Interstitial Cystitics I can't work

[cathytn]

Does anyone know if it is possible to draw on Social Security Disablity after being told by a Doctor the you have I.C.? I know that it bothers me to the point I can't work. The only time I get relief is with pain killers and I don't like to take them unless I just can't take it any more but I know for sure I can't take them and work. I know it is a pain to get approved for SSD so I was just wondering if it has been done for IC. Does anyone know?
Thanks,
Cathy

[ducklucky]

Have to say, I disagree with you.  Elmiron does not work for everyone, actually the rate is about 35%.  My hub has severe IC and Elmiron did nothing for him.  We follow the diet religiously, and have for years, even tho he is still in pretty constant pain, even with max pain meds.  IC is now classified as a disability factor with SS.  You may have a mild case of IC, she may be worse than you.  My hub got his disability, he can't get off the couch most days, and is constantly in the bathroom all night long, sometimes he just sleeps on the toitey.  He has very bad IC with Hunners and very little bladder capacity, pretty much atrophied.  He has to take water pills on top of it all.  Understand your positive attitude, but Elmiron is not the answer for everyone with IC.  I'm glad this worked for you and that you are able to keep your job, but you don't want someone to feel like a failure if your suggestions don't work.  Take care.

[Corrkey]

I have been diagnosed with I.C for 7 years now. If you take Elmiron & cut out all the foods that cause inflammation. You will be pain free and you will also be able to work. Yes I do still get flair-ups but I am still able to work.
When I first started taking Elmiron I was taking 1 100mg caplet 3 times a day and now I am taking 1 100mg caplet 2 times a day. I know if I don't take them regularly that I do get flair-ups. I also had cut all foods that had too high of acid in them, also cut out all pops out of my diet. I had gotten the foods that can, may, and won't cause flairs off a web sight called http://www.ic-network.com/ . It has a lot of information and can help you a lot.
Correene

[sherrieP]

I'm going to have your post transferred over to the Interstitial Cystitis Forum Cathy to see if someone can help you.
Sher