I have had the same issue for 30 years. I have had an almost none functioning kidney with a stage 5 reflux in it since birth but my doctors never wanted to remove it as I was only having an infection now and again. Personally I could cope with the symtoms etc so did not want it removed. For the past year however I have had infection after infection and have been in pain almost everyday. My GP put me on a low dose of antibiotics permanently and even when my GFR reduced from 83 to 59 in 3 months she would not refer me to a urologist. She wrote in my notes after an ultrasound that 'no further action is needed'. I was even getting infections while on the antibiotics so had to take more and more. I was really depressed about it all so on xmas eve I paid £130 to go private to see a urologist and he said my kidney is probably inflamed all the time and because it is none functioning I will need it removed. I am due to have it taken out in a months time. This is my experience.....if I didn't listen to my body that something was wrong I would still be suffering. I am planning on a family in the next few years so I can't risk having any more infections. Luckily I do not have a reflux in my remaining kidney so it is protected. If you are worrying and suffering from your none functioning kidney then you need to open your mouth. No one is going to look out for you but you. If the kidney is not causing any problems then it is best to just leave it. If your blood pressure and GFR is normal then your remaining kidney is obviously doing a great job. Kidney removal is not an easy surgery and there may be all sorts of complications. If I wasn't in pain I wouldn't be worried :)
Thank you so much for replying. I will be very pleasant and non-confrontational with him at my appointment THIS MORNING! (Good timing on your reply.)
I do not have bleeding disorders nor any other medical condition. I have low to normal BP, no diabetes nor even pre-diabetes; all blood results 'normal'...other than BUN/creatinine. My only known health concerns are kidney function and kidney stones.
Thank you again
You want to be very pleasant about all this so he doesn't get defensive.
The customary procedure is usually to remove a kidney like that. Perhaps you have some health problem (such as a bleeding disorder) that makes the procedure risky. Or perhaps your doctor lacks the skill to remove one, of perhaps it is not economically advantageous to him to perform this surgery on you. You should ask him and see what he says, being nice about it so as to try to get the information without offending him. If you are not satisfied with his answer, get a copy of your records and take them for a second opinion. Some doctors will say they will mail them for you, but just say you aren't sure who you are going to see yet, and you just want to have them on hand when you decide where to go (and/or to make sure they are not misplaced).