Aa
How can this be?
I had a complete hysterectomy in 1995. I had several problems, polycystic ovaries, endomet., adhensions, tumors, The doctor recomended a complete hysterectomy, uterus, tubes both ovaries, ect...
I have been on HRT until last year, I was scared to keep taking it, and now the last year I have had pain in my lower right side. I have brought this up to my family doctor 4 different times just to be blown off. I scheduled an appt. with the doctor that did the hysterectomy to discuss this pain, and she said she thought it was just from the colonoscopy that I had had 2 years prior, and I should go see that doctor. Then she decided to do blood work to check my horome levels. They came back extremly low, which she then told me that I have not went into menopause! I had a TOTAL hysterectomy! I have had the night sweats where I would wake up drenched and have to change the sheets and my clothes, not to mention the hrt for the last 12 years. now she wants to do a ct scan. She said that it is possible that they LEFT some ovary tissue. I had a hysterectomy because she told me that I was a mess and that I did have cancer cells, I was 39 years old. What does this mean? If I had cancer cells, and they left part of my ovary, how can this be??? How can you leave PART of an ovary? I am so scared, Has anyone else had this problem? What should I do?
I have been on HRT until last year, I was scared to keep taking it, and now the last year I have had pain in my lower right side. I have brought this up to my family doctor 4 different times just to be blown off. I scheduled an appt. with the doctor that did the hysterectomy to discuss this pain, and she said she thought it was just from the colonoscopy that I had had 2 years prior, and I should go see that doctor. Then she decided to do blood work to check my horome levels. They came back extremly low, which she then told me that I have not went into menopause! I had a TOTAL hysterectomy! I have had the night sweats where I would wake up drenched and have to change the sheets and my clothes, not to mention the hrt for the last 12 years. now she wants to do a ct scan. She said that it is possible that they LEFT some ovary tissue. I had a hysterectomy because she told me that I was a mess and that I did have cancer cells, I was 39 years old. What does this mean? If I had cancer cells, and they left part of my ovary, how can this be??? How can you leave PART of an ovary? I am so scared, Has anyone else had this problem? What should I do?
Trust me they took both of them . I had the first one removed in September of 2005 and the last one removed in March of 2006. I was there I had the ovaries removed. What happens is that the remaining piece attaches onto a blood supply and begins "acting" like a ovary. My GYN Oncologist said that this is very unusual and he only sees about one to two cases a year.
Are you sure they took them in the first place? Many times there is confusion as to what they actually did take. I heard that first thing from my surgeon. I have never heard of ovaries growing back.
Hello,
Wow your comment really hit home. I hate to tell you this but your story is so much like mine. I had my uterus removed in 2004 and then my ovaries removed after that on two separate occassions. I thought after my last ovary was removed in March of 2006 then I would be fairly "pain free". Needless to say that wasn't the case. I was hospitalized in September of 2006 for a very horrible bleeding ucler, and during a routine CT scan they told me that I had a huge cyst on my ovary. Stumped by this finding as my ovaries were both already removed I then contacted my GYN after my release from the hospital. After she did further ultrasounds (internal and external) it was true that during one of my surgeries for my removal of my ovaries I had such bad adhesions/scar tissue that a part of one of my ovaries was left, and therefore a cyst formed on the piece of the remaining ovary. It is very uncommon to have ovarian remnant syndrome, but it is something that actually happens. The surgeon doesn't intend to leave in part of the ovary during the surgery, but due to all the adhesions it happens. I had my "third ovary" (as I like to call it) removed in November of 2006. It was a very hard surgery for me, as I usually bounce back fairly easy from any surgery that I have ever had. I have to be honest with you though I was told that this could happen again to me, and guess what.....my "fourth ovary" is now growing and has a 3cm cyst on it at this time. I last had a ultrasound completed in November of 2007 and will have another one in a few weeks. I am 34 years old and thought that once all my "parts" were removed then my pain in my pelvic area would be gone, but I was wrong. I don't blame the doctors, but my body. I have come to terms with the fact that it is something that can be fixed, and isn't going to kill me.....thankfully.
I wish you the best of luck in your quest with this syndrome. Also a little FYI, there isn't much info on the web about this syndrome, and the info that you do find doesn't ever talk about it coming back after it is removed. Goodluck and keep me posted. Please feel free to ask me any question(s) that you may have as you may feel like you are alone in this crazy medical syndrome.
Best Wishes,
Tracy
Wow your comment really hit home. I hate to tell you this but your story is so much like mine. I had my uterus removed in 2004 and then my ovaries removed after that on two separate occassions. I thought after my last ovary was removed in March of 2006 then I would be fairly "pain free". Needless to say that wasn't the case. I was hospitalized in September of 2006 for a very horrible bleeding ucler, and during a routine CT scan they told me that I had a huge cyst on my ovary. Stumped by this finding as my ovaries were both already removed I then contacted my GYN after my release from the hospital. After she did further ultrasounds (internal and external) it was true that during one of my surgeries for my removal of my ovaries I had such bad adhesions/scar tissue that a part of one of my ovaries was left, and therefore a cyst formed on the piece of the remaining ovary. It is very uncommon to have ovarian remnant syndrome, but it is something that actually happens. The surgeon doesn't intend to leave in part of the ovary during the surgery, but due to all the adhesions it happens. I had my "third ovary" (as I like to call it) removed in November of 2006. It was a very hard surgery for me, as I usually bounce back fairly easy from any surgery that I have ever had. I have to be honest with you though I was told that this could happen again to me, and guess what.....my "fourth ovary" is now growing and has a 3cm cyst on it at this time. I last had a ultrasound completed in November of 2007 and will have another one in a few weeks. I am 34 years old and thought that once all my "parts" were removed then my pain in my pelvic area would be gone, but I was wrong. I don't blame the doctors, but my body. I have come to terms with the fact that it is something that can be fixed, and isn't going to kill me.....thankfully.
I wish you the best of luck in your quest with this syndrome. Also a little FYI, there isn't much info on the web about this syndrome, and the info that you do find doesn't ever talk about it coming back after it is removed. Goodluck and keep me posted. Please feel free to ask me any question(s) that you may have as you may feel like you are alone in this crazy medical syndrome.
Best Wishes,
Tracy
HI Mary, yes they do leave part of ovaries, to have a small amount of hormone drip from it. I would want to be absolutely positive as to what exactly they did. Find out from the surgeon. You can have pain in that area and it can most definately be intestine problem. You need to have more tests for the doctor to know whats going on. I would think if they thought there was any chance of cancer cells not being contained there would have been follow up treatment, so try not to worry. Let us know about the test results.
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