2nd Hand Lyme Lab warnings

[motox320]

I may have Lyme, but I am not CDC positve.

I do agree that the CDC test is right if you have a positive result, but may not be always right if negative.

I was negative on the CDC.

My LD, send a blood sample from me to an un-named Lyme lab. It came back postive based on there results.

I questioned this.

Here is the rest of the story.

Another person took 5 samples of there own blood at one setting, and sent them out to this place from different locations.

The tests came back different.  There is something wrong as this was all from one person, same blood draw time.

I do now not trust 2nd hand Lyme labs.

Some of them may be good. I am a Lyme supporter, dont get me wrong.

But if these labs are so good, the CDC could easily do a inexpensive study of these tests and vilidate them.

As the CDC there test also says they should not be used as diagnostic purposes.

There is a reason you have to pay cash 1st and most insurance compaines will not pay for these tests.

Also, why insurance wont pay for chronic Lyme, beacuse it cant be proved.

In end, the CDC needs a better test, and I think many of these 2nd hand Lyme labs are not accuate at all.

[motox320]

Im not trying to argue or get any upset.

But you saying that link is bluster intent

The whole article is referenced from medical books. Yes the purpose of the article is to make people look wacko which you aggeed with. BUT, then you should agree that the whole purpose of all the other Lyme sites is too make you think you have Lyme.

Its sad, Lyme needs to be studied more, but as far as that artilce
it was referenced good.


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Krause PJ and others, Tick-Borne Study Group. Reinfection and relapse in early Lyme disease. American Journal of Tropical Medicine and Hygiene 75:1090-1094, 2006.
Seltzer EG and others. Long-term outcomes of persons with Lyme disease. JAMA 283:609-615, 2000.
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[JackieCalifornia]

In my view, the real problem is that the docs and scientists aren't working together, and that hurts us, the patients.  All of us.

The link you posted is a sad collection of bluster intent on labeling truly ill people as suckers or wackos.  I don't know if you mean to endorse that view, but you're entitled to your opinion.  I just don't agree with the statements made in that article. It's a free country.

[motox320]

http://webcache.googleusercontent.com/search?q=cache:-dKlKcQJ74EJ:www.quackwatch.org/01QuackeryRelatedTopics/lyme.html+chronic+lyme+disease+treatment&cd=2&hl=en&ct=clnk&gl=us

[motox320]

"You might not like the diagnosis or the outcome"

this is what I mean, do people want to have Lyme or something?

[motox320]

If I would of posted saying how I think the CDC ***** and the 2nd hand lyme Labs are the best, you guys would of been cheering me, because that what people want to believe.

Maybe they are right, but its been years now and they still are private.

[motox320]

"The CDC has done hundreds of studies, using collections of well characterized specimens, to arrive at the recommendations it makes concerning the diagnosis of Lyme disease. What they recommend is the result of good science and can be trusted. However, doubts have been sowed by uninformed patient advocate organizations; such doubt are unfounded since the CDC recommendation have been verified independently and are widely accepted by various international bodies. Although diagnostic procedures can always be improved, no test can -- or should-- demonstrate Lyme disease in individuals who don't have the disease, but simply think that they do based on the erroneous information that they get from unreliable internet sources.

Neither the CDC nor the FDA are "police" organizations. They are constrained to operate under rules and regulations mandated by the Congress. "


My point is, I know somoene who send 5 of the same samples to the same lab and got 5 different test results back.

I have the paper work to prove it.

I am a HUGE lyme supporter, and have it myself, but there is a reason why insurance companies dont cover visit, medicine.. for chronic lyme

as far as the oil on the dip stick.... its either there or not...