Thanks to everyone who replied to my earlier posting of this subject.
Just for a recap: My 3 yr old daughter was was admitted to the hospital and "leading" diagnosis was discitis in Novemeber after 4 weeks of fever and what we thought was the flu, she couldnt walk and was in A LOT of pain. MRI was normal and x-rays showed some narrowing of disk space, blood work relatively normal and sed rate was 74. It took her a good 6-8 weeks to walk normal again.
End of December, she started running fever again with some congestion/cough. She ran fever off and on through January into Feb. Took her to the Dr. several times, they tried antibiotics but nothing helped her or even slacked the fever off.
Feb: admitted to pediatric hospital again. Her fever wouldnt drop below 104, complained of leg pains, cough. They did x-rays, blood work only thing was elevated Sed rate (50) and abdominal series ultrasound which they found large sludge build up in gallbladder, they referred us to infection specialist
She continued with fevers off an on through march. Specialist just wanted to watch her and see if her blood counts flucuated or not over a six week period and if her fevers would continue. They said they werent going to be alarmed until any new symptoms appeared or her blood work was way off. They told me if it came down to it they would do a bone marrow testing (which they havent done yet).
Other symptoms beside fevers: leg and back pains, sometimes arm pains, paleness, droopy eyes sometimes, tiredness, severe night sweats and she doesnt sleep through the night -she gets up crying several times, some of the fevers she had congestion and cough
The fact is my daughter is still sick, she has recurring fevers every 4-7 days still and the fever stays another 5-7 days since December. They have not given me a definite diagnosis. This is April and the fevers have not slacked off. Last thursday she came to me crying that her back and legs hurt. The next day she woke up with 103.4 fever, the fever stayed through the weekend and even with motrin it only went down to 101. She did not have any congestion but had a constant cough. I called her dr immediately monday morning and they sent me to do blood work and x-rays. The results came back, the chest x-ray showed peribronchicial markings, blood work was relatively normal: Low side of white blood count (4), increased lymphocytes count 58%, slight increase sedrate and CRP count. They also said she tested slightly positive for mono this time., they said she probably just acquired that in the past week and it had nothing to do with the other months of sickness.
I spoke with her specialist and I am waiting on a call back from them to let me know if they need to see us sooner than her May appointment date. Im not sure if this classifes as the "new symptom " they were looking for to procede with further testing.
My question is....Im still very worried that this is something more serious like leukemia or lymphoma. Any input or information would be appreciated!