Hi Misty, I'am facing something very similiar, choledochal cyst
w/ dilated ducts through out liver and bile duct, wasted soo much
time lookiong at my panc!!
Can you right me, they have no idea yet, just had ecoscope w/ ultrasound
had about 5 biop's
would love to speak with you.
or georgie430 hotmail.com
the @ sign goes between the 430 and the hotmail
but I'm sure you know that
With all the best and I look foward to hearing from you PLEASE
Denise in NY
I just had an endoscopic ultrasound. The doctor who did the EUS said the common bile duct is diffusely dilated. I was told I might have a choleductal cyst and possibly Caroli's disease. I was also told it might be scar tissue. The doctor is planning to do an ERCP and additional biopsies. I know biliary cysts are rare, and there is a danger of cancer developing in them. I'm hoping for just scar tissue, but my regular GI doc got me nervous when he gave me literature to read on choleductal cysts and bile duct cancer. Can an ERCP give a lot more information than the EUS? Will someone be able to definitively diagnos this properly? Because if it is indeed a choleductal cyst, from what I read...it should be taken out.
Thanks for any information you might have.