Niko,
You are so right. I felt like I was in the days of the inquisition was on was in
Tx with Lyme. LOL
It sounds like the Middle Ages and the Inquisition in Texas, lol!
Just google this report: PublicHealthAlert, v. 4, no. 7, 2009
It's a bloody shame!
“It's not what you don't know that kills you, it's what you know for sure that ain't true.” - Mark Twain
Cheers!
Niko
I would search online for
texas lyme disease association
You will see links to various patient-oriented sites who may be able to guide you to a Lyme specialist in Texas (if any) and/or to those in neighboring states. If you tell them where in TX you are located, they might be able to give you direction to someone closer to you.
When I lived in Tx, I was treated so badly and misdiagnosed, been thrown out of my doctor's office and I complained to the Tx medical board which was like talking to the wall.
I heard from my Tx online support group that most everyone follows the U of T medical school's philosophy that Lyme doesn't exist.
One of the people with Lyme on my support group was a physician with Lyme. He called me and tried to explain the whole outlook on Lyme in TX. It was disgusting.
If there are LLMD in Louisiana and you are able to drive there, I would go.
Feel better
Have you received that PM that 'home' said he/she was going to send you?
I've heard several times that there is a Louisiana doctor who treats Lyme. I've never looked into who that is or if his/her treatment is science-based. I confer with Dr. Google now. :)
If you have to travel to get treatment Louisiana may be the closest but San Francisco has quite a few also.
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There's a Dr. F. in Pineville Louisiana that used to be the go-to guy for Lyme. Whether he's still practicing (Lyme) or not I don't know. But you can google Louisiana llmd. His phone number will be on 'ratemeds.com'.
There are indeed still docs out there who believe that Lyme is a self-limiting infection or alternatively an infection that the immune system can eradicate. They are entitled to their own opinions, but I'm waiting for them to volunteer to be infected with Lyme and see how they do with no treatment.
The real problem, from what I read, is the state medical board in Texas, which will go after docs who treat ILADS-style. Other states have 'conscience' laws that allow docs to treat according to their own analysis rather than what the medical board says. The top-down model works when disease and Mother Nature stop evolving and producing new diseases, but so far, Mother Nature isn't on board with that approach.
I'm guessing that the doc who told you that Lyme will go away by itself is unaware that Lyme, like its cousin syphilis (also caused by a spiral-shaped bacterium) can go quiet for a very long time after initial infection, doing its dirty work in the background. People may not feel quite so bad while that is going on inside them, but like termites quietly chewing up a house from the inside out, bad things are bound to come.
There may be docs in Texas who will quietly treat ILADS-style, but finding them is the trick. If you get friendly with any patient-oriented groups in Texas, they may be able to help you find a sympathetic doc. Alternatively, be ready to go out of state for treatment.
Best wishes -- keep us posted --
ARGGHHH! (Add this to my many other ''argghhh's!)