2nd Hand Lyme Lab warnings

[motox320]

I may have Lyme, but I am not CDC positve.

I do agree that the CDC test is right if you have a positive result, but may not be always right if negative.

I was negative on the CDC.

My LD, send a blood sample from me to an un-named Lyme lab. It came back postive based on there results.

I questioned this.

Here is the rest of the story.

Another person took 5 samples of there own blood at one setting, and sent them out to this place from different locations.

The tests came back different.  There is something wrong as this was all from one person, same blood draw time.

I do now not trust 2nd hand Lyme labs.

Some of them may be good. I am a Lyme supporter, dont get me wrong.

But if these labs are so good, the CDC could easily do a inexpensive study of these tests and vilidate them.

As the CDC there test also says they should not be used as diagnostic purposes.

There is a reason you have to pay cash 1st and most insurance compaines will not pay for these tests.

Also, why insurance wont pay for chronic Lyme, beacuse it cant be proved.

In end, the CDC needs a better test, and I think many of these 2nd hand Lyme labs are not accuate at all.

[JackieCalifornia]

You say:  "But if these labs are so good, the CDC could easily do a inexpensive study of these tests and vilidate them."

Why do you assume it would be easy and inexpensive?  And why do you assume the CDC knows everything?

What happens when you check the oil in your car?  The dipstick doesn't light up FULL or EMPTY:  there is a little hatched part on the bottom that you have look at to decide whether it's time for oil.  That is a judgment call.

All of medicine is a big judgment call.

The MDs who believe the CDC/IDSA view on Lyme as being hard to get and easy to cure are believers in easy and inexpensive diagnosis and treatment.  So ... how's that working out?

If you don't like the '2d hand Lyme labs' (I assume you mean labs like IGeneX), then you have the right and privilege to go to an MD who doesn't use them.  You might not like the diagnosis or the outcome, but hey, at least it was cheap.

Isn't there an old joke about somebody complaining about the poor quality of the food at an all-you-can-eat buffet, but when it was suggested that he eat somewhere else, he replied, 'Why would I do that?  Where else can I get so much food for so little money?'  You pays your money, and you takes your choice.

[rlanham]

I am sick of wasting money on physicians who cant think out side the lab paper work.
Just because they did not see a bulls eye and the test are neg they do not go any further.
Doesn't matter if you have every symptom in the book or worse.
Florida is full of these kinds of physicians.