I think one of the confusing factors for docs not well-versed in Lyme is that the different strains of Lyme can have different symptoms and effects.
I kind of had a hazy notion that it might be so, but hadn't focussed on that as a diagnostic and treatment issue until I read the LymeNet Europe post referenced above about B. afzelii, which is not common in the Western hemisphere, it seems. Wiki says there are 30 *known* species of Borellia ... at least the the part of wiki I could see before the blackout screen descended ... and the symptoms and effects vary signficantly.
A good doc will engage in a discussion of the different effects of various strains, or be willing to learn more about it if you open the door for them, esp. if it's published in medical journals. :)
I wonder if any of the labs does testing for this strain? My Lyme doctor is in Ohio, where I will be moving back to ere long. She mentioned further testing once I get medicaid. I've applied for medicaid here in IN, that doesn't cover a doctor or testing in Ohio, will have to do the paperwork again once I move. Delays, delays...But what the heck, it hasn't killed me in over 40yrs, I don't expect it to soon.
Bob,
I just did a search for acrodermatitis chronica atrophicans, as I'm sure you have done, and wonder if you have seen the postings at
www [dot] lymeneteurope [dot] org / forum / viewtopic [dot] php ? f = 6 & t = 491
[need to take all the spaces out and replace [dot] with a period, as usual.]
Scientific and pithy, but thorough and thoughtful. Might be of interest --
Be sure to let us know what your test results are --