood tests will always provide a false negative. Even with a WB done. Wow. How can anyone trust a negative then or it be conclusive as you so frequently say?
Great. Do you have any literature that supports this comment? Apparently, you know more than my doctors because they state that completely impossible. Not sure what or whom to believe.
Great. Do you have any literature that supports this comment? Apparently, you know more than my doctors because they state that completely impossible. Not sure what or whom to believe.
"Certain people can almost certainly be infected with herpes, but can never know because the test will always be a false positive for reasons unknown?"
You mean false negative, not positive. But exactly correct.
"I'm assuming the Western Blot will confirm the remaining 10% correct?"
I would think so, but maybe not always. Some IgG false negatives may also have negative WB.
"I think Color doesn't have HSV1."
We agree.
"I think she needs a WB to determine if in fact she even has HSV1 before drawing conclusions as HSV1 being the culprit for her issues."
This isn't unreasonable. colourful, you could discuss having an HSV WB test with your doctors. However, even if HSV1 is confirmed, I still don't think it can explain most of your symptoms.
You mean false negative, not positive. But exactly correct.
"I'm assuming the Western Blot will confirm the remaining 10% correct?"
I would think so, but maybe not always. Some IgG false negatives may also have negative WB.
"I think Color doesn't have HSV1."
We agree.
"I think she needs a WB to determine if in fact she even has HSV1 before drawing conclusions as HSV1 being the culprit for her issues."
This isn't unreasonable. colourful, you could discuss having an HSV WB test with your doctors. However, even if HSV1 is confirmed, I still don't think it can explain most of your symptoms.
That's hat the infectious disease specialist told me I had post viral syndrome from hsv1
"post viral syndrome from the initial infection of hsv1"
I don't know where you came up with the diagnosis of "post viral syndrome from the initial infection of hsv1", but I am inclined to doubt it. As I said above, I doubt you had a new HSV1 infection. If you have HSV1, it's probably since childhood. The symptoms you describe are atypical for an HSV infection and I doubt you are contagious for herpes or anything else.
If you had a negative Monospot test or an EBV antibody test that was negative and became positive, it does suggest you had mononucleosis. That could explain some but not all your symptoms. As far as I know, none of these things causes vulvodynia.
I'm so sorry you're "at a total loss", but still you're really asking for much more than is practical from any online forum, no matter how expert the advisors might be. The best I can suggest is that you see an infectious diseases specialist, if you have not yet done so.
That's going to have to be my last advice on this thread or any other. Very best wishes to you.
I don't know where you came up with the diagnosis of "post viral syndrome from the initial infection of hsv1", but I am inclined to doubt it. As I said above, I doubt you had a new HSV1 infection. If you have HSV1, it's probably since childhood. The symptoms you describe are atypical for an HSV infection and I doubt you are contagious for herpes or anything else.
If you had a negative Monospot test or an EBV antibody test that was negative and became positive, it does suggest you had mononucleosis. That could explain some but not all your symptoms. As far as I know, none of these things causes vulvodynia.
I'm so sorry you're "at a total loss", but still you're really asking for much more than is practical from any online forum, no matter how expert the advisors might be. The best I can suggest is that you see an infectious diseases specialist, if you have not yet done so.
That's going to have to be my last advice on this thread or any other. Very best wishes to you.
I am a little confused with your post Howard although I do appreciate the reply. I would kindly like some clarification...
Ok I get you don't think it's hsv1 causing everything and I so agree it is post viral syndrome from the initial infection of hsv1.
A blood test for mono was done that went neg and pos 2 months later so I assume I got infected with that over this summer.
Hsv1 I suspect I got in jan and then got multiple outbreaks which triggered post viral syndrome. Again, no classic lesions in te first 3.5 months then these bumps started appearing on thighs first then calves then tailbone then scalp then upper back and neck. There are sometimes only one and are not clustered and sometime there are 10 a few inches apart. I get a little pain in te area and itchiness before they come. I will see dermatologist for those. I think they may be from post viral or from hsv1.
I appreciate your expert opinion I am just so conflicted with my blood tests and symptoms. How will I know what's from post viral and what's an outbreak or pridone when the feelings are so similar? I am going batty. I can't tell when I contagious or not. Or if I am
I am seeing a vulvodynia specialist soon. I think chronic hsv1 outbreaks and post viral have causes my nerves to go batty and now pain and burning down there or txting or numbness is always there in waves ranging in severity.
This is not psychological.
Howard, what do you recommend me to do? I can't have sex or sexual Acticity because scared I can't tell btw OB and not or if I am having one. I am going crazy. I am a very methodical logical person but my body has been defying all logic for me. I am at a total loss.
Ok I get you don't think it's hsv1 causing everything and I so agree it is post viral syndrome from the initial infection of hsv1.
A blood test for mono was done that went neg and pos 2 months later so I assume I got infected with that over this summer.
Hsv1 I suspect I got in jan and then got multiple outbreaks which triggered post viral syndrome. Again, no classic lesions in te first 3.5 months then these bumps started appearing on thighs first then calves then tailbone then scalp then upper back and neck. There are sometimes only one and are not clustered and sometime there are 10 a few inches apart. I get a little pain in te area and itchiness before they come. I will see dermatologist for those. I think they may be from post viral or from hsv1.
I appreciate your expert opinion I am just so conflicted with my blood tests and symptoms. How will I know what's from post viral and what's an outbreak or pridone when the feelings are so similar? I am going batty. I can't tell when I contagious or not. Or if I am
I am seeing a vulvodynia specialist soon. I think chronic hsv1 outbreaks and post viral have causes my nerves to go batty and now pain and burning down there or txting or numbness is always there in waves ranging in severity.
This is not psychological.
Howard, what do you recommend me to do? I can't have sex or sexual Acticity because scared I can't tell btw OB and not or if I am having one. I am going crazy. I am a very methodical logical person but my body has been defying all logic for me. I am at a total loss.
Classical infectious mononucleosis is caused by Epstein Barr virus (EBV) and is rare in adults; almost all cases occur before age 20. However, mono-like illnesses sometimes occur not due to EBV. There are no particular tests for such cases.
I suspect you had HSV1 all along, not a new infection when your test turned positive. The IgG HSV1 test remains negative in up to 10% of infected persons, and in some of these the test may fluctuate from negative to positive and back again, especially weakly positive. What was the numerical value of the positive result? Either way, it remains clear that HSV doesn't explain most of your symptoms.
I suspect you had HSV1 all along, not a new infection when your test turned positive. The IgG HSV1 test remains negative in up to 10% of infected persons, and in some of these the test may fluctuate from negative to positive and back again, especially weakly positive. What was the numerical value of the positive result? Either way, it remains clear that HSV doesn't explain most of your symptoms.
Oh and how long would it take for antibodies to build for mono? I know hsv can take up to a year
Thanks
Thanks
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