Feeling hot without real fever??

[mochamommy0816]

Hello, all.  I have been dealing with autoimmune issues for about 15 years now.  I never got a formal diagnosis of anything other than fibromyalgia.  I've always tested negative for the lupus antibodies, though have had ANA's as high as 1280 and as low as 40.   I am on plaquenil and every now and then steroids to get me through some of the rough patches.   I wondered if anyone gets bouts of feeling hot/inflammation all over when going through a flare?  Not really a fever, per the thermometer, but just feeling like you have a fever? I don't really know any good way to describe it.  I feel achy and hot all over, my skin is hot to the touch , and sort of flu-like, but the thermometer always registers as no fever.   Anyone else?

[Binky12]

I think there is much truth to this! I agree 100% that this could very well be a huge part of why so many people are being diagnosed with  these types of conditions! or being misdiagnosed period. I think it is becoming an epidemic and what would the doctors say if we even mentioned CHEMTRAILS? They would tell us to take off our tin foil hats!  I have been blaming it on CHEMTRAILS for awhile now, I suffer with flu like symptoms 24/7. They have diagnosed me with so many conditions now I have lost track. I truly feel for you all, and sure hope we can get help soon! I also want my life back!

[Ranesmee]

Ditto, I could not have said it better!  People think I am the luckiest person in the world but they would not last a day in my shoes.  For me the waves of pain/worst fever breaking feeling is daily and you explanation of stressful or when I have to do physical work, it seems to be all day long.  Like my thermostat is out of whack so I've been in bed for a little over three years.  The hormones I take have helped with the pain and I an having about a 15-30% reduction in the events but that is because the hormone cream I can only take every other day! there are days that I'd like to fill my syringe with Premarin and use the whole tube!  Stop the insanity and until I found this board, I'd thought I was half crazy!  My Husband is so understanding, am I a lucky lady <3

[Ranesmee]

Everyone thinks I am 27 or maybe 32, I am 51.  There has to be something that is wrong with me because I have a number of diseases including Interstitial cystitis, Ancyolosing spondylitis, Reactive Arthritis, Fibro, two thyroid cysts, my thyroid seems normal but a little hyper, my bowels don't move but I got put on pain meds for my arthritis's, began having nausea so the dr kept raising my pain meds til one day I was told I was on the second highest dose in the State.  Lost over 120 lbs and got off the meds because I was given Remicaid treatments so I didn't need the pain meds but had a tripple bypass at the age of 47 (three <3 attacks, now a bad heart)' most likely I was told from the number of drugs I've been put on.  Had to go to my Dr. And tell him I could not take the burning, it was like breaking a fever and it seems to happen often throughout the day.  Also I had hurt my leg and there was a crushed bone that never healed, I was mostly in bed for three years until my dr put me on A low dose of Premarin and Progesterone.  This I had to beg for because of my heart issue but I could not handle the constant "breaking fever" feeling and sweating if I had to walk or stand for a few mins.  Now that I am on the hormones my leg seems to not hurt and I hope the darkened area won't show up on the X-rays like it has for years.  I'm out of bed but it's sill the breaking a hard sweat feeling that is really a painful feeling, it makes me think I'm going insane because all this going on is too much.  Though an endocrinologist is running blood tests but I don't know what for?  Also I have an appt. with him in a week or two.  Honestly I'm praying it's not Lupus, but a distant Aunt had the disease.    At least I am out of bed.  People at my church think my life is perfect and that I am not really sick, they say you look so cute and you are so lucky things are easy for you.  What they don't know is I eat between 500-600 cals. A day and still can't seem to get off the last 70 pounds.  What ever could this be! They say it is not my thyroid?

[Judj]

Is it all over your body or in spots?

[antiquebuff]

I have had this since I was 45 and I am 61 now...I do not test pos. for Lupus but Drs say I have it.  The only med I have found , and I have been on a lot , is Ultram....does not work for a lot of people but it does for me....the pain I have , the feeling sick all the time like you could throw up...muscle aches, no sleep...feels like your body is burning on the inside all the time...If you have not tried it ask your Dr. about it....I have tried so many meds.  I am in constant pain.....but with the Ultram I can function some ...so I wanted to suggest it ....anything that may help...I feel for all that have this.

[PepperoniPizza]

Hello, out there I have the exact same issues I bounce up and down and go from feeling good to crappy to ok and back again.  I never know how I am going to feel and it is effecting my sanity.  I have been diagnosed with lupus, chronic fatigue pots and fibromyalgia.  My quality of life ***** I stopped working carry water and sugary items with me everywhere I go and stick close to home as I never k ow how I will feel.  Any suggestion on how to live like this?