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Avatar universal

How can this be?

I had a complete hysterectomy in 1995. I had several problems, polycystic ovaries, endomet., adhensions, tumors, The doctor recomended a complete hysterectomy, uterus, tubes both ovaries, ect...
I have been on HRT until last year, I was scared to keep taking it, and now the last year I have had pain in my lower right side. I have brought this up to my family doctor 4 different times just to be blown off. I scheduled an appt. with the doctor that did the hysterectomy to discuss this pain, and she said she thought it was just from the colonoscopy that I had had 2 years prior, and I should go see that doctor. Then she decided to do blood work to check my horome levels. They came back extremly low, which she then told me that I have not went into menopause! I had a TOTAL hysterectomy! I have had the night sweats where I would wake up drenched and have to change the sheets and my clothes, not to mention the hrt for the last 12 years. now she wants to do a ct scan. She said that it is possible that they LEFT some ovary tissue. I had a hysterectomy because she told me that I was a mess and that I did have cancer cells, I was 39 years old. What does this mean? If I had cancer cells, and they left part of my ovary, how can this be??? How can you leave PART of an ovary? I am so scared, Has anyone else had this problem? What should I do?
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Avatar universal
Thats very interesting. Yes I would be very interested in reading about this phenomenon. I had never heard of that. My surgeon said my left ovary looked good and he couldnt see or find the right one.  Maybe it evaporated hahaha.......very weird these woman bodies.
Helpful - 0
106886 tn?1281291572
Hi Madge, I am in kind  of the same boat as far as sitting for too long! Last week I irritated a ruptured disc that had been healing nicely...it is much better this week, but I am still not quite myself yet.

I will see if I can find a post when I get home from work tomorrow. It is not quite like the lung scenario you mentioned other than what we all know about regarding leaving an ovary or a good part of an ovary so that a woman can still product their own hormones, this rare ORS is essentially a "mistake" if you will. It is when microscopic ovarian cells get trapped in adhesions, scar tissue, or endometriosis (a type of adhesion really) and get missed more or less by the surgeon...certainly not intentionally, however. I am confused on what happens next, but as I recall, the cells do produce hormones and in fact can grow cysts that would only produce more hormones.  If one has been Dx with Ovarian cancer or there were cancer cells or even borderline cancer cells, you can imagine how difficult it is to get the news that not all of an ovary has been removed. I guess the word "remnant" says it best.

I will see what else I can find out tomorrow unless I get home too late...but, I will get back here! I always do!

Mary
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Avatar universal
Is it like what I described with the lungs? I can't sit very long yet, so I can't research now.  Its very interesting though.
Helpful - 0
106886 tn?1281291572
I have a few friends on the Ovarian Cancer Patient to patient site who have Ovarian Remnant Syndrome (ORS). I had never heard of it either until about five years ago. If you type in a search in the little box in the upper right hand corner of this forum you will get a ton of "hits" that all contain info from other clients who have or know someone who has ORS. It is rare, that is for sure, but it is one reason I insisted on a Complete Ultrasound when I was having all of my problems last year (turned out to be a ruptured disc, but the pain was NEVER in my back and boy, I was surely suspicious of ORS).

For those who have it or had it...hoping you are feeling better...

Mary
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Avatar universal
Go into expert forum and asl the doctor.  I will watch for the answer.
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Avatar universal
The only thing I can figure is..............
When someone has a lung removed, the other lung will grow and fill up the other empty side of the chest cavity after a bit.  If they took out ovary and left a tiny bit for horone secretions, I can see where the ovary may grow back in size.....thats how I would see it could happen. Thats an educated guess.
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