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10506901 tn?1431350757

Does this sound like Lyme?

So I have been posting about this for a while, but I will post again. In August I started having tingling in my hands with   every inhale. This progressed to being a constant thing and then began in my feet and would sometimes go up my leg. This varies in severity and is usually not painful but VERY annoying. Most recently this has become very noticeable in my lips and I get random stabbing pain in my eyes,face and tongue. My mouth also feels weird. Kinda numb and tingly like when you eat MSG. This seemed to start at the same time as a virus back in August. Sometimes it feels like my neck/spine is trembling. I have had blood tests for thyroid, diabetes, and vitamin deficiencies, all normal. I am waiting on an MRI in December and also the results of evoked potentials. Any one have these symptoms? Insights? I am 23 and female.
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Avatar universal
I went through an MRI and Nerve Conduction testing which all came back normal. I agree with Jackie that it's a good idea to rule things out!
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Avatar universal
I had all of those exact symptoms that you mentioned, along with damaged knee cartilage requiring surgery on both knees in one year. I'm on herbals under a LLND's care and along with that a low dose elavil each night for the nerve pain.  It has started to subside. My neuropathy was bad and also included piriformis syndrome to the point where I really could not sit for more than 15 minutes at a time. It was very difficult. Good luck with getting treatment started. As the others on here I'm sure mentioned, find a LLMD or LLND!
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Avatar universal
I am not seeing in your profile or recent posts where you are located -- what state or area.  That can make a big difference in how the doc approach a potential Lyme diagnosis.  You comment above that 'our system here is not privatized' sounds like ... Canada?  UK?
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Avatar universal
Despite a rocky start by the docs, it sounds like you are making progress in both diagnosis and treatment now.  That's terrific!  Keep us posted --
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10506901 tn?1431350757
I suppose I will seek out a LLD, it might be hard though because our system here is not privatized.
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10506901 tn?1431350757
Wow. I wish I could have received such thorough testing. I have to wait FOREVER to get an MRI. If that shows nothing nothing I hope they check me for autoimmune problems. I think the only way they will test me for lyme is after they tested everything else. If I get to that point I will then seek treatment for lyme. If I can't get an LLD I will have to find some alternative treatment.
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