I went through an MRI and Nerve Conduction testing which all came back normal. I agree with Jackie that it's a good idea to rule things out!
I had all of those exact symptoms that you mentioned, along with damaged knee cartilage requiring surgery on both knees in one year. I'm on herbals under a LLND's care and along with that a low dose elavil each night for the nerve pain. It has started to subside. My neuropathy was bad and also included piriformis syndrome to the point where I really could not sit for more than 15 minutes at a time. It was very difficult. Good luck with getting treatment started. As the others on here I'm sure mentioned, find a LLMD or LLND!
I am not seeing in your profile or recent posts where you are located -- what state or area. That can make a big difference in how the doc approach a potential Lyme diagnosis. You comment above that 'our system here is not privatized' sounds like ... Canada? UK?
Despite a rocky start by the docs, it sounds like you are making progress in both diagnosis and treatment now. That's terrific! Keep us posted --
I suppose I will seek out a LLD, it might be hard though because our system here is not privatized.
Wow. I wish I could have received such thorough testing. I have to wait FOREVER to get an MRI. If that shows nothing nothing I hope they check me for autoimmune problems. I think the only way they will test me for lyme is after they tested everything else. If I get to that point I will then seek treatment for lyme. If I can't get an LLD I will have to find some alternative treatment.