Hey ya'll...I have been looking into my medical history, and I found out that the doctor who did my ureter surgery diagnosed me with Dietl's crisis. Check out this definition:
Dietls Crisis - n.
A sudden attack of acute lumbar and abdominal pain accompanied by nausea and vomiting, caused by kinking of the ureter in persons with WANDERING KIDNEY.
Its all starting to come together now. For years I've been wondering what could be the problem! Dietl's Crisis is the enigma of nephroptosis. I am going to the urologist Tuesday, and maybe I can finally get some help.
karajo -
I'm from Houston, TX...and from what I understand we have some of the leading doctors in America right here in our Medical Center. Maybe it would be possible for you to come over here? Although, even a short trip can feel like an eternity when you are in severe pain. I will keep you in my prayers.
Allie_24 -
It sounds like you're kidneys are in bad shape. I feel for you Allie. They have never checked for UPJ, but I will def. look into it. The best part is...our God is BIG and he made our bodies, he can certainly heal them.
Floating kidney is very painflu and a possible cause. Have they ever checked you for UPJ.
The above poster is right the pain does indeed radiate into the groin.
karajo
I know what you mean when you say you can not find a good urologist. It takes a lot of time to find the one that is right, that we trust and know who will be honest with us.
If I didn't proceed further with problems, I would have lost my kidney a while ago. My new uro is doing everything he can to save it, but it is tothe point now they can not do much more to save this one, the problem my other one not much better.
Hang tough both of you, I'm sending you cyber hugs hoping for the best.
Yes, it definitely sounds as though you could have a floating kidney. Of course this is a surgical percedure to correct this. The test for that is KUB upright & suspine.
Do these spasms totally shut you down? When I have them, I can't even talk. Thankfully, I don't have them everyday.
I also sometimes have spasms in the lower front. Almost in the groin. Yes, the pain radiating toward the groin area is related to the kidney.
I don't know where you are from, but I'm from the Arkansas/Louisiana border area and I can't seem to find good urology care here. I have an appt. with a surgeon in New Orleans April 1st. I hope I can hold out until then. I'm pretty sick. I appreciate your prayers for me as well. I'm beleiveing God for a miracle.
I would like to add that often times my pain radiates down into my pelvis, and sometimes feels as though it is originating in my lower pelvic region. Also, when the ureter reconstruction surgery was performed at age 17, my doctor mentioned that my kidney was loacted too far down in my pelvis. Perhaps this is a floating kidney?
Thanks so much for your responses! When I was in middle and high school, I had a few bouts of kidney stones. They put stents in my ureters, and then later reconstructed the right one because it was kinked up. For a few years after the surgery I felt fine. However, this spasming pain I have been having has been going on consistently for almost two years now. Every doctor I see wants to pass it off on kidney stones, yet they cannot see any obstructions on the IVPs, CT Scans, etc. Also I haven't passed a stone since I was about 15! I have a hard time believeing it is a stone, due to the fact that these spasms have been going on for so long. I had not yet heard of these disorders you guys suggested. I will definately check into them. Do either of you happen to know what can be done to stop and prevent this pain?
P.S) I am a woman...and a Christian ;-) I appreciate your prayers.
I know how you feel, although I haven't had spasms everyday, I have experienced them on occasion. It is worse than kidney stones. Undescribible pain!! It could be a number of things. Your kidney could be floating, you could have hydronephrosis, your renal artery could be obstructed and the blood supply is cut off intermittantly, and of coarse the old kidney stone is a possiblity. You really need some test done to see what is going on. I know how hard it is to find a good urologist. I've been to 4 myself and am not better. None of them have taken the spasms seriously. I pray you get better care than I have. I personally am going to try to get a diuretic renal gram the day my symptoms are acute as I think I have an intermittant uretopelvicjunction obstruction in my right ureter. I'm not sure if you are a woman, but floating kidneys are found in women more often than men. And the more babies you have had, the more likely your problem could be connected. Also the right kidney is affect more often than left. FYI
Praying for your healing.