IBS

[Angels1968]

I've been diagnosed with ibs.  What causes this disease

[FurballsMom]

Okay, even though much of that is very technical, that seems to be what I need to do if I can ever come up with enough money to pay for such out of pocket.  I'm certain the test will prove my case.  My nephew tested positive for Celiac, his sister tested positive for non Celiac gluten sensitivity and so did his father, my brother.  These are all first degree relatives, so I would be shocked if the genetic testing still showed me as negative for at least gluten sensitivity/intolerance.  I think I once saw a video that someone posted the link to that was talking about genetic testing.  I never figured I would ever have access to such testing.

[CalGal]

It's called genetic or allele testing. You can view the info provided by enterolab here: http://www.enterolab.com/StaticPages/TestToOrder.aspx#Genetic_testing

[FurballsMom]

Thanks, I'll definitely do this when I can afford to.  I'm sure you're right about the probability of being positive to a high degree.  I just want the "official" diagnosis, so people will listen to me.  I do eat a Celiac diet, and I am definitely careful.  Is there a specific name to the genetic testing that you're talking about?

[CalGal]

Furballsmom, consider doing a gene test for celiac disease. You can go through your doc, or do the test yourself at enterolab.com. It will give you a darned good idea of what genes you carry - major or minor. Once that's done and you present the results - which will probably be positive to a high degree - you can give it to your doc and have it included in your file which will make it 'official.'

[FurballsMom]

I had an upper endoscopy once and gastritis was found, and I was told he would do a biopsy.  I was really mad when I found out he didn't do the biopsy.  I can't get anyone to do it.  I did eliminate ALL gluten from the diet.  I definitely have outward signs with eczema that stopped flaring up when I removed all gluten and dairy from the diet.  Once I was flaring up and the only thing that seemed to be the cause was the dairy, which I didn't think I was having that much of.  So, I stopped the dairy, too, and the eczema flare up died down.  Other than this one outward sign that my PCP has seen for herself, I have no other proof that gluten and dairy are the culprits.  What makes me mad is that if I end up having to be hospitalized again in the future for some reason, I will not be given a choice about the gluten, because those people do not listen to the patients about things like gluten and dairy unless there is an official diagnosis.  Without the official diagnosis, doctors in this hospital here act like it's just some fad diet and that it's all in the person's head that gluten and dairy are such problems.  The weird thing is that they don't do this for any other types of food, but they really do seem to want to cram gluten and dairy down the throats of people who don't have the official diagnosis.  So, basically, no one is listening and I've come to the conclusion that they don't care and choose to remain ignorant.  They won't even listen to me about the eczema, even though the skin is the largest organ of the body.  They obviously make light of it and act like that means that it's "only the skin" and nothing else is happening inside of the body.  Then they wonder why I keep heading off in the direction of natural and integrative medicine.  The answer to that one is staring them in the mirror, but they don't see it.

[patient915]

Did you ever have an upper endoscopy to test for celiac disease?  Every GI doctor that I have talked to agrees the the blood test for celiac disease is not very accute and if they patient has symptoms that could be celiac disease, then either an upper endoscopy should be done or the person should try eliminating 100% of all gluten from their diet.

[FurballsMom]

I was going to say much the same thing as what that link is referring to.  Many of us actually have Celiac, even though we might test negative for Celiac.  I test negative for it, but there is absolutely no doubt that I still don't tolerate gluten and casein.  Obviously, I do not live my life according to the negative blood test.  I would be so much sicker if I did that.

Another thing to look at is Leaky Gut Syndrome.  Natural medicine is better suited for this one.  Conventional doctors have a disconnect here.  They acknowledge the overuse of antibiotics, and they will be the first to say to lay off the sugar, and they will tell you that probiotics "won't hurt you" and some might even acknowledge that a good probiotic is beneficial.  But, the best conventional doctors, even the ones who will accept an integrative approach to medicine and meet natural medicine in the middle, still do not believe that Leaky Gut exists.  Leaky Gut is right up there with Candidas and the two things are practically the same thing.  Yet, the only way you can fight Candidas is through the diet, which is very, very hard because the Candidas wants you to feed it.  When you don't, You seem to stay hungry for the foods that Candidas wants.  A conventional doctor, even one willing to meet in the middle with an integrative approach will tell you that they don't believe a person has Candidas unless the person is flat in bed in the hospital on life support and needing IV medical treatment to kill off the Candidas.  This viewpoint is not shared with natural medicine.  Natural medicine suggests that the majority of us have Leaky Gut Syndrome because of the things I just mentioned.  We start to have symptoms because of the things I just mentioned, and we start to have other symptoms.  Ever notice how the GI doctor wants to give you an antidepressant?  Well, that is because hidden Celiac and/or Leaky Gut Syndrome cause havoc on the entire body.  That brain fog so familiar to many with Celiac, especially before discovering gluten is the enemy, is the symptoms hitting the brain.  And, it's a real symptom often ignored by conventional medicine.

[Caryopteris]

http://celiacdisease.about.com/od/symptomsofceliacdisease/a/IrritableBowel.htm