Feeling hot without real fever??

[mochamommy0816]

Hello, all.  I have been dealing with autoimmune issues for about 15 years now.  I never got a formal diagnosis of anything other than fibromyalgia.  I've always tested negative for the lupus antibodies, though have had ANA's as high as 1280 and as low as 40.   I am on plaquenil and every now and then steroids to get me through some of the rough patches.   I wondered if anyone gets bouts of feeling hot/inflammation all over when going through a flare?  Not really a fever, per the thermometer, but just feeling like you have a fever? I don't really know any good way to describe it.  I feel achy and hot all over, my skin is hot to the touch , and sort of flu-like, but the thermometer always registers as no fever.   Anyone else?

[karajo]

I'm almost certain the treatment is antibiotics on a long-term basis.  Am I wrong on that?

Does anything help, like staying away from cokes and artificial colors?  HAve you tried cranberry pills?

[Shortie234]

not much doing for the cystitis.  It's not an infection, but a condition of a think liner in bladder so it causes pain and frequent urination...
other then pelvic pain, don't think it causes much of anything else I feel... :(

[karajo]

what are ya'll do for the cystis?  It's possible that your problems or at least some of them are realted to that.

[helyanna]

I have hot and red  face as I had fever when I am dehydrated. I am often dehydrated.

[Shortie234]

Hi.  I have the exact same thing.  I have been sick for almost two years.  Get exactly what you describe.  I feel hot to touch and am achy but no fever to be registered by thermometer.  My doctor keeps saying it's in my head.  But I have IBS, interstitial cystitis, esophageal refulux, and I have extreme fatique, after a day of work, I hurt so bad all over, my hands, legs, neck, back, basically whole body.  I barely have energy to do daily functions on most days.  I have basically cut work down to once or twice a week which makes things hard.  Blood work is normal, had ANA test normal, been tested for Rheumatoid factor, normal, no one knows whats wrong.... Please let me know what happens with you.... fibromyalgia has been thrown around by walk in clinic docs, but I haven't gotten anywhere... I know something is wrong... I am 37 and living like i'm 85... tea, rest, no energy for anything, always feeling tire and unwell...

[karajo]

Have they checked your liver out real good?  Lab work and ultrasound???

Another thing you can try is a good probiotic.  Along w/ some cutting back (and or) illiminating sugar in your diet.  For the sinus problems, you could try a nettie pot.  Be sure and use distilled water along w/ some salt.  They recommend twice a day.