Aa
lymphoma or mono
Can a doctor easily diagnosis someone with follicular Lymphoma, when they just have mono?
And when a person, over 50 years old, has mono, would they always have all the obvious symptoms of a sore throat and a fever, or can one have mono without a sore throat and fever?
Bobken
And when a person, over 50 years old, has mono, would they always have all the obvious symptoms of a sore throat and a fever, or can one have mono without a sore throat and fever?
Bobken
There is a link between Mono and Lymphoma. The Epstein Bar virus that causes Mono can also cause lymphoma. I can't remember from your previous post...did she have a lymph node biopsy?
When I was diagnosed with Follicular Lymphoma 4 years ago, my blood tests were all within the normal range. My oncologist said that happens a lot. It just wasn't advanced enough to skew my blood levels (and I was stage 3, grade 3). I had 2 different labs run pathology on my biopsies and both were conclusive for Follicular Lymphoma. My PET and CAT scans also backed it up. I do know it's very important to know for sure what kind of lymphoma you're dealing with as the treatments are tailored to the diagnosis. Perhaps she should have a second opinion?
When I was diagnosed with Follicular Lymphoma 4 years ago, my blood tests were all within the normal range. My oncologist said that happens a lot. It just wasn't advanced enough to skew my blood levels (and I was stage 3, grade 3). I had 2 different labs run pathology on my biopsies and both were conclusive for Follicular Lymphoma. My PET and CAT scans also backed it up. I do know it's very important to know for sure what kind of lymphoma you're dealing with as the treatments are tailored to the diagnosis. Perhaps she should have a second opinion?
Hi,
Thanks for replying.
I am wondering if there could be a misdiagnosis.
She is quite stable and her white blood count has now returned to normal, Yet her white deferential is all out of whack.
It's all so confusing so we just watch.
Along with her regular blood tests to monitor her, she also took another
blood test, that some use to monitor if their caner is getting worse or not. It is mostly used for testicular caner, and I am sure that its controversial, and I understand no one blood test can detect cancer. Yet with all the blood cancer marker test she took, they were all normal, as this last test was too, very normal. We found a blood cancer profile test that is quite expensive, but are thinking of having her take it this summer, as we do not want her to take a cat scan. We read that if Lymphoma patients want a chance to have a long life span, that they shouldn't have a cat scan more often that every other year.
So we monitor the best we can. Now with white blood count back to normal, we are hoping the lymphocytes will come down too. But as you said blood tests are hard to interpret even for many medical people it seems
Bobken
Thanks for replying.
I am wondering if there could be a misdiagnosis.
She is quite stable and her white blood count has now returned to normal, Yet her white deferential is all out of whack.
It's all so confusing so we just watch.
Along with her regular blood tests to monitor her, she also took another
blood test, that some use to monitor if their caner is getting worse or not. It is mostly used for testicular caner, and I am sure that its controversial, and I understand no one blood test can detect cancer. Yet with all the blood cancer marker test she took, they were all normal, as this last test was too, very normal. We found a blood cancer profile test that is quite expensive, but are thinking of having her take it this summer, as we do not want her to take a cat scan. We read that if Lymphoma patients want a chance to have a long life span, that they shouldn't have a cat scan more often that every other year.
So we monitor the best we can. Now with white blood count back to normal, we are hoping the lymphocytes will come down too. But as you said blood tests are hard to interpret even for many medical people it seems
Bobken
Sorry, I'm not much help in that area. Blood test results are often difficult to interpret, especially for someone not in the medical field (which I'm not).
I was reading a previous post of yours regarding your sister and I see you and Ken had quite a dialogue going. Ken is actually on a hiatus for a while (which is too bad as he is awesome at answering the more in depth technical questions). Are you thinking that she may have Mono but was diagnosed lymphoma in error?
I was reading a previous post of yours regarding your sister and I see you and Ken had quite a dialogue going. Ken is actually on a hiatus for a while (which is too bad as he is awesome at answering the more in depth technical questions). Are you thinking that she may have Mono but was diagnosed lymphoma in error?
Thanks for the perspective.
Do you have an opinion of how the WBC can be within the high normal range and yet the lymphocytes hold steady at 70 percent.How can that be?
Do you have an opinion of how the WBC can be within the high normal range and yet the lymphocytes hold steady at 70 percent.How can that be?
The only way to diagnose Lymphoma is by biopsy of a swollen node. They can do blood tests and scans, but these are often only used as a tool if the doctor suspects cancer.
From what I've read about Mono, there is a long list of symptoms that patients can present with, a sore throat being the most prevalent, but also fatigue, fever, headache, and swollen lymph nodes (just to name a few). I'm assuming early symptoms could result in just one or two of these symptoms, so if you just had fatigue for example, Mono probably wouldn't be the first diagnosis to come to mind.
From what I've read about Mono, there is a long list of symptoms that patients can present with, a sore throat being the most prevalent, but also fatigue, fever, headache, and swollen lymph nodes (just to name a few). I'm assuming early symptoms could result in just one or two of these symptoms, so if you just had fatigue for example, Mono probably wouldn't be the first diagnosis to come to mind.
2 Comments
Hello, I am experiencing the same and am very worried about being misdiagnosed with mono for lymphoma. I have had a lymph node in my neck for over a year now and it has definitely gotten bigger since I first noticed it. I recently (in the past two months) have been experiencing occasional night sweats, fatigue, weight loss, loss in appetite, and random small fevers. I tested positive for mono with a complete blood test CBC about 3 weeks ago but the reason I am concerned is because I never had a sore throat (only difficulty swallowing and breathing), was not bedridden for WEEKS like almost all mono patients are. I have been sharing drinks with my friends and kissing the same person for the whole time and none of them got sick which is virtually impossible because its extremely contagious. Another reason I am convinced it is not mono is because the node I am concerned about is not at all painful or tender, it is rubbery. I am getting a biopsy within the week but I just want to know what to expect. Anyone have any input?
I also received a CT which indicated "multiple reactive lymph nodes" but I read up on that and the causes and symptoms of that were not really aligned to my health.
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