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BCA Clinic in Germany VS US Doctorss

Hi all,

I’ve been reading this forum for the last few years and It’s been a fantastic source of info as well as support on coping with this disease and it’s many complexities.

I’m been suffering from Lyme’s for the last 10 years or so and have tried a variety of antibiotics and herbal remedies.

I’m currently living in London, UK and currently exploring ILADS, LLMDs abroad. I’m currently with the a Hospital with the UK but am looking for expert treatment elsewhere.

I’m read about the BAC (Borreliose Centrum Augsburg) clinic in Germany and they present themselves well and appear to have an excellent expertise in treating Lyme and attend / host ILADS conferences. I’m almost certain I’ll take steps to make an appointment with them but was looking to see if I can find feedback from actual patients as it’s quite an investment to go with them in terms of both time and money.  

I was curious to know how people felt about them and what people’s experiences are (couldn’t find anything recently on the forum).

I’m also looking at doctors in the US and curious to know if people have chosen between or two or have had experiences with both to compare.

Many thanks and I look forward to hearing from you.

Ade
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Avatar universal
Hi!
I'm glad the info was useful to you!
Good to know I didn't waste my time!
I'll have a look at your new post.  :)
Helpful - 0
Avatar universal
In case it's of interest to anyone, I emailed a German doctor who carries out blood tests at Infectolab, part of the Borreliose Centrum Augsburg (BCA), with the following question:

When you test for Lyme disease at your lab, do you look for both European strains as well as North American ones?

He responded as follows:

Yes, we look for all pathogen strains. So US patients and Igenex send me also samples for doing tests (and many are positive there!)
Helpful - 0
Avatar universal
Hi Blacksea!

I think the above chain might be useful to you.

I'm currently researching the German clinic myself, & Youvegottobekidding has been really helpful in this regard. Youvegottobekidding has also noticed improvement as a result of treatment there.

It seems the BCA tailors everyone's treatment to their individual needs, & they are able to help with Herxing as well.

Of course, distance is a factor for you &, as was said in your chain, there are good LLMDs in the US too.

Hope that helps!

James
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Avatar universal
Having spoken with one of the doctors in Augsburg, I thought it might be of interest to people to know that the BCA's normal approach - what he called their 'working principle' - is to meet for a first appointment to discuss symptoms and former reports for 1-2 hours. The doctor can also carry out any outstanding tests after this consultation.

Treatment courses are decided upon and discussed with the patient at a second appointment two weeks later, when test results are ready. At this time, the patient is prepared for treatment (ECG, liver, kidney, ultrasound).
This second appointment normally takes place on a Monday, and the patient starts treatment the same or the next day.
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Avatar universal
How reassuringly ... Teutonic.  :)

Seriously, that sounds very reasonable and organized.  

Glad to hear you are making progress in figuring out the order of battle.  

Keep us posted!
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Avatar universal
Just to let you know, that's the usual process for German residents.
If you're going from abroad, you can send the blood by courier (you have to get them to post you special test tubes for storage of it) and arrange to go when the results are already in, which is what I did.
That way you don't have to fly twice or wait about in Germany for 2 weeks doing nothing.
Then it goes as follows,  
initial consultation on a Thursday (lasted 2 hours for me) during which the doc listens to your entire life story and answers literally any question you care to ask him.
Then the follow up one is on Friday, where he lays out the treatment options he recommends and you decide together what you'll do, and ask him any question you want (lasted 2.5 hours for me).
You have those tests you mentioned for the rest of Friday then start treatment at 8am sharp on Monday morning, don't dare be late because they're German and will not find it funny!
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