Aa
Does this sound like lyme?
I am a 20 y/o male, whose been having health problems for 3 years. I have muscle swelling (inflammation), muscle twitching, brain fog, swallowing difficulties, balance problems, and fatigue. I don't ever remember having the characteristic bullseye rash. I've been tested for everything under the sun including Lymes (Though I'm not sure how accurate the tests in Canada are). I'm really not sure what is going on, But I was hoping someone who has been through something similar can maybe help. Thanks
Another good thing since you are mentioning vitamins, is actually flushing with vitamin C.
Full cell saturation with C using buffered powder as a body flush.
obviously to be at home because your digestive tract certainly reacts to this, but thats part of the flushing.
Full cell saturation with C using buffered powder as a body flush.
obviously to be at home because your digestive tract certainly reacts to this, but thats part of the flushing.
Ok this is my own cockeyed conclusion if you will, but its my body and I know what works for me. It seems the Lyme likes fat cells.
Since I was initially diagnosed with Lyme I have struggled to maintain a body weight I'd like. I have carried about 25 extra pounds.
Every time I would go on a diet, I would get about 4-5 lbs in to weight loss and BANG Id have my Lyme symptoms flare up !!
It seemed to me that perhaps the Lyme was living or dormant in fat cells, when I would diet and start to break down fat cells I would have a reaction. I had triggered symptoms at least ten times, and it was at the same point almost every time !
After my last attack in Oct, and adding the Peroxide IV treatment to my Doxy regimen, I was able to loose 18 lbs without any Lyme symptoms !!! In fact I think the loss of fat cells, during doxy and HP therapy may have also been part of a good combo.
Since that weight loss I have fluctuated quite a bit up and down, depending on how I behave, but still no trigger on the symptoms when I go down. Something has changed for the better, or at least that how it seems for now.
Since I was initially diagnosed with Lyme I have struggled to maintain a body weight I'd like. I have carried about 25 extra pounds.
Every time I would go on a diet, I would get about 4-5 lbs in to weight loss and BANG Id have my Lyme symptoms flare up !!
It seemed to me that perhaps the Lyme was living or dormant in fat cells, when I would diet and start to break down fat cells I would have a reaction. I had triggered symptoms at least ten times, and it was at the same point almost every time !
After my last attack in Oct, and adding the Peroxide IV treatment to my Doxy regimen, I was able to loose 18 lbs without any Lyme symptoms !!! In fact I think the loss of fat cells, during doxy and HP therapy may have also been part of a good combo.
Since that weight loss I have fluctuated quite a bit up and down, depending on how I behave, but still no trigger on the symptoms when I go down. Something has changed for the better, or at least that how it seems for now.
I am no longer looking for a DR to treat my Lyme disease, because I now consider it to be manageable. I do not say cured and at this point do not know it it will ever be cured . I am however feeling better about it than ever.
For me the doxy works great, and as I say having spoken to people who have been treating Lyme for years I have less side effects than them.
The peroxide oraly (food grade) doesnt seem to do anything, you need the IV for it to work. The thing I liked about taking peroxide, and lipoic acids was that there were no side effects .
For me the doxy works great, and as I say having spoken to people who have been treating Lyme for years I have less side effects than them.
The peroxide oraly (food grade) doesnt seem to do anything, you need the IV for it to work. The thing I liked about taking peroxide, and lipoic acids was that there were no side effects .
It sounds as if you have had awful experiences with unscrupulous doctors, I am sorry to hear about that.
Have you contacted Ilads to ask for a doctor recommendation in your area? It must be possible to find a decent doctor who doesn't charge that much? I do agree you end up paying a lot for lyme treatment, but that sounds terribly extreme.
As far as doxy goes, I have been told and also read in many places that it creates a hostile environment for borrelia, and that triggers them to form cysts and go into hiding. That means you feel better, but as soon as you stop the doxy, they all come out again and start partying!
I also read that hydrogen peroxide does the same to all spirochetes (i.e. force them to make cysts instead of dying), but that was on the internet and I don't know how reliable the source was. I was prescribed hydrogen peroxide mouthwash by my lyme doc as I had lots in my mouth giving me periodontal disease, so maybe it really does kill them.
Have you contacted Ilads to ask for a doctor recommendation in your area? It must be possible to find a decent doctor who doesn't charge that much? I do agree you end up paying a lot for lyme treatment, but that sounds terribly extreme.
As far as doxy goes, I have been told and also read in many places that it creates a hostile environment for borrelia, and that triggers them to form cysts and go into hiding. That means you feel better, but as soon as you stop the doxy, they all come out again and start partying!
I also read that hydrogen peroxide does the same to all spirochetes (i.e. force them to make cysts instead of dying), but that was on the internet and I don't know how reliable the source was. I was prescribed hydrogen peroxide mouthwash by my lyme doc as I had lots in my mouth giving me periodontal disease, so maybe it really does kill them.
Hi stargazer,
Here are the doses
Magnesium-I take none, but I don't have muscles twitching. I bath in espom salt with magnesium.
- Mag helpswith pain and twitching adn poor coordination and all mental problems, anything from confusion and bad memory to depression and anxiety. You start with 400mcg daily and if you feel an improvement but still have these symptoms, you can build up to 900mcg a day.
Epson salts baths are a good way to absorb mag but I don't know who you figure out what does you are on this way.... anyone else know?
BTW I dopn't take epsom salts because I have messed up sulphur metabolism (that's rare, I think it only happens to people with a lot of borrelia in the intestine and very messed up digestion)
Vitamin B12 100mcg,
I took 15,000mcg sublingual tablets, daily
It' wasn't enough to I got injections instead, 5,000mcg twice a week. That was too much!!! Which is not dangerous, but a waste of money (and hurts your bottom). If you take the tablets you shold probably get the right amount, teh very best brand is Jarrow.
B6 100mg, with PABA 100mg
That sounds fine, you don't really need super doses of B vits, but it is best to take a B complex containing all of them. Again, Jarrow B right complex is a good one.
Vitamin B6-100mcg
Vitamins A-10,0000 IU including Omega 3. (I also adds olive oil to my foods)
This is the max safe dose of vitamin A, so don't go higher than this.
Apparently olive oil doesn't have much omega 3, you get lots more from linseed oil and rapeseed oil. My doc told me to get capsules of fish oil and take the max dose on the bottle, and eat linseed oil too (but I cannot get it in Sicily, here it is olive or nothing). You need really good brands of fish oil, I use Higher Nature which I think is a good one. I also once got pure krill oil, which I think is also very good, particularly as it has a very low mercury content.
Vitamin C-1,000mg
That's the bare minimum, I take 9,000mg a day!!!
It is needed by your immune system, by your adrenal glands which make cortisol (which is our natural anti-inflammatory and also essential to give you energy and keep your thyroid gland working and to keep the levels of all your sex hormones high enough) and thirdly, needed to repair connective tissue, which is constantly being damaged by lyme spirochetes.
When we have lyme disease we need extra C for all these things.
If you want to take more, you need to buy cuffered, otherwise you will get diarrhoea, and you build up by increasing extra 1000mg every 3 days, if you get tummy upset then that is your maximum dose.
Vitamin D-4,000 IU with 600mg Calcium
My doc prescribed 2000IU daily of D
I take 1200mg daily of calcium but that is because I am allergic to dairy, I think if you do eat dairy then that dose should be fine.
Zinc-60mg
perfect
Co-Q10-200mg
I was prescribed 60mg daily, but the absorption rate of Co Q 10 is extremely variable. The brand the doc prescribed me is absorbed 3 times more efficiently than normal Q10. There are several version of Jarrow coQ10 that are also this type, you really feel the difference in energy takig them (just have the dosag it says of whatever pack you buy). I get much more benefit from taking a lower dose of good stuff than a high dose of the ordinary type.
Probiotics-I take none, every time I tried, it give me digestive trouble.
Probiotics nearly always have either lactose or fructose (also called FOS) to keep the bacteria alive. Many people with lyme have problems with these, usually fructose (I did read 40 percent of us) but I think some have problems with lactose.
Also some of us have allergies to yeast.
It is possiblte to find bacterial only probiotics with no sugar. But beter quality ones usually do have something - see what is in the ones you have taken adn if it was fructose, try lactose ones, or vice versa. If you do need ones with no sugar, you may need to look on the inernet instead of just asking at the local pharmacy. I've used ones called "Pro bio inulin free" by Kirkman, which I found very good indeed.
Hope that all helps!
Here are the doses
Magnesium-I take none, but I don't have muscles twitching. I bath in espom salt with magnesium.
- Mag helpswith pain and twitching adn poor coordination and all mental problems, anything from confusion and bad memory to depression and anxiety. You start with 400mcg daily and if you feel an improvement but still have these symptoms, you can build up to 900mcg a day.
Epson salts baths are a good way to absorb mag but I don't know who you figure out what does you are on this way.... anyone else know?
BTW I dopn't take epsom salts because I have messed up sulphur metabolism (that's rare, I think it only happens to people with a lot of borrelia in the intestine and very messed up digestion)
Vitamin B12 100mcg,
I took 15,000mcg sublingual tablets, daily
It' wasn't enough to I got injections instead, 5,000mcg twice a week. That was too much!!! Which is not dangerous, but a waste of money (and hurts your bottom). If you take the tablets you shold probably get the right amount, teh very best brand is Jarrow.
B6 100mg, with PABA 100mg
That sounds fine, you don't really need super doses of B vits, but it is best to take a B complex containing all of them. Again, Jarrow B right complex is a good one.
Vitamin B6-100mcg
Vitamins A-10,0000 IU including Omega 3. (I also adds olive oil to my foods)
This is the max safe dose of vitamin A, so don't go higher than this.
Apparently olive oil doesn't have much omega 3, you get lots more from linseed oil and rapeseed oil. My doc told me to get capsules of fish oil and take the max dose on the bottle, and eat linseed oil too (but I cannot get it in Sicily, here it is olive or nothing). You need really good brands of fish oil, I use Higher Nature which I think is a good one. I also once got pure krill oil, which I think is also very good, particularly as it has a very low mercury content.
Vitamin C-1,000mg
That's the bare minimum, I take 9,000mg a day!!!
It is needed by your immune system, by your adrenal glands which make cortisol (which is our natural anti-inflammatory and also essential to give you energy and keep your thyroid gland working and to keep the levels of all your sex hormones high enough) and thirdly, needed to repair connective tissue, which is constantly being damaged by lyme spirochetes.
When we have lyme disease we need extra C for all these things.
If you want to take more, you need to buy cuffered, otherwise you will get diarrhoea, and you build up by increasing extra 1000mg every 3 days, if you get tummy upset then that is your maximum dose.
Vitamin D-4,000 IU with 600mg Calcium
My doc prescribed 2000IU daily of D
I take 1200mg daily of calcium but that is because I am allergic to dairy, I think if you do eat dairy then that dose should be fine.
Zinc-60mg
perfect
Co-Q10-200mg
I was prescribed 60mg daily, but the absorption rate of Co Q 10 is extremely variable. The brand the doc prescribed me is absorbed 3 times more efficiently than normal Q10. There are several version of Jarrow coQ10 that are also this type, you really feel the difference in energy takig them (just have the dosag it says of whatever pack you buy). I get much more benefit from taking a lower dose of good stuff than a high dose of the ordinary type.
Probiotics-I take none, every time I tried, it give me digestive trouble.
Probiotics nearly always have either lactose or fructose (also called FOS) to keep the bacteria alive. Many people with lyme have problems with these, usually fructose (I did read 40 percent of us) but I think some have problems with lactose.
Also some of us have allergies to yeast.
It is possiblte to find bacterial only probiotics with no sugar. But beter quality ones usually do have something - see what is in the ones you have taken adn if it was fructose, try lactose ones, or vice versa. If you do need ones with no sugar, you may need to look on the inernet instead of just asking at the local pharmacy. I've used ones called "Pro bio inulin free" by Kirkman, which I found very good indeed.
Hope that all helps!
3-5 k was only going to be the cost for the initial visit and initial blood work. No treatment.
Even though I had already had 90% of the tests done three times in the last year, by my GP, the ER, and and infectious disease specialist, they still wanted to run them again.
The was from Dr. C*****n in Mt Kisco, NY. a well known "lyme specialist"
Another cost people often dont consider is the many hours of treatment. Its one thing if you are completely debillitated, but most people are still struggling to maintain some kind of life, and daily visits to a Dr office for IV drips that are only moderately successful can cause more burden.
Agreed the Lyme deniers are a big problem, but from everything I have seen as a Lyme sufferer, so are many of the "Lyme Specialists".
Basicaly as a blue collar worker with no health insurance in the US, suffering from long term Lyme, I felt F$%ked for a while. I wondered if it was going to be the end of me.
Truth is, there were times when the pain was so bad, if I didnt have a family to live for I may have done more than just consider a dark alternative.
Even though I had already had 90% of the tests done three times in the last year, by my GP, the ER, and and infectious disease specialist, they still wanted to run them again.
The was from Dr. C*****n in Mt Kisco, NY. a well known "lyme specialist"
Another cost people often dont consider is the many hours of treatment. Its one thing if you are completely debillitated, but most people are still struggling to maintain some kind of life, and daily visits to a Dr office for IV drips that are only moderately successful can cause more burden.
Agreed the Lyme deniers are a big problem, but from everything I have seen as a Lyme sufferer, so are many of the "Lyme Specialists".
Basicaly as a blue collar worker with no health insurance in the US, suffering from long term Lyme, I felt F$%ked for a while. I wondered if it was going to be the end of me.
Truth is, there were times when the pain was so bad, if I didnt have a family to live for I may have done more than just consider a dark alternative.
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